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Ander, Malin
Publications (10 of 13) Show all publications
Ander, M., Thorsell Cederberg, J., von Essen, L. & Hovén, E. (2018). Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support. PLoS ONE, 13(4), Article ID e0195899.
Open this publication in new window or tab >>Exploration of psychological distress experienced by survivors of adolescent cancer reporting a need for psychological support
2018 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 13, no 4, article id e0195899Article in journal (Refereed) Published
Abstract [en]

Objective

In this qualitative study, we aimed to provide an in-depth exploration of cancer-related psychological distress experienced by young survivors of cancer during adolescence reporting a need for psychological support.

Methods

Two individual interviews were held with ten young survivors of cancer diagnosed in adolescence. The interviews were audio-recorded and transcribed verbatim. Analysis followed the guidelines for inductive qualitative manifest content analysis.

Results

The survivors described distress experienced during and after the end of treatment. Five categories comprising 14 subcategories were generated. The categories included: A tough treatment, Marked and hindered, Not feeling good enough, Struggling with the fragility of life, and finally, An ongoing battle with emotions.

Conclusion

Young survivors of adolescent cancer reporting a need for psychological support described feeling physically, socially, and mentally marked by the cancer experience. They struggled with powerlessness, insecurity, social disconnection, loneliness, and feelings of being unimportant and a failure, and had difficulties understanding and managing their experiences. These concerns should be addressed in psychological treatments for the population irrespective of which approach or model is used to understand survivors’ difficulties. A transdiagnostic approach targeting processes that underpin different manifestations of distress may be effective.

Keywords
adolescence, cancer, psychological distress, psychological treatment, survivorship, qualitative methods
National Category
Psychology Cancer and Oncology
Research subject
Medical Science; Psychology
Identifiers
urn:nbn:se:uu:diva-330127 (URN)10.1371/journal.pone.0195899 (DOI)000430262300041 ()29664926 (PubMedID)
Funder
U‐Care: Better Psychosocial Care at Lower Cost? Evidence-based assessment and Psychosocial Care via Internet, a Swedish ExampleSwedish Childhood Cancer Foundation, 2013-0039; 2016-0004Swedish Research Council
Available from: 2017-10-31 Created: 2017-10-31 Last updated: 2018-06-26Bibliographically approved
Wiman, H., Ander, M., Woodford, J., Hasselblad, T., Grönqvist, H., Ljungman, G., . . . von Essen, L. (2018). Guided Internet-Administered Self-Help to Reduce Symptoms of Anxiety and Depression Among Adolescents and Young Adults Diagnosed with Cancer During Adolescence: Lessons Learned. Paper presented at 50th congress of the International Society of Paediatric Oncology (SIOP), November 16-19, 2018, Kyoto, Japan.. Pediatric Blood & Cancer, 65(suppl.2), S597-S597
Open this publication in new window or tab >>Guided Internet-Administered Self-Help to Reduce Symptoms of Anxiety and Depression Among Adolescents and Young Adults Diagnosed with Cancer During Adolescence: Lessons Learned
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2018 (English)In: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 65, no suppl.2, p. S597-S597Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
WILEY, 2018
National Category
Cancer and Oncology Hematology Pediatrics
Identifiers
urn:nbn:se:uu:diva-365107 (URN)000445195005115 ()
Conference
50th congress of the International Society of Paediatric Oncology (SIOP), November 16-19, 2018, Kyoto, Japan.
Available from: 2018-11-16 Created: 2018-11-16 Last updated: 2018-11-16Bibliographically approved
Ander, M., Wikman, A., Ljótsson, B., Grönqvist, H., Ljungman, G., Woodford, J., . . . von Essen, L. (2017). Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan): study protocol for a feasibility trial. BMJ Open, 7(1), Article ID e013906.
Open this publication in new window or tab >>Guided Internet-Administered Self-Help to Reduce Symptoms Of Anxiety and Depression Among Adolescents and Young Adults Diagnosed With Cancer During Adolescence (U-CARE: YoungCan): study protocol for a feasibility trial
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2017 (English)In: BMJ Open, ISSN 2044-6055, E-ISSN 2044-6055, Vol. 7, no 1, article id e013906Article in journal (Refereed) Published
Abstract [en]

Introduction A subgroup of adolescents and young adults diagnosed with cancer during adolescence reports elevated levels of anxiety and depressive symptoms and unmet needs for psychological support. Evidence-based psychological treatments tailored for this population are lacking. This protocol describes a feasibility study of a guided-internet-administered self-help programme (YoungCan) primarily targeting symptoms of anxiety and depression among young persons diagnosed with cancer during adolescence and of the planned study procedures for a future controlled trial. Methods/analysis The study is an uncontrolled feasibility trial with a pre-post and 3-month follow-up design. Potential participants aged 15-25years, diagnosed with cancer during adolescence, will be identified via the Swedish Childhood Cancer Registry. 30 participants will be included. Participants will receive YoungCan, a 12-week therapist-guided, internet-administered self-help programme consisting primarily of cognitive-behavioural therapy organised into individually assigned modules targeting depressive symptoms, worry and anxiety, body dissatisfaction and post-traumatic stress. Interactive peer support and psychoeducative functions are also available. Feasibility outcomes include: recruitment and eligibility criteria; data collection; attrition; resources needed to complete the study and programme; safety procedures; participants' and therapists' adherence to the programme; and participants' acceptability of the programme and study methodology. Additionally, mechanisms of impact will be explored and data regarding symptoms of anxiety, depression, post-traumatic stress, body dissatisfaction, reactions to social interactions, quality of life, axis I diagnoses according to the Mini International Neuropsychiatric Interview and healthcare service use will be collected. Exploratory analyses of changes in targeted outcomes will be conducted. Ethics/dissemination This feasibility protocol was approved by the Regional Ethical Review Board in Uppsala, Sweden (ref: 2016/210). Findings will be disseminated to relevant research, clinical, health service and patient communities through publications in peer-reviewed and popular science journals and presentations at scientific and clinical conferences.

Keywords
adolescence, cognitive behavioural therapy, feasibility study, neoplasms, psychological treatment
National Category
Psychology Cancer and Oncology
Identifiers
urn:nbn:se:uu:diva-313898 (URN)10.1136/bmjopen-2016-013906 (DOI)000395590300138 ()
Funder
Swedish Childhood Cancer Foundation, PR2013-0039
Available from: 2017-01-25 Created: 2017-01-25 Last updated: 2017-12-19Bibliographically approved
Ander, M., Grönqvist, H., Cernvall, M., Engvall, G., Hedström, M., Ljungman, G., . . . von Essen, L. (2016). Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study. Psycho-Oncology, 25(5), 582-589
Open this publication in new window or tab >>Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study
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2016 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 25, no 5, p. 582-589Article in journal (Refereed) Published
Abstract [en]

Objective: The main aim was to investigate the development of health-related quality of life (HRQOL) and symptoms of anxiety and depression in a cohort diagnosed with cancer during adolescence from shortly after up to 10 years after diagnosis.

Methods: Participants (n = 61) completed the SF-36 and the HADS shortly; six, 12, and 18 months; and two, three, four, and 10 years (n = 28) after diagnosis. Polynomial change trajectories were used to model development.

Results: Polynomial change trajectories showed an initial increase which abated over time into a decrease which abated over time for the SF-36 subscales Mental Health and Vitality; an initial decline which abated over time into an increase for HADS anxiety; and an initial decline which abated over time into an increase which abated over time for HADS depression. The SF-36 mental component summary showed no change from two to 10 years after diagnosis whereas the SF-36 physical component summary showed an increase from two years after diagnosis which declined over time. Ten years after diagnosis 29% reported possible anxiety.

Conclusions: Development of HRQOL and symptoms of anxiety and depression appears to be nonlinear among persons diagnosed with cancer during adolescence. Well into permanent survivorship an increase in symptoms of anxiety is shown and approximately a third of the participants report possible anxiety. The findings indicate the need for: studies designed to pinpoint the times of highest psychological risk, clinical follow-up focusing on psychological problems, and development of effective psychological interventions for survivors of adolescent cancer

National Category
Cancer and Oncology Psychology (excluding Applied Psychology)
Identifiers
urn:nbn:se:uu:diva-262514 (URN)10.1002/pon.3965 (DOI)000374494700014 ()26361085 (PubMedID)
External cooperation:
Funder
Swedish Cancer Society, 99 0347 01 0235 02 0690 03 0227 05 0189 10 0649 11 0649 12 0649Swedish Childhood Cancer Foundation, 1999/021 02/002 04/011 07/044 10/086
Available from: 2015-09-16 Created: 2015-09-16 Last updated: 2017-12-04Bibliographically approved
Ljungman, L., Boger, M., Ander, M., Ljótsson, B., Cernvall, M., von Essen, L. & Hovén, E. (2016). Impressions that last: Particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death. PLoS ONE, 11(6), Article ID e0157076.
Open this publication in new window or tab >>Impressions that last: Particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death
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2016 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 11, no 6, article id e0157076Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: To describe the experience of parenting a child diagnosed with cancer by examining particularly negative and positive experiences reported by parents of childhood cancer survivors and parents of children lost to cancer.

METHODS: 168 parents (88 mothers, 80 fathers) participated. Data were collected five years after the end of successful treatment or the child's death. The parents' experiences were identified by open-ended semi-structured questions about particularly negative and positive experiences of the child's cancer. An inductive approach was used in which the manifest verbal content of the answers was analysed using content analysis.

RESULTS: The analysis revealed eight categories of negative experience (child late effects; distressing events; healthcare; impaired relationships; long-term psychological consequences; own reactions; surrounding institutions; the fact that the child got cancer) and seven categories of positive experience (healthcare; improved relationships; long-term consequences for the child; personal development; support systems; treatment outcome; unexpected joy). The categories were related to past events or to the present situation. The findings indicate variations in experiences between parents of survivors and bereaved parents, and between fathers and mothers, as some experiences were only reported by parents of survivors and some experiences were only reported by mothers.

CONCLUSIONS: The results highlight the importance of past and present events to parents, and accordingly the long-lasting impact of paediatric cancer on parents. The results also point to the wide range of negative as well as positive experiences involved in parenting a child diagnosed with cancer, and provide a comprehensive understanding of the overall experience for parents of children with cancer. Specifically, the findings give guidance to healthcare providers by illustrating the need to provide healthcare personnel with continuous training in communication skills, offering parents opportunities to meet other parents in the same situation and increasing the access to psychosocial supportive services and psychological care.

National Category
Applied Psychology
Identifiers
urn:nbn:se:uu:diva-296022 (URN)10.1371/journal.pone.0157076 (DOI)000377561000061 ()27272318 (PubMedID)
Funder
Swedish Research Council, K2008-70X-20836-01- 3 K2011-70X-20836-04-4Swedish Cancer Society, 2007/1015 2010/726Swedish Childhood Cancer Foundation, PROJ08/010
Available from: 2016-06-13 Created: 2016-06-13 Last updated: 2017-11-28Bibliographically approved
Ander, M., Thorsell Cederberg, J., Lindahl Norberg, A. & von Essen, L. (2016). Losing your context - Exploration of emotional suffering after cancer during adolescence. In: : . Paper presented at 18th International Psycho Oncology Society Congress (pp. 81-81). , 25(SP. S3)
Open this publication in new window or tab >>Losing your context - Exploration of emotional suffering after cancer during adolescence
2016 (English)Conference paper, Poster (with or without abstract) (Refereed)
Series
Psycho Oncology, ISSN 1057-9249, E-ISSN 1099-1611 ; 3
National Category
Cancer and Oncology Psychology
Identifiers
urn:nbn:se:uu:diva-309578 (URN)000385942700180 ()
Conference
18th International Psycho Oncology Society Congress
Note

Meeting Abstract: 244

Available from: 2016-12-14 Created: 2016-12-05 Last updated: 2017-03-23Bibliographically approved
Ander, M., Norberg, A. L., Ljungman, G., Ljotsson, B. & von Essen, L. (2015). Identification of Cancer-related Psychological Suffering Experienced by Young People Diagnosed with Cancer During Adolescence and Development of a Psychological Treatment to Reduce This Suffering. In: : . Paper presented at 2015 World Congress of Psycho-Oncology (a joint conference of the International Psycho-Oncology Society and the American Psychosocial Oncology Society) 28 July – 1 August 2015 Washington, DC, USA (pp. 114-115). , 24(S2), Article ID P1-21.
Open this publication in new window or tab >>Identification of Cancer-related Psychological Suffering Experienced by Young People Diagnosed with Cancer During Adolescence and Development of a Psychological Treatment to Reduce This Suffering
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2015 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Cancer and Oncology
Identifiers
urn:nbn:se:uu:diva-261131 (URN)000358255000202 ()
Conference
2015 World Congress of Psycho-Oncology (a joint conference of the International Psycho-Oncology Society and the American Psychosocial Oncology Society) 28 July – 1 August 2015 Washington, DC, USA
Available from: 2015-09-01 Created: 2015-08-31 Last updated: 2016-04-18
Lehmann, V., Grönqvist, H., Engvall, G., Ander, M., Tuinman, M. A., Hagedoorn, M., . . . von Essen, L. (2014). Cancer During Adolescence: Positive and Negative Consequences Experienced by Survivors 10 Years After Diagnosis. In: : . Paper presented at APOS 11th Annual Conference, 13 - 15 February 2014, Tampa FL (pp. 55-56). , 23
Open this publication in new window or tab >>Cancer During Adolescence: Positive and Negative Consequences Experienced by Survivors 10 Years After Diagnosis
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2014 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-222356 (URN)000331088700098 ()
Conference
APOS 11th Annual Conference, 13 - 15 February 2014, Tampa FL
Available from: 2014-04-10 Created: 2014-04-10 Last updated: 2016-04-19Bibliographically approved
Lehmann, V., Grönqvist, H., Engvall, G., Ander, M., Tuinman, M. A., Hagedoorn, M., . . . von Essen, L. (2014). Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden. Psycho-Oncology, 23(11), 1229-1235
Open this publication in new window or tab >>Negative and positive consequences of adolescent cancer 10 years after diagnosis: an interview-based longitudinal study in Sweden
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2014 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 23, no 11, p. 1229-1235Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE:

The aim of this study was to provide insight into survivor-reported negative and positive consequences of cancer during adolescence 10 years after diagnosis and compare these with consequences reported 3 and 4 years after diagnosis.

METHODS:

Three, 4, and 10 years after diagnosis, survivors of adolescent cancer were interviewed about negative and positive consequences due to their cancer experience. Manifest content analysis was used to identify categories of reported consequences. Categories of consequences 10 years after diagnosis were compared with consequences reported 3 and 4 years after diagnosis.

RESULTS:

Seven categories of negative consequences were identified: bodily concerns, existential thoughts about loss and life (new at 10 years), psychological problems, difficulties interacting with others, health worries (new), fertility concerns (new), and frustrations about health care (new); and six categories of positive consequences: positive view of life, positive view of self, compassion for others (new), close relationships, gained knowledge about disease and health care, and financial gains. Consistent with previous time points, bodily concerns were reported most often. The majority of survivors (n = 22) reported both negative and positive consequences of their former disease. Few reported only negative (n = 2) or only positive consequences (n = 4).

CONCLUSIONS:

Ten years after diagnosis, most survivors reported both negative and positive consequences. New themes, relevant to young adulthood and long-term survival, were identified. Health care professionals treating young adult survivors may anticipate and address problems regarding physical health, fertility, and health care but may also reinforce positive affect by addressing survivors' positive views of life, sense of self, and close relationships.

National Category
Cancer and Oncology
Identifiers
urn:nbn:se:uu:diva-238713 (URN)10.1002/pon.3549 (DOI)000344242500004 ()24737637 (PubMedID)
Note

De två första författarna delar förstaförfattarskapet.

Available from: 2014-12-15 Created: 2014-12-15 Last updated: 2017-12-05Bibliographically approved
Olsson, E., Alfonsson, S., Ander, M., Brantnell, A., Burell, G., Grönqvist, H., . . . von Essen, L. (2013). U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease. In: : . Paper presented at The International Society for Research on Internet Interventions (ISRII)6th scientific meeting, Chicago, IL, May 16-18.
Open this publication in new window or tab >>U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease
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2013 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Applied Psychology
Identifiers
urn:nbn:se:uu:diva-220945 (URN)
Conference
The International Society for Research on Internet Interventions (ISRII)6th scientific meeting, Chicago, IL, May 16-18
Available from: 2014-03-24 Created: 2014-03-24 Last updated: 2016-04-14
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