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Toft, Teolinda
Publications (5 of 5) Show all publications
Hagström, A. S. & Toft, T. (2019). "TOGETHER WE ARE UNBEATABLE": young sisters' narration of a sibling's cancer in personal blogs on the internet. International Journal of Qualitative Studies on Health and Well-being, 14(1), Article ID 1586625.
Open this publication in new window or tab >>"TOGETHER WE ARE UNBEATABLE": young sisters' narration of a sibling's cancer in personal blogs on the internet
2019 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 14, no 1, article id 1586625Article in journal (Refereed) Published
Abstract [en]

Purpose: Siblings of children and young people diagnosed with cancer are commonly reluctant to talk about their experiences due to the circumstances of the illness situation. This article aims to bring voice to experience and inform practice by investigating what and how three young sisters narrate about their illness experiences in personal blogs on the Internet.

Methods: A narrative methodology for the analysis of life storytelling was applied primarily to investigate the sister's coping strategies and support needs.

Results: The results show how the sisters constructed their own space for narration, with the main aims of expressing their feelings about the illness and seeking social support. The telling of their experiences along with encouraging comments from a supportive audience enabled a change in position from feeling neglected and silenced to being a recognized agent and caring sister. In addition, through their narrative coping the sisters went from powerless to powerful in their position in relation to cancer.

Conclusion: The results highlight the need for siblings to be able to narrate experience in a supportive context, where the processing of their relationship with the ill sister/brother should be understood as an important element of their coping with cancer and death.

Place, publisher, year, edition, pages
TAYLOR & FRANCIS LTD, 2019
Keywords
Blog, coping, grief, identity, internet, sibling's cancer, sisters narration, stigmatization, trauma, youth
National Category
Other Medical Sciences not elsewhere specified
Identifiers
urn:nbn:se:uu:diva-381928 (URN)10.1080/17482631.2019.1586625 (DOI)000462481200001 ()30915907 (PubMedID)
Funder
Swedish Childhood Cancer Foundation, PR2013-0003Swedish Childhood Cancer Foundation, PR2014-0004
Available from: 2019-04-18 Created: 2019-04-18 Last updated: 2019-04-18Bibliographically approved
Olsson, E., Alfonsson, S., Ander, M., Brantnell, A., Burell, G., Grönqvist, H., . . . von Essen, L. (2013). U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease. In: : . Paper presented at The International Society for Research on Internet Interventions (ISRII)6th scientific meeting, Chicago, IL, May 16-18.
Open this publication in new window or tab >>U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease
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2013 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Applied Psychology
Identifiers
urn:nbn:se:uu:diva-220945 (URN)
Conference
The International Society for Research on Internet Interventions (ISRII)6th scientific meeting, Chicago, IL, May 16-18
Available from: 2014-03-24 Created: 2014-03-24 Last updated: 2016-04-14
Grönqvist, H., Ander, M., Lindahl Norberg, A., Toft, T. & von Essen, L. (2013). U-CARE: Adolescent involvement in psychosocial research including the design of an internet based psychological intervention. In: : . Paper presented at New Developments in Public Involvement in Research, Exeter, UK.
Open this publication in new window or tab >>U-CARE: Adolescent involvement in psychosocial research including the design of an internet based psychological intervention
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2013 (English)Conference paper, Published paper (Refereed)
National Category
Psychology (excluding Applied Psychology)
Identifiers
urn:nbn:se:uu:diva-222479 (URN)
Conference
New Developments in Public Involvement in Research, Exeter, UK
Available from: 2014-04-11 Created: 2014-04-11 Last updated: 2016-04-14
Ander, M., von Essen, L., Ljungman, G., Mattsson, E., Toft, T. & Norberg, A. L. (2013). U-CARE: YoungCan-Development of an Internet-Based Self-Help Program of Psychosocial Support and Psychological Treatment. In: : . Paper presented at IPOS 15th World Congress of Psycho-Oncology, 4–8 November 2013, Rotterdam, The Netherlands (pp. 244-244). , 22(SI3)
Open this publication in new window or tab >>U-CARE: YoungCan-Development of an Internet-Based Self-Help Program of Psychosocial Support and Psychological Treatment
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2013 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-210933 (URN)000325687200378 ()
Conference
IPOS 15th World Congress of Psycho-Oncology, 4–8 November 2013, Rotterdam, The Netherlands
Available from: 2013-11-19 Created: 2013-11-18 Last updated: 2016-04-18
Olsson, E., Alfonsson, S., Ander, M., Burell, G., Grönqvist, H., Held, C., . . . von Essen, L. (2012). U-CARE: a research program on psychosocial care via the internet. In: : . Paper presented at International Society for Behavioral Medicine (ISBM), 12th international Congress of Behavioral Medicine,Behavioural Medicine: From Basic Science to Clinical Investigation and Public Health." August 29-September 1, 2012, Budapest, Hungary.
Open this publication in new window or tab >>U-CARE: a research program on psychosocial care via the internet
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2012 (English)Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

U-CARE is one of the Swedish government’s strategic research programs atUppsala University. The overarching goal is to promote psychosocial healthamong patients suffering from somatic disease and their significant others by means of self-help programs delivered via an internet platform. Another goal is to reduce costs for individuals and the society caused by emotional distress in response to somatic disease. Professionals within clinical psychology, health economics, and information systems collaborate to reach this goal.

Approximately 20% of patients suffering from somatic disease as well as theirsignificant others experience a clinically relevant level of emotional distress in response to disease and treatment. This is in itself alerting, but becomes even moreproblematic since physicians and nurses show low sensitivity and specificityin detecting patients and significant others experiencing a clinically relevant level of distress. This can result in persistent distress causing human suffering as well as costs for individuals and the society.

During 2010-2011 an internet platform: www.u-care.se to provide interactive support and cognitive behavioral therapy has been constructed within the U-CARE program. The platform supports, among other things, rule-based unfolding of self-help material for participants, interaction between participants and therapists, interaction within a participant community, and research including a detailed log of participants’ behaviors on the platform. In addition self-help programs of interactive support and cognitive behavioural therapy for adolescents with cancer: U-CARE: TeenCan, adults with cancer: U-CARE: AdultsCan, and adults having had a myocardial infarct: U-CARE: Heart to be provided via www.u-care.se have been constructed.

Through a multi-disciplinary and design-oriented approach, the U-CARE program aims at developing new evidence-based knowledge in basic and applied psychosocial health care,and actively promoting its implementation in health care practice as well as in undergraduate and advanced education.

National Category
Applied Psychology
Identifiers
urn:nbn:se:uu:diva-188375 (URN)
Conference
International Society for Behavioral Medicine (ISBM), 12th international Congress of Behavioral Medicine,Behavioural Medicine: From Basic Science to Clinical Investigation and Public Health." August 29-September 1, 2012, Budapest, Hungary
Projects
U-CARE
Available from: 2012-12-17 Created: 2012-12-17 Last updated: 2014-02-21Bibliographically approved
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