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Hellström Muhli, UllaORCID iD iconorcid.org/0000-0002-3870-6426
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Publications (10 of 47) Show all publications
Hellström Muhli, U. & Mannerheim Blomgren, A. (2017). Parents’ experiences of caring responsibility for  their adult child with schizophrenia. In: Nationellt kompetenscentrum anhöriga - för ett anhörigvänligt samhälle (Ed.), ”Every Child has the Right to …”2nd International Young Carers Conference29 – 31 May 2017: Health and Social Care systems. Paper presented at The 2nd International Young Carers Conference The Swedish Family Care Competence Centre (SFCCC) 29-31 Maj, Malmö, Sweden.. Malmö
Open this publication in new window or tab >>Parents’ experiences of caring responsibility for  their adult child with schizophrenia
2017 (English)In: ”Every Child has the Right to …”2nd International Young Carers Conference29 – 31 May 2017: Health and Social Care systems / [ed] Nationellt kompetenscentrum anhöriga - för ett anhörigvänligt samhälle, Malmö, 2017Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

As a consequence of the latest psychiatry-related reform in Sweden and its implementation, related parties and family members have taken over from the healthcare system a large responsibility for the care of persons with a mental disability and illness. The aim of this study was to systematically analyze and describe the experiences of parents’ care responsibility. The questions were: what are the experiences around the parents informal care activities and responsibilities, how do parents construct and manage their caring responsibility and with what consequences? Semi-structured in-depth interviews were conducted (16 h data recorded material) with eight parents who were all members of the Interest Group for Schizophrenia [

Intresseföreningen för schizophrenic (IFS)] in Sweden. A deductive hermeneutic method was used for the interpretation of the data material. The parents endow their informal caring responsibility with meaning of being a good parent, responsible and accountable within the context of their personal and social relationships as well as to the psychiatric care representatives. In this tense situation parents’ compromise between elements of struggle, cooperation, avoidance and adaption in their interaction with the world outside as well as the world inside.

Place, publisher, year, edition, pages
Malmö: , 2017
Keywords
Interaction, parents, informal care responsibility, mentally ill family member, psychiatric care.
National Category
Sociology
Research subject
Health Care Research
Identifiers
urn:nbn:se:uu:diva-337619 (URN)
Conference
The 2nd International Young Carers Conference The Swedish Family Care Competence Centre (SFCCC) 29-31 Maj, Malmö, Sweden.
Available from: 2018-01-03 Created: 2018-01-03 Last updated: 2018-02-22Bibliographically approved
Hellström Muhli, U. & Svensson, A.-M. (2017). Well-being in old age: A question of both continuity and change. In: Mukadder Mollaoğlu (Ed.), Well-being and Quality of Life: Medical Perspective (pp. 147-162). Rijeka, Croatia: InTechOpen
Open this publication in new window or tab >>Well-being in old age: A question of both continuity and change
2017 (English)In: Well-being and Quality of Life: Medical Perspective / [ed] Mukadder Mollaoğlu, Rijeka, Croatia: InTechOpen , 2017, p. 147-162Chapter in book (Refereed)
Abstract [en]

In this chapter, we are concerned with the well-being of people in old age, living at a residential care home (RCH), and how well-being can be supported in gerontological social work and care at the RCH. Based on empirical data consisting of well-being narratives with elderly residents (average age of 91), a dialogical performance analysis was undertaken about their experiences of well-being at the RCH. The findings of importance are reported through three themes: (1) childhood memories as a source of well-being, (2) family and work as a source of well-being, and (3) opportunities for the well-being of the elderly at the RCH. To be an individual with others is a phenomenon of a personal sense of self and a phenomenon of sociality. Well-being is also found in the individual’s self-renewal.

Well-being is about a sense of both individual continuity and change. Well-being is created in social situations with others (including caregivers) in daily interactions and in human contacts at the RCH. This kind of individual self-renewal is about human growth and is a human need regardless of age. Consequently, the human growth in (and despite) old age at RCH should be the main target of gerontological social work and care.

Place, publisher, year, edition, pages
Rijeka, Croatia: InTechOpen, 2017
Keywords
well-being, old age, residential care home, sense of self, sociality, human growth
National Category
Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Research subject
Sociology
Identifiers
urn:nbn:se:uu:diva-337418 (URN)10.5772/intechopen.68680 (DOI)978-953-51-3513-5 (ISBN)978-953-51-3514-2 (ISBN)
Available from: 2017-12-27 Created: 2017-12-27 Last updated: 2018-01-16Bibliographically approved
Johansson, R. & Hellström Muhli, U. (2016). Developing Care Professionals: Possible Ramifications of Professional Projects within Swedish Disability Care Services. In: : . Paper presented at 3rd ISA- Forum conference of Sociology in Vienna 2016..
Open this publication in new window or tab >>Developing Care Professionals: Possible Ramifications of Professional Projects within Swedish Disability Care Services
2016 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Sociology
Identifiers
urn:nbn:se:uu:diva-299373 (URN)
Conference
3rd ISA- Forum conference of Sociology in Vienna 2016.
Available from: 2016-07-18 Created: 2016-07-18 Last updated: 2016-08-02Bibliographically approved
Saferstein, B., Hellström Muhli, U. & Siouta, E. (2016). Effects of clinician-guided communication formats on elderly patients’ authority and understanding in consultations. In: Srikant Sarangi, Charlotte Hyldgaard, Bettina Jensen, Maj Ragner Laursen and Hanan Lassen Zakaria (Ed.), : . Paper presented at The 14th international Communication, Medicine and Ethics conference (COMET) held at Aalborg University, hosted by Danish Institute of Humanities and Medicine (DIHM)..
Open this publication in new window or tab >>Effects of clinician-guided communication formats on elderly patients’ authority and understanding in consultations
2016 (English)In: / [ed] Srikant Sarangi, Charlotte Hyldgaard, Bettina Jensen, Maj Ragner Laursen and Hanan Lassen Zakaria, 2016Conference paper, Poster (with or without abstract) (Refereed)
Keywords
Communication, Elderly patients, Consultations
National Category
Social Work
Identifiers
urn:nbn:se:uu:diva-298787 (URN)
Conference
The 14th international Communication, Medicine and Ethics conference (COMET) held at Aalborg University, hosted by Danish Institute of Humanities and Medicine (DIHM).
Projects
Kommunikativa tillämpningar i konsultationer mellan äldre personer och vårdprofessionella
Available from: 2016-07-07 Created: 2016-07-07 Last updated: 2016-07-08
Blomgren Mannerheim, A., Hellström Muhli, U. & Siouta, E. (2016). Parents’ experiences of caring responsibility for their adult child with schizophrenia. Paper presented at 3rd Forum Conferencce of Sociology, July 10-14,2016 in Vienna Austria.. Schizophrenia Research and Treatment, Article ID 1958198.
Open this publication in new window or tab >>Parents’ experiences of caring responsibility for their adult child with schizophrenia
2016 (English)In: Schizophrenia Research and Treatment, ISSN 2090-2085, E-ISSN 2090-2093, article id 1958198Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

As a consequence of the latest psychiatry-related reform in Sweden and its implementation, relatives and family members have taken over from the formal healthcare system significant responsibility for the care of persons with a mental disability and illness. The aim of this study was to systematically describe and analyze the experiences of parents' informal care responsibility. The questions were, what are the experiences around parents' informal care activities and responsibilities and how do parents construct and manage their caring responsibility and with what consequences? Semistructured in-depth interviews were conducted (16 hours of recorded material) with eight parents who were all members of the Interest Association for Schizophrenia (Intresseforeningen for Schizofreni (IFS)) in Sweden. A mixed hermeneutic deductive and inductive method was used for the interpretation of the material. The parents endow their informal caring responsibility with meaning of being a good, responsible, and accountable parent with respect to their social context and social relationships as well as with respect to the psychiatric care representatives. In this tense situation, parents compromise between elements of struggle, cooperation, avoidance, and adaption in their interaction with the world outside, meaning the world beyond the care provision for their child, as well as with the world inside themselves.

Keywords
parents, informal care, responsibility, mentally ill family member, psychiatric care, schizophrenia.
National Category
Social Work
Research subject
Sociology
Identifiers
urn:nbn:se:uu:diva-299374 (URN)10.1155/2016/1958198 (DOI)000391968900001 ()26966575 (PubMedID)
Conference
3rd Forum Conferencce of Sociology, July 10-14,2016 in Vienna Austria.
Available from: 2016-07-18 Created: 2016-07-18 Last updated: 2017-11-28Bibliographically approved
Lundin, A., Berg, L.-E. & Hellström Muhli, U. (2016). Witnessing presence: Swedish care professionals’ experiences of supporting older people´s well-being processes within the frame of residential home care (RHC). Journal of Aging Studies, 37, 1-9
Open this publication in new window or tab >>Witnessing presence: Swedish care professionals’ experiences of supporting older people´s well-being processes within the frame of residential home care (RHC)
2016 (English)In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 37, p. 1-9Article in journal (Other academic) Published
Abstract [en]

In this article, we are concerned with analyzing the phenomenon of supportive social care for older people`s well-being from the carers’ meaning making through their life world perspective at a residential care home (RCH). Based on empirical data consisting of interview material with 12 care professionals in the context of Swedish eldercare, a phenomenological analysis was undertaken. The result shows that the phenomenon of supportive social care for well-being is a question of ambiguity in the professionals’ meaning making and in practice it balances between the residents´ needs and the conditions of the care organization. This phenomenon of ambiguity (the what) is made up by three constituents: (i) freedom of choice for the older people vs. institutional constraints, (ii) the residents’ need for activation vs. wanting not to be activated, and (iii) the residents’ need for routine vs. the carers´ not being able to know what the residents need. The conclusions drawn are that this ambiguity has consequences for the carers’ positions for supportive social care for older people´s well-being (the how) in that they have to navigate between the support for authenticity, dwelling and mobility, and carers’ presence and time. In performing a supportive social care for well-being, the carers have to consider aspects concerning the older person’s lifeworld, the social setting of the eldercare ward, and the institutional demands of the organisation. The practical implications for supporting well-being in the social care of older people is manifested in the importance of ‘the little things’, and the carer’s ability to give receptive attention, which requires the presence.  

Keywords
Well-being, Phenomenology, Lived experience, Sweden, Care professionals, Residential care home
National Category
Social Work
Research subject
Sociology
Identifiers
urn:nbn:se:uu:diva-194004 (URN)10.1016/j.jaging.2016.01.001 (DOI)000376704700001 ()27131273 (PubMedID)
Available from: 2013-02-07 Created: 2013-02-07 Last updated: 2017-12-06Bibliographically approved
Siouta, E., Hellström Muhli, U., Hedberg, B., Broström, A., Fossum, B. & Karlsgren, K. (2015). Patients’ Experiences of Involvement and Communication in Decision Making about Atrial Fibrillation Treatment in Consultations with Nurses and Physician.. Scandinavian Journal of Caring Sciences.
Open this publication in new window or tab >>Patients’ Experiences of Involvement and Communication in Decision Making about Atrial Fibrillation Treatment in Consultations with Nurses and Physician.
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2015 (English)In: Scandinavian Journal of Caring Sciences.Article in journal (Refereed) Published
Keywords
Atrial fibrillation, Communication, Decision-making, Patient involvement, Participation, Consultation
National Category
Health Sciences Nursing
Research subject
Caring Sciences
Identifiers
urn:nbn:se:uu:diva-258878 (URN)10.11111/scs.12276 (DOI)
Available from: 2015-07-21 Created: 2015-07-21 Last updated: 2016-01-07
Hellström Muhli, U. (2014). Accounts of pain experience and vulnerability in an elderly care context. In: Srikant Sarangi (Ed.), Meeting the Challenges for the health and elderly care:: Problematizing Vulnerability in Care Encounters. . Paper presented at At the Twelfth international conference on Communication, medicine & ethics (COMET) 26th-28th June, 2014 - Lugano, Switzerland..
Open this publication in new window or tab >>Accounts of pain experience and vulnerability in an elderly care context
2014 (English)In: Meeting the Challenges for the health and elderly care:: Problematizing Vulnerability in Care Encounters. / [ed] Srikant Sarangi, 2014Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Reserarch statenet/question:

The main concern in this presentation is to show how a discourse and communication based approach in the context of the care of elderly, provides a basis for reflecting on pain and of the vulnerability. How can the older client's vulnerability be reflected and reduced within the context of elderly?

 

Theoretical framework:

The presentation is based on a published article Hellström Muhli, U. (2010), entitled: Accounts of pain experience in an elderly care context, whose method, purpose and results are presented below.

 

Methods:

Based on six hours of recorded, transcribed and translated data from talk encounters between care professionals /elderly clients, an activity analysis of institutional settings and categorization of interactional discourse was made. There was a twofold focus: how elderly people initiate painful accounts, and how the professionals orient to such accounts.

 

Findings:

The pain-talks are governed by the institutional practice of phases: framing mapping troubles and symptoms, client’s self-presentations, counseling, and concluding. This structure shows the dialogical accounts as a communicative activity (type) of pain talk. A thematic interactional map of critical moments related to pain as 1) social death and hope, 2) and presentation of self as past and self as present, was achieved. The elderly talk about pain as an identity construction. Pain is a link between past, present and future identity.

 

Conclusions:

It is suggested that the caring aspect of professional skills is to support hope and to change the focus from social death, to life and recovering.

Keywords
Pain; elderly; vulnerability; talk; identity.
National Category
Social Work
Research subject
Geriatrics
Identifiers
urn:nbn:se:uu:diva-238147 (URN)
Conference
At the Twelfth international conference on Communication, medicine & ethics (COMET) 26th-28th June, 2014 - Lugano, Switzerland.
Available from: 2014-12-10 Created: 2014-12-10 Last updated: 2015-01-15
Hellström Muhli, U. (2014). Forskningsetik (4:1ed.). In: Jan Trost (Ed.), Att skriva uppsats med akribi: (pp. 1-96). Lund:: Studentlitteratur
Open this publication in new window or tab >>Forskningsetik
2014 (Swedish)In: Att skriva uppsats med akribi / [ed] Jan Trost, Lund:: Studentlitteratur , 2014, 4:1, p. 1-96Chapter in book (Other (popular science, discussion, etc.))
Place, publisher, year, edition, pages
Lund:: Studentlitteratur, 2014 Edition: 4:1
Keywords
Uppsats; skriva; akribi
National Category
Learning Sociology
Identifiers
urn:nbn:se:uu:diva-213952 (URN)978-91-44-10117-0 (ISBN)
Available from: 2014-01-05 Created: 2014-01-05 Last updated: 2015-01-15
Hellström Muhli, U., Jansson,, G., Boman, Å., Josephson, I. & Blomgren, A. (2014). Meeting the Challenges for the health and elderly care: Problematizing Vulnerability in Care Encounters. . In: Symphosium: Meeting the Challenges for the health and elderly care: Problematizing Vulnerability in Care Encounters.: . Paper presented at The Twelfth international conference on Communication, medicine & ethics (COMET) 26th-28th June, 2014 - Lugano, Switzerland.. Equinox Publishing Ltd.
Open this publication in new window or tab >>Meeting the Challenges for the health and elderly care: Problematizing Vulnerability in Care Encounters.
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2014 (English)In: Symphosium: Meeting the Challenges for the health and elderly care: Problematizing Vulnerability in Care Encounters., Equinox Publishing Ltd. , 2014Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Research statement/question: The main concern in this panel (colloquium) presentation was to show how a discourse and communication based approach in the context of the health and elderly care, provides a basis for reflecting on vulnerability. How can the patient`s and/or elderly client´s vulnerability be reflected and reduced within the context of health and elderly care?  How can professional vulnerability be understood in the light of patient involvement? In general, the panel (colloquium) analyzed the challenges of different kind of vulnerability in client encounters e.g. to be or not to treated as accountable.

Theoretical framework: From a four-dimensional, interdisciplinary perspective. Discourse Analysis, Micro-sociology, Phenomenology and Nursing, the panel (colloquium) featured five different presentations.

Methods: Different kind (video, audio and interview) of transcribed and translated data from talk encounters between care professionals and clients, have been analyzed.  Used analytical methods were qualitative method of Conversation Analysis; Meta-synthesis; activity analysis and phenomenographic analysis.

Findings: When looking for possible convergence between principles characterizing the approaches used by the authors and their findings, in this panel (colloquium) there are key-ideas which also have to do with what we would call communicative vulnerability. E.g., considering the vulnerability of older persons with dementia, the authors argue that a flexibility of practices may be a step towards implementing a client-centred approach in care plan meetings; it is also suggested that the caring aspect of professional skills in client encounter is to support hope; and that awareness of and understanding of the own professional vulnerability may gain understanding of implicit motives for decision-making.

Conclusions:Humanization of health and eldercare professionals´ work by identifying the aspect of patients´ vulnerability is dealt with in this panel (colloquium) through carefully applied research methods from areas as discourse analysis, phenomenology, phenomenographic, and micro-sociology. This panel (colloquium) attests to relevant productivity of the researcher network: Talk, Text and Tools (3T), Scandinavian Interdisciplinary Health Communication Research.

Place, publisher, year, edition, pages
Equinox Publishing Ltd., 2014
National Category
Social Work
Research subject
Caring Sciences in Social Sciences
Identifiers
urn:nbn:se:uu:diva-233432 (URN)
Conference
The Twelfth international conference on Communication, medicine & ethics (COMET) 26th-28th June, 2014 - Lugano, Switzerland.
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2012-1431
Available from: 2014-10-03 Created: 2014-10-03 Last updated: 2015-01-15
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-3870-6426

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