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Adolfsson, Päivi
Publications (10 of 14) Show all publications
Adolfsson, P., Ekman, P. & Umb-Carlsson, Ö. (2018). Challenges for registered dietitians working with food related health promotion for adults with IDD in supported housing. Paper presented at 5th International IASSIDD Europe Congress, 17–20 July, 2018, Athens, Greece.. JARID: Journal of applied research in intellectual disabilities, 31(4), 621-621
Open this publication in new window or tab >>Challenges for registered dietitians working with food related health promotion for adults with IDD in supported housing
2018 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 621-621Article in journal, Meeting abstract (Other academic) Published
National Category
Nutrition and Dietetics
Identifiers
urn:nbn:se:uu:diva-366825 (URN)10.1111/jar.12476 (DOI)000435941500470 ()
Conference
5th International IASSIDD Europe Congress, 17–20 July, 2018, Athens, Greece.
Note

Meeting Abstract: 5545

Available from: 2018-11-28 Created: 2018-11-28 Last updated: 2018-11-28Bibliographically approved
Lindstedt, H., Janeslätt, G., Jöreskog, K. & Adolfsson, P. (2018). Evaluation of "Mothers in Spite of All": a group intervention for mothers with cognitive limitations who have children in placement. JARID: Journal of applied research in intellectual disabilities, 31(4), 625-625
Open this publication in new window or tab >>Evaluation of "Mothers in Spite of All": a group intervention for mothers with cognitive limitations who have children in placement
2018 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 625-625Article in journal, Meeting abstract (Other academic) Published
National Category
Other Social Sciences not elsewhere specified Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:uu:diva-366827 (URN)10.1111/jar.12476 (DOI)000435941500482 ()
Note

Meeting Abstract: 5669

Available from: 2018-11-28 Created: 2018-11-28 Last updated: 2018-11-28Bibliographically approved
Jöreskog, K., Lindstedt, H., Adolfsson, P. & Janeslätt, G. (2018). Experiences of the parenting sole and support in mothers with cognitive limitations who have children in placement. JARID: Journal of applied research in intellectual disabilities, 31(4), 624-624
Open this publication in new window or tab >>Experiences of the parenting sole and support in mothers with cognitive limitations who have children in placement
2018 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 624-624Article in journal, Meeting abstract (Other academic) Published
National Category
Public Health, Global Health, Social Medicine and Epidemiology Psychology (excluding Applied Psychology)
Identifiers
urn:nbn:se:uu:diva-366826 (URN)10.1111/jar.12476 (DOI)000435941500479 ()
Note

Meeting Abstract: 5603

Available from: 2018-11-28 Created: 2018-11-28 Last updated: 2018-11-28Bibliographically approved
Umb-Carlsson, Õ. & Adolfsson, P. (2018). Quality of Life Is to Experience Adult Social Status. Journal of Policy and Practice in Intellectual Disabilities, 15(4), 272-283
Open this publication in new window or tab >>Quality of Life Is to Experience Adult Social Status
2018 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 15, no 4, p. 272-283Article in journal (Refereed) Published
Abstract [en]

Quality of life (QoL) has become an important outcome in evaluations of services and support for people with intellectual disabilities (ID). Many people with ID request more say and want to be involved in the development of services and support provision. The original Uppsala QoL (UQoL) model consists of a general essence and hierarchically ordered themes and describes QoL from the perspective of people with ID through individual interviews. The aim of the present study is to examine the UQoL regarding its inherent component parts and to explore the interrelationship between them. The study contributes to the understanding of the concept of QoL from the perspective of people with ID. Focus group interviews were conducted with people with mild and moderate ID. The results indicate that QoL is to experience well-being. The key component of QoL is to experience adult social status. which is determined by whether the individual experiences having control of their life, experiences a sense of personal safety and feels social belonging. In concordance with the original model, the UQoL2 is mainly made up of components equivalent to those frequently reported in the QoL literature. Nevertheless, some differences require attention. The primary component, adult social status, has not previously been highlighted in the QoL literature. The point of departure in the UQoL model is the users ' perspective rather than the user perspective as perceived by professionals or researchers. The UQoL is not primarily linked to the quality of service provision, but to peoples' daily life. A revised version of the original UQoL is suggested. Unlike the original model, other than the fact which that adult social status is superior, the components are not hierarchically organized, rather the interrelation between them is emphasized.

Place, publisher, year, edition, pages
WILEY, 2018
Keywords
focus group, ID, participatory approach, quality of life
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-373005 (URN)10.1111/jppi.12282 (DOI)000453739400001 ()
Available from: 2019-01-11 Created: 2019-01-11 Last updated: 2019-01-11Bibliographically approved
Adolfsson, P., Lindstedt, H., Pettersson, I., Norling Hermansson, L. & Janeslätt, G. (2016). Perception of the influence of environmental factors in the use of electronic planning devices in adults with cognitive disabilities. Disability and Rehabilitation: Assistive Technology, 11(6), 493-500
Open this publication in new window or tab >>Perception of the influence of environmental factors in the use of electronic planning devices in adults with cognitive disabilities
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2016 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 11, no 6, p. 493-500Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Adults with cognitive disabilities often have difficulties in dealing with the complexity of everyday life. With cognitive assistive technology (e.g. electronic planning devices [EPDs] and individual support), they can bring order to their often chaotic life. Assumptions are that environmental factors influence with non-use of EPDs.

OBJECTIVE: To explore how adults with cognitive disabilities perceive the influence of environmental factors in the use of EPDs.

METHODS: A reference group with experience of use of EPDs assisted the researchers. Twelve adults with cognitive disabilities and experience of using EPDs participated. An interview guide was implemented covering environmental factors according to the International Classification of Functioning, Disability and Health. Qualitative content analysis was applied in the analyses.

RESULTS: Five categories and two themes emerged, which were integrated into a model of facilitating factors influencing the use of EPDs. Measures to prevent or eliminate negative influences of the device use are important to be taken. CONCLUSIONS: Professionals need more knowledge about EPDs, while users need individual adaption of the EPDs. EPDs need to be user-friendly, manageable and work in any seasons. Implications for Rehabilitation The users should have access to specially trained prescribers. There is a need for development of user-friendly and manageable products to function in any climate. Knowledge is lacking on how to implement the users in all stages of the prescribing process. Prescribers should increase knowledge in the use of EPDs to influence the attitudes of the social environment.

National Category
Occupational Therapy
Identifiers
urn:nbn:se:uu:diva-236953 (URN)10.3109/17483107.2014.989418 (DOI)000386459700007 ()25434402 (PubMedID)
Available from: 2014-11-25 Created: 2014-11-25 Last updated: 2017-12-05Bibliographically approved
Janeslätt, G., Lindstedt, H. & Adolfsson, P. (2015). Daily time management and influences of environmental factors on use of electronic planning devices in adults with mental disability. Disability and Rehabilitation: Assistive Technology, 10(5), 371-377
Open this publication in new window or tab >>Daily time management and influences of environmental factors on use of electronic planning devices in adults with mental disability
2015 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 10, no 5, p. 371-377Article in journal (Refereed) Published
Abstract [en]

Purpose:  To describe daily time management in adults with and without mental disability and to examine differences in the level of their daily time management; to describe the possessions and use of electronic planning devices (EPDs) in activities and how environmental factors influence the use of EPDs in adults with mental disability. Methods: In a descriptive and cross-sectional design 32 participants using EPDs and a matched comparison group of 32 healthy adults was recruited. Time-Self rating scale measuring daily time management was adapted for adults. A study specific questionnaire was applied to collect data on five ICF environmental factors. Rasch modelling, descriptive and non-parametric statistics were applied. Results: Time-S has acceptable psychometric properties for use on adults with mental disability. People with mental disability and low level of daily time management who use advanced EPDs are more influenced by environmental factors. The study group perceived that encouragement and support from professionals as well as services influence their use of EPDs. Conclusions: Time-S can safely be used for people with mental disability. EPDs do not fully compensate the needs of the target-group. Prescribers need to give considerations to this and therefore they should be provided with more knowledge about this matter.

Place, publisher, year, edition, pages
Informa healthcare: , 2015
Keywords
Assistive technology, cognitive dysfunction, ICF, occupational therapy, Rasch modeling, Time-S
National Category
Occupational Therapy
Research subject
Health Care Research
Identifiers
urn:nbn:se:uu:diva-224614 (URN)10.3109/17483107.2014.917124 (DOI)24805929 (PubMedID)
Available from: 2014-05-14 Created: 2014-05-14 Last updated: 2017-12-05Bibliographically approved
Adolfsson, P., Lindstedt, H. & Janeslätt, G. (2015). How people with cognitive disabilities experience electronic planning devices. NeuroRehabilitation (Reading, MA), 37(3), 379-392
Open this publication in new window or tab >>How people with cognitive disabilities experience electronic planning devices
2015 (English)In: NeuroRehabilitation (Reading, MA), ISSN 1053-8135, E-ISSN 1878-6448, Vol. 37, no 3, p. 379-392Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: People with cognitive disabilities have difficulties in accomplishing everyday tasks. Electronic planning devices (EPDs) may compensate for the gap between a person’s capacity and everyday challenges. However, the devices are not always used as intended. Despite that, cognitive assistive technology has been investigated in several studies, knowledge regarding when and what makes adults decide to use EPDs is incomplete. People with cognitive disabilities have difficulties in accomplishing everyday tasks. Electronic planning devices (EPDs) may compensate for the gap between a person’s capacity and everyday challenges. However, the devices are not always used as intended. Despite that, cognitive assistive technology has been investigated in several studies, knowledge regarding when and what makes adults decide to use EPDs is incomplete. OBJECTIVE: The aim was to explore the subjective experiences of people with cognitive disabilities in relation to the use of EPDs. The aim was to explore the subjective experiences of people with cognitive disabilities in relation to the use of EPDs. METHODS: A qualitative approach was applied with a qualitative content analysis. Twelve respondents were interviewed with support from a study specific guide. A qualitative approach was applied with a qualitative content analysis. Twelve respondents were interviewed with support from a study specific guide. RESULTS: A model representing the respondents’ experiences in the use of EPDs, comprising one theme, Possibility to master my daily life , four categories, Degree of fit to my needs, I am aware of my cognitive disability, I get help to structure my everyday life and The EPD improves my volition and ten subcategories, was developed. A model representing the respondents’ experiences in the use of EPDs, comprising one theme, Possibility to master my daily life , four categories, Degree of fit to my needs, I am aware of my cognitive disability, I get help to structure my everyday life and The EPD improves my volition and ten subcategories, was developed. CONCLUSIONS: EPDs allow people with cognitive disabilities the possibility to deal with daily challenges; those who find EPDs beneficial tend to use them. EPDs can help people with cognitive disabilities in organisation, managing time and improve volition. EPDs allow people with cognitive disabilities the possibility to deal with daily challenges; those who find EPDs beneficial tend to use them. EPDs can help people with cognitive disabilities in organisation, managing time and improve volition.

National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:uu:diva-268003 (URN)10.3233/NRE-151268 (DOI)000366324100005 ()
Available from: 2015-12-01 Created: 2015-12-01 Last updated: 2017-12-01
Janeslätt, G., Jöreskog, K., Springer, L. & Adolfsson, P. (2014). Parents on the outside - a pilot study of a support group for parents with cognitive limitations who have lost the care of their children. JARID: Journal of applied research in intellectual disabilities, 27(4), 356-356
Open this publication in new window or tab >>Parents on the outside - a pilot study of a support group for parents with cognitive limitations who have lost the care of their children
2014 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 27, no 4, p. 356-356Article in journal, Meeting abstract (Other academic) Published
National Category
Health Sciences
Identifiers
urn:nbn:se:uu:diva-230253 (URN)000338992800402 ()
Available from: 2014-08-21 Created: 2014-08-21 Last updated: 2017-12-05
Adolfsson, P. (2012). Food security and people with intellectual disabilities living in community residences in Sweden. In: Journal of Intellectual Disability Research 56; 7/8: . Paper presented at 14th IASSID World Congress: A WORLD OF POTENTIAL.
Open this publication in new window or tab >>Food security and people with intellectual disabilities living in community residences in Sweden
2012 (English)In: Journal of Intellectual Disability Research 56; 7/8, 2012Conference paper, Poster (with or without abstract) (Refereed)
National Category
Other Medical Sciences not elsewhere specified
Research subject
Food, Nutrition and Dietetics
Identifiers
urn:nbn:se:uu:diva-221492 (URN)
Conference
14th IASSID World Congress: A WORLD OF POTENTIAL
Available from: 2014-03-31 Created: 2014-03-31 Last updated: 2016-10-03
Adolfsson, P., Fjellström, C., Lewin, B. & Mattsson Sydner, Y. (2012). Foodwork among people with intellectual disabilities and dietary implications depending on staff involvement. Scandinavian Journal of Disability Research, 14(1), 40-55
Open this publication in new window or tab >>Foodwork among people with intellectual disabilities and dietary implications depending on staff involvement
2012 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Scandinavian Journal of Disability Research, ISSN ISSN 1501-7419, EISSN 1745-3011, Vol. 14, no 1, p. 40-55Article in journal (Refereed) Published
Abstract [en]

The food provision for people with intellectual disability (ID) in Sweden is organized within their own households. The aim of this study was to describe how foodwork – planning for meals, shopping for food and cooking – is performed in different social contexts in community settings involving people with ID, staff or both. Dietary intake in the main meals in relation to foodwork practice was also studied. Four different foodwork practices could be distinguished. For some participants only one kind of foodwork practice was found, but for most of them two or more different practices. There was a tendency that food items and dishes chosen and used differed depending on what foodwork practice was performed, which, in turn, affected the nutrient intake. More attention needs to be directed to these everyday matters as a means to increase the quality of support in food for people with ID.

Place, publisher, year, edition, pages
London: Taylor & Francis, 2012
Keywords
community housing, foodwork, intellectuel disability, dietary intake
National Category
Social Sciences
Research subject
Nutrition
Identifiers
urn:nbn:se:uu:diva-131325 (URN)10.1080/15017419.2010.507384 (DOI)
Available from: 2010-09-29 Created: 2010-09-29 Last updated: 2018-08-09
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