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Ternby, Ellen
Publications (4 of 4) Show all publications
Ternby, E., Axelsson, O., Annerén, G., Lindgren, P. & Ingvoldstad, C. (2016). Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?. Journal of community genetics, 7(3), 237-242
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2016 (English)In: Journal of community genetics, ISSN 1868-310X, Vol. 7, no 3, p. 237-242Article in journal (Refereed) Published
Abstract [en]

To investigate if actual knowledge of Down syndrome (DS), influences the decision to accept or decline prenatal diagnosis (PND). Secondary aims were to elucidate reasons for accepting or declining PND and investigate differences between the accepting and declining group in perceived information, knowing someone with DS and thoughts about decision-making. A questionnaire was completed by 76 pregnant women who underwent invasive testing and 65 women who declined tests for chromosomal aberrations in Uppsala, Sweden. Apart from one question no significant differences were found in knowledge of DS between women declining or accepting PND for DS. Both groups had varying and in several respects low levels of knowledge about DS and its consequences. Most common reasons to accept PND were 'to ease my worries' and 'to do all possible tests to make sure the baby is healthy'. Corresponding statements declining PND were 'termination of pregnancy is not an option' and 'because invasive tests increase the risk of miscarriage'. More women declining PND knew someone with DS. Knowledge of DS at these levels is not a major factor when women decide to accept or decline PND for DS. Their choice is mostly based on opinions and moral values.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-300828 (URN)10.1007/s12687-016-0272-6 (DOI)000386778700007 ()27438596 (PubMedID)
Available from: 2016-08-15 Created: 2016-08-15 Last updated: 2016-12-07Bibliographically approved
Ternby, E., Ingvoldstad, C., Annerén, G., Lindgren, P. & Axelsson, O. (2015). Information and knowledge about Down syndrome among women and partners after first trimester combined testing. Acta Obstetricia et Gynecologica Scandinavica, 94(3), 329-32
Open this publication in new window or tab >>Information and knowledge about Down syndrome among women and partners after first trimester combined testing
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2015 (English)In: Acta Obstetricia et Gynecologica Scandinavica, ISSN 0001-6349, E-ISSN 1600-0412, Vol. 94, no 3, p. 329-32Article in journal (Refereed) Published
Abstract [en]

We assessed reasons among women and partners for choosing combined ultrasound-biochemistry testing, information and knowledge about Down syndrome and decisions concerning invasive procedures and termination of pregnancy in a prospective cohort study in Uppsala County. In all 105 pregnant women and 104 partners coming for a combined ultrasound-biochemistry test answered a questionnaire. The most common reason for a combined ultrasound-biochemistry test was "to perform all tests possible to make sure the baby is healthy". Internet and midwives were the most common sources of information. Seventy-two percent had not received information on what it means to live with a child with Down syndrome. Many expectant parents perceived information as insufficient. Both women and partners had varying or low levels of knowledge about medical, cognitive and social consequences of Down syndrome. Twenty-five percent had not decided on an invasive test if indicated and only 42% would consider termination of pregnancy with a Down syndrome diagnosis.

National Category
Obstetrics, Gynecology and Reproductive Medicine
Identifiers
urn:nbn:se:uu:diva-245332 (URN)10.1111/aogs.12560 (DOI)000349603600016 ()25582972 (PubMedID)
Available from: 2015-02-26 Created: 2015-02-26 Last updated: 2017-12-04Bibliographically approved
Ternby, E., Ingvoldstad, C., Annerén, G. & Axelsson, O. (2015). Midwives and information on prenatal testing with focus on Down syndrome. Prenatal Diagnosis, 35(12), 1202-1207
Open this publication in new window or tab >>Midwives and information on prenatal testing with focus on Down syndrome
2015 (English)In: Prenatal Diagnosis, ISSN 0197-3851, E-ISSN 1097-0223, Vol. 35, no 12, p. 1202-1207Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: To investigate midwives' knowledge of prenatal diagnosis especially Down syndrome, information given by midwives to parents, expectant parents' requests for information and how midwives perceive their own competence to give information.

METHOD: A cross-sectional, prospective study with a questionnaire was completed by 64 out of 70 midwives working in the outpatient antenatal care in Uppsala County, Sweden.

RESULTS: The midwives had varying and in some areas low levels of knowledge about Down syndrome. Information about Down syndrome was most often given only when asked for or when there was an increased probability of a Down syndrome pregnancy. The most common questions from expectant parents concerned test methods and risk assessments while questions regarding symptoms of Down syndrome and consequences of having a child with Down syndrome were uncommon. The majority (83-89%) had insufficient or no education regarding different prenatal tests. Only 2 midwives (3%) had received education about Down syndrome and 10% felt they had sufficient knowledge to inform about the syndrome. More education about prenatal tests and Down syndrome was desired by 94%.

CONCLUSION: It is important to ensure that midwives in antenatal care have sufficient knowledge to inform expectant parents about the conditions screened for.

National Category
Obstetrics, Gynecology and Reproductive Medicine Medical Genetics
Identifiers
urn:nbn:se:uu:diva-268688 (URN)10.1002/pd.4676 (DOI)000368442000007 ()26279318 (PubMedID)
Available from: 2015-12-09 Created: 2015-12-09 Last updated: 2018-01-10Bibliographically approved
Ternby, E., Annerén, G., Ingvoldstad, C., Lindgren, P. & Axelsson, O. (2012). What do pregnant women know about Downs syndrome when they come for prenatal diagnosis?. In: : . Paper presented at 38:e NFOG-kongressen i Bergen. (pp. 134-134). , 91
Open this publication in new window or tab >>What do pregnant women know about Downs syndrome when they come for prenatal diagnosis?
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2012 (English)Conference paper, Oral presentation only (Other academic)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-177444 (URN)000304987600232 ()
Conference
38:e NFOG-kongressen i Bergen.
Available from: 2012-12-13 Created: 2012-07-13 Last updated: 2015-12-11Bibliographically approved
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