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Publications (10 of 16) Show all publications
Adolfsson, P., Ek, P. & Umb-Carlsson, Õ. (2019). Dietitians’ challenges when consulting to adults with intellectual disabilities. Tizard Learning Disability Review, 24(4), 153-162
Open this publication in new window or tab >>Dietitians’ challenges when consulting to adults with intellectual disabilities
2019 (English)In: Tizard Learning Disability Review, ISSN 1359-5474, E-ISSN 2042-8782, ISSN ISSN 1359-5474,, Vol. 24, no 4, p. 153-162Article in journal (Refereed) Published
Abstract [en]

Purpose: The purpose of this paper is to investigate registered dietitians' (RDs) experiences in consulting to adults with intellectual disabilities (ID) in Sweden.

Design/methodology/approach: A descriptive study using a study-specific web-based questionnaire was administered, comprising both multiple-choice questions with a space for comments and open-ended questions. The open-ended answers and comments from 53 respondents were analysed with systematic text condensation.

Findings: Four categories were identified: RDs' experiences from the first meeting; explanations for late initial contact; the actions taken by RDs; and necessary measures for more sustainable nutrition care. Ten sub-categories described the challenges that RDs experience in more detail.

Practical implications: It is necessary to provide adults with ID and their supporting staff with individually tailored nutritional information. Individuals with ID must be actively involved in lifestyle changes that affect their everyday life. The RD must be included in the interdisciplinary team supporting adults with ID. If a new practice is to be implemented, it should be compatible with the existing values of adults with ID and their staff and must be feasible to implement in the everyday life of the individual.

Originality/value: This paper identified several barriers that should be overcome in relation to the preparation of RDs for consultation with adults with ID about nutritional health issues. A systematic structure, knowledge about nutrition and knowledge about adults with ID and their living situations are needed. An assessment instrument may meet health promotion needs and facilitate longitudinal follow-ups of nutritional problems.

National Category
Nutrition and Dietetics
Identifiers
urn:nbn:se:uu:diva-395125 (URN)10.1108/TLDR-11-2018-0033 (DOI)000494033800001 ()
Available from: 2019-10-13 Created: 2019-10-13 Last updated: 2019-12-16Bibliographically approved
Janeslätt, G., Jöreskog, K., Lindstedt, H. & Adolfsson, P. (2019). Experiences of the maternal role and support in mothers with cognitive limitations who have children in placement. Child & Family Social Work, 24(4), 494-502
Open this publication in new window or tab >>Experiences of the maternal role and support in mothers with cognitive limitations who have children in placement
2019 (English)In: Child & Family Social Work, ISSN 1356-7500, E-ISSN 1365-2206, Vol. 24, no 4, p. 494-502Article in journal (Refereed) Published
Abstract [en]

In Sweden, when needed, children of mothers with cognitive limitations are placed infoster homes. There is a lack of knowledge about the mothers with cognitive limitations,their experiences of their maternal role, whether they get the support neededto maintain the relationship with their children, and whether the support system isadapted to mothers with cognitive limitations. The aim was to describe the experiencesof the maternal role and support given in mothers with cognitive limitationswho have children in placement. An explorative and qualitative design was used.Eleven respondents were interviewed with support from a study‐specific guide. Amodel representing the respondents' experiences revealed one theme “Struggling,dependent and frustrated mothers,” and three categories: I am a mother, I am dependenton an incomprehensible system, and I reluctantly accept my situation. Motherswith children in placement experience a threat to their identity and experience a needto alter their maternal role. They need adapted support to understand the decisionsmade and facilitate the cooperation with child protection services and the fosterhome. Offering service adapted to their cognitive limitations could be helpful forthe struggling, dependent, and frustrated mothers.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
ADHD, foster care, mental disabilities, support
National Category
Social Work
Identifiers
urn:nbn:se:uu:diva-369324 (URN)10.1111/cfs.12629 (DOI)
Available from: 2018-12-12 Created: 2018-12-12 Last updated: 2019-11-18Bibliographically approved
Adolfsson, P., Ek, P. & Umb-Carlsson, Ö. (2018). Challenges for registered dietitians working with food related health promotion for adults with IDD in supported housing. In: : . Paper presented at 5th International IASSIDD Europe Congress, 17–20 July, 2018, Athens, Greece. (pp. 621-621). , 31(4)
Open this publication in new window or tab >>Challenges for registered dietitians working with food related health promotion for adults with IDD in supported housing
2018 (English)Conference paper, Poster (with or without abstract) (Other academic)
National Category
Nutrition and Dietetics
Identifiers
urn:nbn:se:uu:diva-366825 (URN)10.1111/jar.12476 (DOI)000435941500470 ()
Conference
5th International IASSIDD Europe Congress, 17–20 July, 2018, Athens, Greece.
Note

Meeting Abstract: 5545

Available from: 2018-11-28 Created: 2018-11-28 Last updated: 2019-07-03
Lindstedt, H., Janeslätt, G., Jöreskog, K. & Adolfsson, P. (2018). Evaluation of "Mothers in Spite of All": a group intervention for mothers with cognitive limitations who have children in placement. JARID: Journal of applied research in intellectual disabilities, 31(4), 625-625
Open this publication in new window or tab >>Evaluation of "Mothers in Spite of All": a group intervention for mothers with cognitive limitations who have children in placement
2018 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 625-625Article in journal, Meeting abstract (Other academic) Published
National Category
Other Social Sciences not elsewhere specified Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:uu:diva-366827 (URN)10.1111/jar.12476 (DOI)000435941500482 ()
Note

Meeting Abstract: 5669

Available from: 2018-11-28 Created: 2018-11-28 Last updated: 2019-10-11Bibliographically approved
Jöreskog, K., Lindstedt, H., Adolfsson, P. & Janeslätt, G. (2018). Experiences of the parenting sole and support in mothers with cognitive limitations who have children in placement. JARID: Journal of applied research in intellectual disabilities, 31(4), 624-624
Open this publication in new window or tab >>Experiences of the parenting sole and support in mothers with cognitive limitations who have children in placement
2018 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 624-624Article in journal, Meeting abstract (Other academic) Published
National Category
Public Health, Global Health, Social Medicine and Epidemiology Psychology (excluding Applied Psychology)
Identifiers
urn:nbn:se:uu:diva-366826 (URN)10.1111/jar.12476 (DOI)000435941500479 ()
Note

Meeting Abstract: 5603

Available from: 2018-11-28 Created: 2018-11-28 Last updated: 2019-10-11Bibliographically approved
Umb-Carlsson, Õ. & Adolfsson, P. (2018). Quality of Life Is to Experience Adult Social Status. Journal of Policy and Practice in Intellectual Disabilities, 15(4), 272-283
Open this publication in new window or tab >>Quality of Life Is to Experience Adult Social Status
2018 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 15, no 4, p. 272-283Article in journal (Refereed) Published
Abstract [en]

Quality of life (QoL) has become an important outcome in evaluations of services and support for people with intellectual disabilities (ID). Many people with ID request more say and want to be involved in the development of services and support provision. The original Uppsala QoL (UQoL) model consists of a general essence and hierarchically ordered themes and describes QoL from the perspective of people with ID through individual interviews. The aim of the present study is to examine the UQoL regarding its inherent component parts and to explore the interrelationship between them. The study contributes to the understanding of the concept of QoL from the perspective of people with ID. Focus group interviews were conducted with people with mild and moderate ID. The results indicate that QoL is to experience well-being. The key component of QoL is to experience adult social status. which is determined by whether the individual experiences having control of their life, experiences a sense of personal safety and feels social belonging. In concordance with the original model, the UQoL2 is mainly made up of components equivalent to those frequently reported in the QoL literature. Nevertheless, some differences require attention. The primary component, adult social status, has not previously been highlighted in the QoL literature. The point of departure in the UQoL model is the users ' perspective rather than the user perspective as perceived by professionals or researchers. The UQoL is not primarily linked to the quality of service provision, but to peoples' daily life. A revised version of the original UQoL is suggested. Unlike the original model, other than the fact which that adult social status is superior, the components are not hierarchically organized, rather the interrelation between them is emphasized.

Place, publisher, year, edition, pages
WILEY, 2018
Keywords
focus group, ID, participatory approach, quality of life
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-373005 (URN)10.1111/jppi.12282 (DOI)000453739400001 ()
Available from: 2019-01-11 Created: 2019-01-11 Last updated: 2019-01-11Bibliographically approved
Adolfsson, P., Lindstedt, H., Pettersson, I., Norling Hermansson, L. & Janeslätt, G. (2016). Perception of the influence of environmental factors in the use of electronic planning devices in adults with cognitive disabilities. Disability and Rehabilitation: Assistive Technology, 11(6), 493-500
Open this publication in new window or tab >>Perception of the influence of environmental factors in the use of electronic planning devices in adults with cognitive disabilities
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2016 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 11, no 6, p. 493-500Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Adults with cognitive disabilities often have difficulties in dealing with the complexity of everyday life. With cognitive assistive technology (e.g. electronic planning devices [EPDs] and individual support), they can bring order to their often chaotic life. Assumptions are that environmental factors influence with non-use of EPDs.

OBJECTIVE: To explore how adults with cognitive disabilities perceive the influence of environmental factors in the use of EPDs.

METHODS: A reference group with experience of use of EPDs assisted the researchers. Twelve adults with cognitive disabilities and experience of using EPDs participated. An interview guide was implemented covering environmental factors according to the International Classification of Functioning, Disability and Health. Qualitative content analysis was applied in the analyses.

RESULTS: Five categories and two themes emerged, which were integrated into a model of facilitating factors influencing the use of EPDs. Measures to prevent or eliminate negative influences of the device use are important to be taken. CONCLUSIONS: Professionals need more knowledge about EPDs, while users need individual adaption of the EPDs. EPDs need to be user-friendly, manageable and work in any seasons. Implications for Rehabilitation The users should have access to specially trained prescribers. There is a need for development of user-friendly and manageable products to function in any climate. Knowledge is lacking on how to implement the users in all stages of the prescribing process. Prescribers should increase knowledge in the use of EPDs to influence the attitudes of the social environment.

National Category
Occupational Therapy
Identifiers
urn:nbn:se:uu:diva-236953 (URN)10.3109/17483107.2014.989418 (DOI)000386459700007 ()25434402 (PubMedID)
Available from: 2014-11-25 Created: 2014-11-25 Last updated: 2019-10-11Bibliographically approved
Janeslätt, G., Lindstedt, H. & Adolfsson, P. (2015). Daily time management and influences of environmental factors on use of electronic planning devices in adults with mental disability. Disability and Rehabilitation: Assistive Technology, 10(5), 371-377
Open this publication in new window or tab >>Daily time management and influences of environmental factors on use of electronic planning devices in adults with mental disability
2015 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115, Vol. 10, no 5, p. 371-377Article in journal (Refereed) Published
Abstract [en]

Purpose:  To describe daily time management in adults with and without mental disability and to examine differences in the level of their daily time management; to describe the possessions and use of electronic planning devices (EPDs) in activities and how environmental factors influence the use of EPDs in adults with mental disability. Methods: In a descriptive and cross-sectional design 32 participants using EPDs and a matched comparison group of 32 healthy adults was recruited. Time-Self rating scale measuring daily time management was adapted for adults. A study specific questionnaire was applied to collect data on five ICF environmental factors. Rasch modelling, descriptive and non-parametric statistics were applied. Results: Time-S has acceptable psychometric properties for use on adults with mental disability. People with mental disability and low level of daily time management who use advanced EPDs are more influenced by environmental factors. The study group perceived that encouragement and support from professionals as well as services influence their use of EPDs. Conclusions: Time-S can safely be used for people with mental disability. EPDs do not fully compensate the needs of the target-group. Prescribers need to give considerations to this and therefore they should be provided with more knowledge about this matter.

Place, publisher, year, edition, pages
Informa healthcare: , 2015
Keywords
Assistive technology, cognitive dysfunction, ICF, occupational therapy, Rasch modeling, Time-S
National Category
Occupational Therapy
Research subject
Health Care Research
Identifiers
urn:nbn:se:uu:diva-224614 (URN)10.3109/17483107.2014.917124 (DOI)24805929 (PubMedID)
Available from: 2014-05-14 Created: 2014-05-14 Last updated: 2019-10-11Bibliographically approved
Adolfsson, P., Lindstedt, H. & Janeslätt, G. (2015). How people with cognitive disabilities experience electronic planning devices. NeuroRehabilitation (Reading, MA), 37(3), 379-392
Open this publication in new window or tab >>How people with cognitive disabilities experience electronic planning devices
2015 (English)In: NeuroRehabilitation (Reading, MA), ISSN 1053-8135, E-ISSN 1878-6448, Vol. 37, no 3, p. 379-392Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: People with cognitive disabilities have difficulties in accomplishing everyday tasks. Electronic planning devices (EPDs) may compensate for the gap between a person’s capacity and everyday challenges. However, the devices are not always used as intended. Despite that, cognitive assistive technology has been investigated in several studies, knowledge regarding when and what makes adults decide to use EPDs is incomplete. People with cognitive disabilities have difficulties in accomplishing everyday tasks. Electronic planning devices (EPDs) may compensate for the gap between a person’s capacity and everyday challenges. However, the devices are not always used as intended. Despite that, cognitive assistive technology has been investigated in several studies, knowledge regarding when and what makes adults decide to use EPDs is incomplete. OBJECTIVE: The aim was to explore the subjective experiences of people with cognitive disabilities in relation to the use of EPDs. The aim was to explore the subjective experiences of people with cognitive disabilities in relation to the use of EPDs. METHODS: A qualitative approach was applied with a qualitative content analysis. Twelve respondents were interviewed with support from a study specific guide. A qualitative approach was applied with a qualitative content analysis. Twelve respondents were interviewed with support from a study specific guide. RESULTS: A model representing the respondents’ experiences in the use of EPDs, comprising one theme, Possibility to master my daily life , four categories, Degree of fit to my needs, I am aware of my cognitive disability, I get help to structure my everyday life and The EPD improves my volition and ten subcategories, was developed. A model representing the respondents’ experiences in the use of EPDs, comprising one theme, Possibility to master my daily life , four categories, Degree of fit to my needs, I am aware of my cognitive disability, I get help to structure my everyday life and The EPD improves my volition and ten subcategories, was developed. CONCLUSIONS: EPDs allow people with cognitive disabilities the possibility to deal with daily challenges; those who find EPDs beneficial tend to use them. EPDs can help people with cognitive disabilities in organisation, managing time and improve volition. EPDs allow people with cognitive disabilities the possibility to deal with daily challenges; those who find EPDs beneficial tend to use them. EPDs can help people with cognitive disabilities in organisation, managing time and improve volition.

National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:uu:diva-268003 (URN)10.3233/NRE-151268 (DOI)000366324100005 ()
Available from: 2015-12-01 Created: 2015-12-01 Last updated: 2020-02-20Bibliographically approved
Janeslätt, G., Jöreskog, K., Springer, L. & Adolfsson, P. (2014). Parents on the outside - a pilot study of a support group for parents with cognitive limitations who have lost the care of their children. JARID: Journal of applied research in intellectual disabilities, 27(4), 356-356
Open this publication in new window or tab >>Parents on the outside - a pilot study of a support group for parents with cognitive limitations who have lost the care of their children
2014 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 27, no 4, p. 356-356Article in journal, Meeting abstract (Other academic) Published
National Category
Health Sciences
Identifiers
urn:nbn:se:uu:diva-230253 (URN)000338992800402 ()
Available from: 2014-08-21 Created: 2014-08-21 Last updated: 2020-02-20Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-3882-2785

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