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Thorsell Cederberg, Jenny
Alternative names
Publications (10 of 14) Show all publications
Kassa, A.-M., Dellenmark-Blom, M., Thorsell Cederberg, J., Engvall, G. & Engstrand Lilja, H. (2020). Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents. Quality of Life Research, 29(4), 913-924
Open this publication in new window or tab >>Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents
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2020 (English)In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 29, no 4, p. 913-924Article in journal (Refereed) Published
Abstract [en]

PURPOSE: VACTERL association is a rare and complex condition of congenital malformations, often requiring repeated surgery and entailing various physical sequelae. Due to scarcity of knowledge, the study aim was to investigate self-reported health-related quality of life (HRQoL), anxiety, depression and self-concept in children and adolescents with VACTERL association and self-reported anxiety and depression in their parents.

METHODS: Patients aged 8-17 years with VACTERL association and their parents were recruited from three of four Swedish paediatric surgical centres during 2015-2019. The well-established validated questionnaires DISABKIDS, Beck Youth Inventories, Beck Anxiety Inventory and Beck Depression Inventory were sent to the families. Data were analysed using descriptives, t tests and multivariable analysis. Results were compared with norm groups and reference samples.

RESULTS: The questionnaires were returned by 40 patients, 38 mothers and 33 fathers. The mean HRQoL was M = 80.4, comparable to children with asthma (M = 80.2) and diabetes (M = 79.5). Self-reported psychological well-being was comparable to the norm group of Swedish school children, and was significantly higher than a clinical sample. Factors negatively influencing children's HRQoL and psychological well-being were identified. The parents' self-reports of anxiety and depression were comparable to non-clinical samples.

CONCLUSIONS: Although children and adolescents with VACTERL association reported similar HRQoL to those of European children with chronic conditions, their psychological well-being was comparable to Swedish school children in general. Nevertheless, some individuals among both children and parents were in need of extra support. This attained knowledge is valuable when counselling parents regarding the prognosis for children with VACTERL association.

Keywords
Congenital malformations, VACTERL association, Health-Related Quality of Life, psychological well-being, children and adolescents, parents
National Category
Pediatrics
Identifiers
urn:nbn:se:uu:diva-390576 (URN)10.1007/s11136-019-02364-w (DOI)000524863600006 ()31741214 (PubMedID)
Funder
Fredrik och Ingrid Thurings Stiftelse, 2017-00320
Available from: 2019-08-16 Created: 2019-08-16 Last updated: 2020-06-03Bibliographically approved
Thorsell Cederberg, J., Weineland, S., Dahl, J. & Ljungman, G. (2019). A preliminary validation of the Swedish version of the Pain Catastrophizing Scale for Children (PCS-C) for children and adolescents with cancer. Journal of Pain Research, 12, 1803-1811
Open this publication in new window or tab >>A preliminary validation of the Swedish version of the Pain Catastrophizing Scale for Children (PCS-C) for children and adolescents with cancer
2019 (English)In: Journal of Pain Research, ISSN 1178-7090, E-ISSN 1178-7090, Vol. 12, p. 1803-1811Article in journal (Refereed) Published
Abstract [en]

Objectives: Pain is reported as one of the most common and difficult symptoms for children and adolescents with cancer to cope with. Pain catastrophizing has been identified as a process clearly related to pain intensity and disability. The Pain Catastrophizing Scale for Children (PCS-C) has been validated in several languages and populations but remains to be validated in pediatric oncology. The aim of the study was to validate a Swedish version of the PCS-C for children and adolescents with cancer.

Methods: All children, 7-18 years of age, being treated for cancer in Sweden at the time of the study were invited to participate. Study material was sent out to the registered address. Internal consistency, test-retest reliability and convergent validity were calculated. Factor structure was examined using principal component analysis (PCA). Descriptive statistics were used to investigate background data and norm values.

Results: 61 children/adolescents were included in the analyses. The results did not support the original three-factor structure of the PCS-C, but rather suggested that a two-factor structure excluding item 8 best represented the data. The internal consistency of that solution was good (alpha=0.87), the test-rest reliability was excellent (ICC=0.75) and convergent validity was demonstrated (r=0.46). The mean (SD) for the PCS-C in the sample was 19.1 (9.2), without item 8. A statistically significant difference was shown between genders, where girls reported a higher level of pain catastrophizing than boys. No difference was found with regard to age.

Discussion: The Swedish version of the PCS-C is now preliminarily validated for children and adolescents with cancer, for whom gender- and age-specific norm values are now available. Questions remain regarding the optimal factor structure of the PCS-C.

Place, publisher, year, edition, pages
DOVE MEDICAL PRESS LTD, 2019
Keywords
The Pain Catastrophizing Scale for Children, instrument validation, children, adolescents, cancer, pain
National Category
Pediatrics
Identifiers
urn:nbn:se:uu:diva-387979 (URN)10.2147/JPR.S191378 (DOI)000470661700002 ()
Funder
Swedish Childhood Cancer Foundation, PR2013-0058Swedish Cancer Society, CAN2013/749
Available from: 2019-06-27 Created: 2019-06-27 Last updated: 2019-06-27Bibliographically approved
Thorsell Cederberg, J., Weineland, S., Dahl, J. & Ljungman, G. (2019). Validation of the Swedish version of the Pain Catastrophizing Scale for Parents (PCS-P) for parents of children with cancer. Journal of Pain Research, 12, 1017-1023
Open this publication in new window or tab >>Validation of the Swedish version of the Pain Catastrophizing Scale for Parents (PCS-P) for parents of children with cancer
2019 (English)In: Journal of Pain Research, ISSN 1178-7090, E-ISSN 1178-7090, Vol. 12, p. 1017-1023Article in journal (Refereed) Published
Abstract [en]

Objectives: Pain is reported as one of the most common and burdensome symptoms for children with cancer. Pain catastrophizing is clearly related to pain intensity and disability. Catastrophizing in parents is associated with both child functioning and parent distress. The Pain Catastrophizing Scale for Parents (PCS-P) remains to be validated for parents of children with cancer. The aim of the study was to validate the Swedish version of the PCS-P for parents of children with cancer experiencing pain.

Methods: Parents of all children who were being treated for cancer in Sweden at the time of the study were invited to participate. Study material was sent out to the registered address. Internal consistency, test-retest reliability, and convergent validity were calculated, and factor analysis was conducted. Descriptive statistics was used to investigate the background data and norm values.

Results: A total of 243 parents participated in the study. The results did not support the original three-factor structure of the PCS-P, but rather suggested that a two-factor structure best represented the data. The results showed excellent internal consistency (alpha=0.93), excellent temporal stability (intraclass correlation coefficient =0.86) and moderate convergent validity (rho=0.57). The mean (SD) for the PCS-P in the sample was 28.3 (10.7). A statistically significant difference was found between mothers and fathers, where mothers reported a higher level of pain catastrophizing than fathers.

Conclusion: The psychometric properties of the PCS-P has now been supported in a sample of parents of children with cancer, and norm values are now available. The factor structure does, however, deserve more investigation.

Place, publisher, year, edition, pages
DOVE MEDICAL PRESS LTD, 2019
Keywords
The Pain Catastrophizing Scale for Parents (PCS-P), validation, parents, cancer, pain
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-381933 (URN)10.2147/JPR.S193164 (DOI)000462266800003 ()30936740 (PubMedID)
Funder
Swedish Childhood Cancer Foundation, PR2013-0058Swedish Cancer Society, CAN2013/749
Available from: 2019-04-16 Created: 2019-04-16 Last updated: 2019-04-16Bibliographically approved
Thorsell Cederberg, J., Weineland, S., Dahl, J. & Ljungman, G. (2018). A preliminary validation of the Swedish short version of the Avoidance and Fusion Questionnaire for Youth (AFQ-Y8) for children and adolescents with cancer. Journal of Contextual Behavioral Science, 10, 103-107
Open this publication in new window or tab >>A preliminary validation of the Swedish short version of the Avoidance and Fusion Questionnaire for Youth (AFQ-Y8) for children and adolescents with cancer
2018 (English)In: Journal of Contextual Behavioral Science, ISSN 2212-1447, Vol. 10, p. 103-107Article in journal (Refereed) Published
Abstract [en]

Psychological inflexibility constitutes a generalized vulnerability for psychopathology. Children and adolescents undergoing cancer treatment are faced with numerous physical and psychological stressors throughout their cancer trajectory. Most of the survivors show resilience but some groups report psychological ill-health and poor quality-of-life long-term. Psychological flexibility has been shown to mediate improvements in psychological health for cancer patients. The Avoidance and Fusion Questionnaire for Youth (AFQ-Y) is the most frequently used measure of psychological inflexibility in children and adolescents. It correlates with a wide range of measures of mental health and long-term functional behavior. The aim of the study was to investigate norm values, psychometric properties and factor structure of the AFQ-Y8 for children and adolescents with cancer. All children and adolescents, aged 7-18 years of age, undergoing cancer treatment in Sweden at the time of the study were invited to participate. Norm values, internal consistency, test-retest reliability and convergent validity were calculated and an exploratory factor analysis was conducted. 62 children participated. The mean of the AFQ-Y8 in the sample was 10.30 (5.75). Internal consistency was acceptable (alpha = 0.76), test-retest reliability was good (ICC = 0.64) and convergent validity was demonstrated (r = 0.42). Norm values are now available, and the psychometric properties supported, for the AFQ-Y8 for children and adolescents with cancer. This provides implications for the prevention and treatment of psychopathology for this population. However, the one-factor structure of the AFQ-Y8 was not unequivocally supported. The results from the PCA rather suggested a two-factor structure. Due to the small sample of the study, the results should be seen as preliminary and further validation is warranted, specifically with regards to factorial validity and sensitivity to change.

Keywords
Psychological inflexibility, Cognitive fusion, Experiential avoidance, Psychological flexibility, Children and adolescents, Cancer
National Category
Psychiatry Psychology (excluding Applied Psychology)
Identifiers
urn:nbn:se:uu:diva-371414 (URN)10.1016/j.jcbs.2018.09.004 (DOI)000450806800013 ()
Funder
Swedish Childhood Cancer Foundation, PR2013-0058Swedish Cancer Society, CAN2013/749
Available from: 2018-12-20 Created: 2018-12-20 Last updated: 2018-12-20Bibliographically approved
Ander, M., Thorsell Cederberg, J., von Essen, L. & Hovén, E. (2018). Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support. PLoS ONE, 13(4), Article ID e0195899.
Open this publication in new window or tab >>Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support
2018 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 13, no 4, article id e0195899Article in journal (Refereed) Published
Abstract [en]

Objective

In this qualitative study, we aimed to provide an in-depth exploration of cancer-related psychological distress experienced by young survivors of cancer during adolescence reporting a need for psychological support.

Methods

Two individual interviews were held with ten young survivors of cancer diagnosed in adolescence. The interviews were audio-recorded and transcribed verbatim. Analysis followed the guidelines for inductive qualitative manifest content analysis.

Results

The survivors described distress experienced during and after the end of treatment. Five categories comprising 14 subcategories were generated. The categories included: A tough treatment, Marked and hindered, Not feeling good enough, Struggling with the fragility of life, and finally, An ongoing battle with emotions.

Conclusion

Young survivors of adolescent cancer reporting a need for psychological support described feeling physically, socially, and mentally marked by the cancer experience. They struggled with powerlessness, insecurity, social disconnection, loneliness, and feelings of being unimportant and a failure, and had difficulties understanding and managing their experiences. These concerns should be addressed in psychological treatments for the population irrespective of which approach or model is used to understand survivors’ difficulties. A transdiagnostic approach targeting processes that underpin different manifestations of distress may be effective.

Keywords
adolescence, cancer, psychological distress, psychological treatment, survivorship, qualitative methods
National Category
Psychology Cancer and Oncology
Research subject
Medical Science; Psychology
Identifiers
urn:nbn:se:uu:diva-330127 (URN)10.1371/journal.pone.0195899 (DOI)000430262300041 ()29664926 (PubMedID)
Funder
U‐Care: Better Psychosocial Care at Lower Cost? Evidence-based assessment and Psychosocial Care via Internet, a Swedish ExampleSwedish Childhood Cancer Foundation, 2013-0039; 2016-0004Swedish Research Council
Available from: 2017-10-31 Created: 2017-10-31 Last updated: 2018-06-26Bibliographically approved
Thorsell Cederberg, J., Weineland, S., Dahl, J. & Ljungman, G. (2018). Validation of the Swedish Acceptance and Action Questionnaire (SAAQ) for parents of children with cancer. Journal of Contextual Behavioral Science, 10, 50-54
Open this publication in new window or tab >>Validation of the Swedish Acceptance and Action Questionnaire (SAAQ) for parents of children with cancer
2018 (English)In: Journal of Contextual Behavioral Science, ISSN 2212-1447, Vol. 10, p. 50-54Article in journal (Refereed) Published
Abstract [en]

Experiential avoidance (EA) has been shown to constitute a generalized vulnerability for psychopathology. It is described as unwillingness to be in contact with aversive private experiences followed by behavioral responses to avoid those experiences. The Acceptance and Action Questionnaire (AAQ-II) is the most frequently used measure of EA and has been shown to correlate with a wide range of measures of mental health and long-term functional behavior. The Swedish version of the scale has previously been evaluated in a non-clinical sample but remains to be evaluated in a clinical one. A subgroup of parents of children with cancer report psychological ill-health long-term. The aim of the study was to investigate factor structure, norm values and psychometric properties of the Swedish Acceptance and Action Questionnaire (SAAQ) for parents of children with cancer. Parents of all children undergoing cancer treatment in Sweden at the time of the study were invited to participate. Factor structure was investigated and norm values, internal consistency, test-retest reliability and convergent validity were calculated. 243 parents participated. The mean of the SAAQ in the sample was 16.69 (SD 8.68; SE 0.56). Internal consistency (alpha = 0.92) and test-retest reliability (ICC = 0.86) were excellent. The SAAQ correlated moderately with the Pain Catastrophizing Scale for parents (PCS-P). Norm values are now available, and the psychometric properties supported, for the SAAQ for parents of children with cancer. This may facilitate prevention and treatment of psychopathology for this population by providing implications for interventions. First, however, sensitivity to change needs to be assessed.

Keywords
Experiential avoidance, Acceptance, Psychological inflexibility, Psychological flexibility, Parents, Children with cancer
National Category
General Practice
Identifiers
urn:nbn:se:uu:diva-371413 (URN)10.1016/j.jcbs.2018.08.008 (DOI)000450806800007 ()
Funder
Swedish Cancer Society, CAN2013/749Swedish Childhood Cancer Foundation, PR2013-0058
Available from: 2018-12-20 Created: 2018-12-20 Last updated: 2018-12-20Bibliographically approved
Thorsell Cederberg, J. (2017). Acceptance for persons suffering from pain: Evaluation of acceptance-based interventions for adults with chronic pain and children with cancer experiencing acute pain. (Doctoral dissertation). Uppsala: Acta Universitatis Upsaliensis
Open this publication in new window or tab >>Acceptance for persons suffering from pain: Evaluation of acceptance-based interventions for adults with chronic pain and children with cancer experiencing acute pain
2017 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

It is increasingly clear that pain and emotions are closely interconnected. Pain does not only cause psychological distress, but psychological distress also amplifies pain through neurological mechanisms. Treatment of both chronic and acute pain would benefit from acknowledging the psychological mechanisms of pain neurophysiology. Psychological acceptance predicts increased pain tolerance and decreased pain intensity and discomfort in experimentally induced pain and improved physical and psychosocial functioning for persons with chronic pain.

The overall aim of this thesis was to evaluate acceptance-based interventions for persons suffering from pain.

In Study I the effect of a manualised ACT-based self-help intervention for adults with chronic pain was evaluated in an RCT (n=90). The results showed improvements in satisfaction with life, physical functioning and pain intensity for the ACT group. Both the ACT and the control group improved regarding depression and anxiety. In Study II the mediating effect of acceptance for treatment change was evaluated, using data from Study I (n=64). The results showed indirect effects of treatment via acceptance for physical functioning but not for satisfaction with life. In Studies III and IV, instruments to measure psychological flexibility in relation to pain were developed for children with cancer, and their parents respectively, using factor analysis. The results showed that a two-factor solution for the child scale (n=61) and a three-factor solution for the parent scale (n=243), best represented the data. In Study V, an acceptance-based intervention was preliminarily evaluated in a single-subject study (n=5) for children reporting pain during cancer treatment. The intervention consisted of an approximately 15-minute long pain exposure exercise. All participants reported reduced discomfort of pain, and three of the participants reported reduced pain intensity.

The results suggest that a manualised ACT-based self-help intervention is a valuable addition to the treatment repertoire for persons with chronic pain and that acceptance may mediate the effect of treatment on physical functioning. Furthermore, instruments to measure acceptance in the context of acute pain in children with cancer are now available, although further validation is needed. Lastly, the results indicate that an acceptance-based intervention may help children undergoing cancer treatment to cope with pain.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2017. p. 64
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 1340
Keywords
acute pain, chronic pain, acceptance, psychological flexibility, acceptance and commitment therapy, children and adolescents, cancer
National Category
Applied Psychology Other Medical Sciences not elsewhere specified
Research subject
Psychology
Identifiers
urn:nbn:se:uu:diva-322401 (URN)978-91-513-0001-6 (ISBN)
Public defence
2017-09-08, Sal IX, Gamla universitetshuset, Biskopsgatan 3, 753 10 Uppsala, Uppsala, 09:00 (English)
Opponent
Supervisors
Funder
Swedish Childhood Cancer Foundation, FTJH11/002 och PR2013/0058Swedish Cancer Society, CAN2013/749
Available from: 2017-08-18 Created: 2017-05-22 Last updated: 2018-02-28
Thorsell Cederberg, J., Dahl, J., von Essen, L. & Ljungman, G. (2017). An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study. Journal of Pain Research, 10, 2195-2203
Open this publication in new window or tab >>An acceptance-based intervention for children and adolescents with cancer experiencing acute pain - a single-subject study
2017 (English)In: Journal of Pain Research, ISSN 1178-7090, E-ISSN 1178-7090, Vol. 10, p. 2195-2203Article in journal (Refereed) Published
Abstract [en]

Background: Children and adolescents with cancer report pain as one of their most recurrent and troublesome symptoms throughout the cancer trajectory. Pain evokes psychological distress, which in turn has an amplifying effect on the pain experience. Acceptance-based interventions for experimentally induced acute pain predict increased pain tolerance, decreased pain intensity and decreased discomfort of pain. The aim of this study was to preliminarily evaluate an acceptance-based intervention for children and adolescents with cancer experiencing acute pain, with regard to feasibility and effect on pain intensity and discomfort of pain. Methods: This is a single-subject study with an AB design with a nonconcurrent multiple baseline. Children and adolescents aged four to 18 years undergoing cancer treatment at the Children's University Hospital, Uppsala, Sweden, reporting sustained acute pain were offered participation. Pain intensity and discomfort of pain were measured during baseline and at post-intervention. The intervention consisted of a pain exposure exercise lasting approximately 15 minutes. Results: Five children participated in the study. All participants completed the intervention and reported that it had helped them to cope with the pain in the moment. All participants reported decreased discomfort of pain at post-measurement, three of whom also reported decreased pain intensity. Conclusion: The results suggest that an acceptance-based intervention may help children and adolescents with cancer to cope with the pain that is often associated with cancer treatment in spite of pharmacological pain management. The results are tentative but promising and warrant further investigation.

Keywords
acute pain, acceptance, pain intensity, discomfort of pain
National Category
Cancer and Oncology Pediatrics
Identifiers
urn:nbn:se:uu:diva-335543 (URN)10.2147/JPR.S139087 (DOI)000409405400001 ()28919815 (PubMedID)
Funder
Swedish Childhood Cancer Foundation, FTJH11/002, PR2013/0058Swedish Cancer Society, CAN2013/749
Available from: 2017-12-06 Created: 2017-12-06 Last updated: 2018-02-28Bibliographically approved
Thorsell Cederberg, J., Weineland Strandskov, S., Dahl, J. & Ljungman, G. (2017). Children’s and adolescents’ relationship to pain during cancer treatment: a preliminary validation of the Pain Flexibility Scale for Children. Journal of Pain Research, 10, 1171-1178
Open this publication in new window or tab >>Children’s and adolescents’ relationship to pain during cancer treatment: a preliminary validation of the Pain Flexibility Scale for Children
2017 (English)In: Journal of Pain Research, ISSN 1178-7090, E-ISSN 1178-7090, Vol. 10, p. 1171-1178Article in journal (Refereed) Published
Abstract [en]

Objectives: Children with cancer often suffer from pain. Pain is associated with psychological distress, which may amplify the pain experience. In chronic pain, it has been shown that psychological acceptance is helpful for both adults and children. For experimentally induced pain, interventions fostering psychological acceptance have been shown to predict increases in pain tolerance and reductions in pain intensity and discomfort of pain. A single subject study aiming to nurture psychological acceptance for children with cancer experiencing pain has shown promising results. No instruments measuring psychological acceptance in acute pain are yet available. The aim of the current study was to develop and preliminarily evaluate an instrument to measure psychological acceptance in children experiencing pain during cancer treatment.

Methods: A test version of the Pain Flexibility Scale for Children was sent to all children aged 7–18 years undergoing cancer treatment in Sweden at the time of the study. Exploratory factor analysis was used. Internal consistency, test–retest reliability, and convergent validity were examined.

Results: Sixty-one children participated in the study. A two-factor solution with Promax rotation was found to best represent the data. Internal consistency was good to excellent (a =0.87–0.91). The total scale and the subscales demonstrated temporal stability (Intraclass correlation coefficient =0.56–0.61) and satisfactory convergent validity (r=−0.27 to −0.68).

Discussion: The Pain Flexibility Scale for Children measuring psychological acceptance in children with cancer experiencing pain is now available for use. This enables the evaluation of acceptance as a mediator for treatment change in the context of acute pain in children with cancer, which in turn is a step forward in the development of psychological treatments to help children cope with the pain during these difficult circumstances. The scale shows good psychometric properties but needs further validation, particularly considering the small sample size.

Place, publisher, year, edition, pages
Dove Medical Press, 2017
Keywords
Acute pain, children, acceptance, psychological flexibility, factor analysis, Akut smärta, barn och ungdomar, acceptans, psykologisk flexibilitet, faktoranalys
National Category
Applied Psychology Medical and Health Sciences
Research subject
Psychology
Identifiers
urn:nbn:se:uu:diva-322391 (URN)10.2147/JPR.S137871 (DOI)000401610300001 ()
Funder
Swedish Childhood Cancer Foundation, FTJH11/002 och PR2013/0058Swedish Cancer Society, CAN2013/749
Available from: 2017-05-22 Created: 2017-05-22 Last updated: 2018-02-20Bibliographically approved
Thorsell Cederberg, J., Weineland Strandskov, S., Dahl, J. & Ljungman, G. (2017). Parents’ relationship to pain during children's cancer treatment – a preliminary validation of the Pain Flexibility Scale for Parents. Journal of Pain Research, 10, 507-514
Open this publication in new window or tab >>Parents’ relationship to pain during children's cancer treatment – a preliminary validation of the Pain Flexibility Scale for Parents
2017 (English)In: Journal of Pain Research, ISSN 1178-7090, E-ISSN 1178-7090, Vol. 10, p. 507-514Article in journal (Refereed) Published
Abstract [en]

Objectives: Pain is one of the most frequent and burdensome symptoms for children with cancer. Psychological acceptance has been shown to be beneficial in chronic pain. Acceptance-based interventions for experimentally induced pain have been shown to predict increased pain tolerance and decreased pain intensity. An acceptance-based pilot study for children with cancer experiencing pain has shown promising results. Further, parental acceptance has been shown to predict decreased child distress. To date, no instruments measuring acceptance in the context of acute pain in children are available. The aim of this study was to develop and evaluate an instrument to measure acceptance in parents of children experiencing pain during cancer treatment. Methods: A test version of the Pain Flexibility Scale for Parents (PFS-P) was sent to parents of all children undergoing cancer treatment in Sweden at the time of the study. Exploratory factor analysis (n=243) examined numerous solutions. Internal consistency, test-retest reliability and convergent validity were calculated. Results: A three-factor Promax solution best represented the data. The subscales were pain resistance, valued action and pain fusion. Internal consistency was good (alpha=0.81-0.93), and the total scale and the subscales demonstrated temporal stability (r=0.76-0.87) and good convergent validity (-0.40 to -0.84). Discussion: The PFS-P measuring acceptance in parents of children experiencing pain during cancer treatment is now available, enabling evaluation of acceptance in the context of acute pain in children. The scale shows good psychometric properties but needs further validation.

Place, publisher, year, edition, pages
Dovepress, 2017
Keywords
acute pain, children, parents, acceptance, psychological flexibility, factor analysis
National Category
Psychology Neurology
Identifiers
urn:nbn:se:uu:diva-316716 (URN)10.2147/JPR.S127019 (DOI)000396320600001 ()
Funder
Swedish Childhood Cancer Foundation, PR2013-0058Swedish Cancer Society, CAN2013/749
Available from: 2017-03-06 Created: 2017-03-06 Last updated: 2018-02-20Bibliographically approved
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