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Sveen, Josefin, DocentORCID iD iconorcid.org/0000-0002-5523-8126
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Publications (10 of 68) Show all publications
Eklund, R., Hjelmfors, L., Nyquist, S., Sveen, J., Hultström, M., Lipcsey, M., . . . Orwelius, L. (2024). Surviving COVID-19: patients' experiences of care and path to recovery. International Journal of Qualitative Studies on Health and Well-being, 19(1), Article ID 2301953.
Open this publication in new window or tab >>Surviving COVID-19: patients' experiences of care and path to recovery
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2024 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 19, no 1, article id 2301953Article in journal (Refereed) Published
Abstract [en]

Purpose: To examine patients' experiences of receiving care on an ICU for COVID-19 and the subsequent rehabilitation process.

Methods: An explorative and inductive design was used. Participants were recruited from two university hospitals in Sweden. Patients admitted to the ICU due to COVID-19 from March 2020 to April 2021, who enrolled in the ICU follow-up, and understood and spoke Swedish were invited to participate. In total, 20 participants completed a semi-structured interview, of whom 18 were included in the thematic analysis.

Results: The analysis resulted in two themes: "An isolated world with silver linings" and "Recovery in the wake of the pandemic". Findings show that patients cared for on an ICU for COVID-19 during the pandemic felt safe but experienced a sense of vulnerability. After discharge, physical rehabilitation was a slow process with frustrating day-to-day fluctuations. Mentally, participants felt isolated, fatigued, and emotionally sensitive. Patients reported that love and support from family and friends were crucial for the recovery process.

Conclusions: This study highlights the challenges of recovering from COVID-19, emphasizing the importance of continued support from health care, public services, family and friends. It provides important insights into patients' experiences and can inform future healthcare strategies and policies.

Place, publisher, year, edition, pages
Taylor & Francis, 2024
Keywords
COVID-19, intensive care, psychosocial well-being, psychosocial support, recovery, rehabilitation
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-521174 (URN)10.1080/17482631.2024.2301953 (DOI)001137343700001 ()38184794 (PubMedID)
Funder
Region Östergötland, ROE-978823
Available from: 2024-01-24 Created: 2024-01-24 Last updated: 2024-01-24Bibliographically approved
Persson, M., Hildingsson, I., Hultcrantz, M. A., Fredriksson, M. K., Peira, N., Silverstein, R., . . . Berterö, C. (2023). Care and support when a baby is stillborn: A systematic review and an interpretive meta-synthesis of qualitative studies in high-income countries. PLOS ONE, 18(8), Article ID e0289617.
Open this publication in new window or tab >>Care and support when a baby is stillborn: A systematic review and an interpretive meta-synthesis of qualitative studies in high-income countries
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2023 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 18, no 8, article id e0289617Article, review/survey (Refereed) Published
Abstract [en]

IntroductionApproximately 2 million babies are stillborn annually worldwide, most in low- and middle-income countries. Present review studies of the parental and healthcare providers' experiences of stillbirth often include a variety of settings, which may skew the findings as the available resources can vary considerably. In high-income countries, the prevalence of stillbirth is low, and support programs are often initiated immediately when a baby with no signs of life is detected. There is limited knowledge about what matters to parents, siblings, and healthcare providers when a baby is stillborn in high-income countries. ObjectivesThis systematic review and interpretive meta-synthesis aim to identify important aspects of care and support for parents, siblings, and healthcare professionals in high-income countries from the diagnosis of stillbirth throughout the birth and postpartum period. MethodsA systematic review and qualitative meta-synthesis were conducted to gain a deeper and broader understanding of the available knowledge about treatment and support when stillbirth occurred. Relevant papers were identified by systematically searching international electronic databases and citation tracking. The quality of the included studies was assessed, and the data was interpreted and synthesised using Gadamer's hermeneutics. The review protocol, including qualitative and quantitative study approaches, was registered on PROSPERO (CRD42022306655). ResultsSixteen studies were identified and included in the qualitative meta-synthesis. Experiences of care and support were interpreted and identified as four fusions. First, Personification is of central importance and stresses the need to acknowledge the baby as a unique person. The parents became parents even though their baby was born dead: The staff should also be recognised as the individuals they are with their personal histories. Second, the personification is reinforced by a respectful attitude where the parents are confirmed in their grief; the baby is treated the same way a live baby would be. Healthcare professionals need enough time to process their experiences before caring for other families giving birth. Third, Existential issues about life and death become intensely tangible for everyone involved, and they often feel lonely and vulnerable. Healthcare professionals also reflect on the thin line between life and death and often question their performance, especially when lacking collegial and organisational support. Finally, the fusion Stigmatisation focused on how parents, siblings, and healthcare professionals experienced stigma expressed as a sense of loneliness, vulnerability, and being deviant and marginalised when a baby died before or during birth. GRADE CERQual ratings for the four fusions ranged from moderate to high confidence. ConclusionsThe profound experiences synthesised in the fusions of this meta-synthesis showed the complex impacts the birth of a baby with no signs of life had on everyone involved. These fusions can be addressed and supported by applying person-centred care to all individuals involved. Hence, grief may be facilitated for parents and siblings, and healthcare professionals may be provided with good conditions in their professional practice. Furthermore, continuing education and support to healthcare professionals may facilitate them to provide compassionate care and support to affected parents and siblings. The fusions should also be considered when implementing national recommendations, guidelines, and clinical practice.

Place, publisher, year, edition, pages
Public Library of Science (PLoS), 2023
National Category
Nursing Obstetrics, Gynecology and Reproductive Medicine
Identifiers
urn:nbn:se:uu:diva-521495 (URN)10.1371/journal.pone.0289617 (DOI)001054317000015 ()37582089 (PubMedID)
Available from: 2024-01-29 Created: 2024-01-29 Last updated: 2024-01-29Bibliographically approved
Lenferink, L. I. M., Sveen, J. & Maccallum, F. (2023). Editorial: Consequences and aftercare of a traumatic loss of a loved one. Frontiers in Psychiatry, 13, Article ID 1111000.
Open this publication in new window or tab >>Editorial: Consequences and aftercare of a traumatic loss of a loved one
2023 (English)In: Frontiers in Psychiatry, E-ISSN 1664-0640, Vol. 13, article id 1111000Article in journal, Editorial material (Other academic) Published
Place, publisher, year, edition, pages
Frontiers Media S.A., 2023
Keywords
grief, bereavement, loss, death, trauma
National Category
Psychiatry Nursing
Identifiers
urn:nbn:se:uu:diva-496779 (URN)10.3389/fpsyt.2022.1111000 (DOI)000917516900001 ()36684027 (PubMedID)
Available from: 2023-02-21 Created: 2023-02-21 Last updated: 2024-01-17Bibliographically approved
Hensler, I., Sveen, J., Cernvall, M. & Arnberg, F. K. (2023). Longitudinal follow-up of the randomized controlled trial of access to the trauma-focused self-management app PTSD Coach. Internet Interventions, 32, 100618, Article ID 100618.
Open this publication in new window or tab >>Longitudinal follow-up of the randomized controlled trial of access to the trauma-focused self-management app PTSD Coach
2023 (English)In: Internet Interventions, ISSN 2214-7829, Vol. 32, p. 100618-, article id 100618Article in journal (Refereed) Published
Abstract [en]

Apps that target posttraumatic stress are rarely evaluated and long-term examination of symptom change is rare. In a waitlist-controlled randomized controlled trial, we found that the Swedish version of the self-management app PTSD Coach confers benefits on posttraumatic stress and depressive symptoms after three months use. Here, we aimed to evaluate between-group effects on functional disability as well as within-group changes on mental health, somatic illness and functional disability after access to the Swedish PTSD Coach app during 9 months. In addition, we described negative effects, helpfulness and satisfaction with the app. Among the 179 trauma-exposed adults (92% women) randomized to instant access or delayed access to PTSD Coach, symptoms of posttraumatic stress, depression, somatic illness and functional disability decreased and were maintained within 3 to 9 months of app access. Posttraumatic stress continued to improve during follow up. PTSD Coach was considered slightly to moderately helpful and satisfactory, and 43% reported any negative effect related to using the app. PTSD Coach is an effective self-management intervention for trauma-related distress. Future research should investigate mechanisms of change, as well as individual characteristics that predict symptom reduction after access to PTSD Coach in order to inform clinical practice.

Place, publisher, year, edition, pages
Elsevier, 2023
Keywords
PTSD, posttraumatic stress disorder, mHealth, self-management app, mobile phone intervention
National Category
Psychiatry
Research subject
Psychiatry; Psychology
Identifiers
urn:nbn:se:uu:diva-497318 (URN)10.1016/j.invent.2023.100618 (DOI)001005267500001 ()
Projects
PTSD Coach Sverige
Funder
The Swedish Crime Victim Compensation and Support Authority, 03448/2017Swedish National Board of Health and Welfare, 10.1-37970/2020
Available from: 2023-02-27 Created: 2023-02-27 Last updated: 2023-07-03Bibliographically approved
Hovén, E., Ljungman, L., Sveen, J., Skoglund, C., Ljungman, G., Ljung, R. & Wikman, A. (2023). Losing a child to adolescent cancer: A register‐based cohort study of psychotropic medication use in bereaved parents. Cancer Medicine, 12(5), 6148-6160
Open this publication in new window or tab >>Losing a child to adolescent cancer: A register‐based cohort study of psychotropic medication use in bereaved parents
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2023 (English)In: Cancer Medicine, E-ISSN 2045-7634, Vol. 12, no 5, p. 6148-6160Article in journal (Refereed) Published
Abstract [en]

Purpose

To investigate the short- and long-term risk of psychotropic medication use in parents who lose a child to cancer diagnosed in adolescence.

Methods

This is a Swedish nationwide register-based study including 184 bereaved mothers and 184 bereaved fathers of 184 children diagnosed with cancer in adolescence. Logistic regression analyses, adjusted for sociodemographic characteristics and history of mental health problems, were performed to estimate risk of a prescription of psychotropic medication (anxiolytics, hypnotics/sedatives, antidepressants) in cancer-bereaved parents from 1 year before to 5 years after the child's death, with a general population sample of non-bereaved parents (n = 3291) as referents.

Results

At the year of the child's death, 28%–36% of mothers and 11%–20% of fathers had a prescription of anxiolytics, hypnotics/sedatives or antidepressants. The corresponding percentages for non-bereaved mothers and fathers were 7%–12% and 4%–7%, respectively. Compared to non-bereaved mothers, bereaved mothers showed higher odds of prescriptions from 1 year before up to four (anxiolytics) and 5 years (hypnotics/sedatives and antidepressants) after the child's death. Bereaved fathers showed higher odds than non-bereaved fathers of prescriptions from 1 year before up to the year of (anxiolytics and hypnotics/sedatives) and 1 year after (antidepressants) the child's death. No differences in odds between bereaved and non-bereaved fathers were found at 2 years after the child's death. Being unmarried, born outside Sweden, and having a history of mental health problems were associated with higher odds of prescribed medications.

Conclusions

Indicative of mental health problems of clinical importance, cancer-bereaved parents had a higher prevalence of use of psychotropic medication. A decrease in medication use was evident with time, but still at 5 years after the child's death mothers displayed a higher use while fathers showed no difference to non-bereaved fathers after 2 years.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
adolescence, bereavement, cancer, parents, psychotropic medication
National Category
Cancer and Oncology Applied Psychology
Identifiers
urn:nbn:se:uu:diva-490476 (URN)10.1002/cam4.5347 (DOI)000865737100001 ()36218005 (PubMedID)
Funder
Swedish Childhood Cancer Foundation, PR2019-0094Swedish Childhood Cancer Foundation, TJ2019-0045
Available from: 2022-12-12 Created: 2022-12-12 Last updated: 2024-01-17Bibliographically approved
Eklund, R. & Sveen, J. (2023). Utvärdering av självhjälpsappen "min sorg" för föräldrar som förlorat ett spädbarn. Omsorg: Nordisk tidsskrift for Palliativ Medisin (2), 50-56
Open this publication in new window or tab >>Utvärdering av självhjälpsappen "min sorg" för föräldrar som förlorat ett spädbarn
2023 (Swedish)In: Omsorg: Nordisk tidsskrift for Palliativ Medisin, ISSN 0800-7489, no 2, p. 50-56Article in journal (Refereed) Published
Place, publisher, year, edition, pages
Fagbokforlaget, 2023
National Category
Other Medical Sciences not elsewhere specified
Identifiers
urn:nbn:se:uu:diva-508687 (URN)
Available from: 2023-08-07 Created: 2023-08-07 Last updated: 2023-08-07Bibliographically approved
Melin-Johansson, C., Sveen, J., Lövgren, M. & Udo, C. (2022). A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study. Palliative & Supportive Care, 20(3), 357-362
Open this publication in new window or tab >>A third of dying patients do not have end-of-life discussions with a physician: A nationwide registry study
2022 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 20, no 3, p. 357-362Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: The aim of the study was to explore the proportion of adult patients and next-of-kin who had end-of-life (EOL) discussions and associated factors.

METHOD: A retrospective nationwide registry study was reported with data from the Swedish Register of Palliative Care. All patients in Sweden in hospitals, nursing homes, own homes, community, and palliative care units during 2015-2017 and their next-of-kin were included. Data were reported to the register by healthcare staff, based on diseased patients' records regarding their last days of life, and were voluntary. Descriptive statistics illustrated the proportion of patients/next-of-kin who had EOL discussions and logistic regressions were used to examine associated factors.

RESULTS: About half of the patients (46%) did have an EOL discussion, but a third (32%) did not. Associated factors of those who did not have an EOL discussion were dementia (48.5%) or stroke (47.5%), older age (38.4%), being female (33.6%), being cared for in a nursing home (41.3%), or hospital (40.3%), having lost decision-making ability months before death (58.9%), and not having a documented decision to shift to EOL care (82.7%). Younger patients diagnosed with cancer and cared for at a palliative unit were more likely to have EOL discussions. The regression analysis showed similar results for next-of-kin.

SIGNIFICANCE OF RESULTS: The result shows that not all patients with palliative care needs have equal access to EOL discussions, despite efforts at a national level and the recognized benefits of timely communication about the EOL care. Further efforts must be made to achieve EOL discussions for all patients.

Place, publisher, year, edition, pages
Cambridge University Press, 2022
Keywords
Communication, End of life, Older people, Palliative care, Quality indicators, Register study
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-463453 (URN)10.1017/S1478951521000973 (DOI)000778901000001 ()34158146 (PubMedID)
Available from: 2022-01-10 Created: 2022-01-10 Last updated: 2022-09-30Bibliographically approved
Bartholdson, C., Kreicbergs, U., Sveen, J., Lovgren, M. & Pohlkamp, L. (2022). Communication about diagnosis and prognosis-A population-based survey among bereaved parents in pediatric oncology. Psycho-Oncology, 31(12), 2149-2158
Open this publication in new window or tab >>Communication about diagnosis and prognosis-A population-based survey among bereaved parents in pediatric oncology
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2022 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 31, no 12, p. 2149-2158Article in journal (Refereed) Published
Abstract [en]

Introduction When a child is diagnosed with cancer, the whole family is affected, and parents struggle to grasp challenging information regarding diagnosis and prognosis. Most parents and children want honest communication and openness, yet this remains a complex and challenging task for healthcare professionals. Objectives To describe bereaved mothers' and fathers' reports of communication of their child's cancer diagnosis and when the illness became incurable. Methods Data from a Swedish population-based survey conducted in 2016, including 135 mothers and 97 fathers who had lost a child to cancer 1-5 years earlier, were studied regarding the parents' reports of communication about their child's illness. Results A vast majority of parents wants information when their child's illness becomes incurable, and this need is generally met. However, fathers to a lesser extent than mothers, reported that they were informed about it. According to parents' reports 87% of children received diagnostic information and 44% of the children received prognostic information. Conclusion A vast majority of both mothers and fathers would like to know when their child's illness becomes incurable, yet it remains unknown to what extent they want their child to be informed.

Place, publisher, year, edition, pages
John Wiley & SonsWiley, 2022
Keywords
cancer, children, communication, diagnosis, oncology, parents, prognosis, psycho-oncology
National Category
Cancer and Oncology Nursing
Identifiers
urn:nbn:se:uu:diva-497306 (URN)10.1002/pon.6058 (DOI)000878865500001 ()36307935 (PubMedID)
Available from: 2023-02-28 Created: 2023-02-28 Last updated: 2024-01-15Bibliographically approved
Eklund, R., Bondjers, K., Hensler, I., Bragesjö, M., Bergh Johannesson, K., Arnberg, F. & Sveen, J. (2022). Daily uplifts during the COVID-19 pandemic: what is considered helpful in everyday life?. BMC Public Health, 22(1), Article ID 85.
Open this publication in new window or tab >>Daily uplifts during the COVID-19 pandemic: what is considered helpful in everyday life?
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2022 (English)In: BMC Public Health, E-ISSN 1471-2458, Vol. 22, no 1, article id 85Article in journal (Refereed) Published
Abstract [en]

Background

Knowledge of what is uplifting and helpful during pandemics could inform the design of sustainable pandemic recommendations in the future. We have explored individuals’ views on helpful and uplifting aspects of everyday life during the coronavirus disease 2019 (COVID-19) pandemic.

Methods

Participants answered a brief, daily survey via text messages during 14 consecutive days in July–August, 2020. The survey included the question: “During the past 24 hours, is there anything that has made you feel good or helped you in your life?” We used content analysis to compile responses from 693 participants, who provided 4,490 free-text answers, which resulted in 24 categories subsumed under 7 themes.

Results

Positive aspects during the COVID-19 pandemic primarily related to social interactions, in real life or digitally, with family, friends and others. Other important aspects concerning work, colleagues and maintaining everyday life routines. One theme concerning vacations, going on excursions and being in nature. Leisure and recreation activities, such as hobbies and physical exercise, also emerged as important, as did health-related factors. Bodily sensations, thoughts, feelings and activities that benefited well-being were mentioned frequently. Lastly, people commented on the government strategies for containing COVID-19, and whether to comply with restrictions.

Conclusions

To summarize, daily uplifts and helpful aspects of everyday life centered around social relationships. To comply with recommendations on physical distancing, people found creative ways to maintain social connections both digitally and face-to-face. Social interaction, maintenance of everyday life routines, hobbies and physical activity appeared to be important for well-being.

Place, publisher, year, edition, pages
Springer NatureSpringer Nature, 2022
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:uu:diva-465049 (URN)10.1186/s12889-022-12506-4 (DOI)000742366700003 ()35027034 (PubMedID)
Available from: 2022-01-17 Created: 2022-01-17 Last updated: 2024-01-15Bibliographically approved
Hensler, I., Sveen, J., Cernvall, M. & Arnberg, F. K. (2022). Efficacy, Benefits, and Harms of a Self-management App in a Swedish Trauma-Exposed Community Sample (PTSD Coach): Randomized Controlled Trial. Journal of Medical Internet Research, 24(3)
Open this publication in new window or tab >>Efficacy, Benefits, and Harms of a Self-management App in a Swedish Trauma-Exposed Community Sample (PTSD Coach): Randomized Controlled Trial
2022 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 24, no 3Article in journal (Refereed) Published
Abstract [en]

Background: Self-guided interventions may complement and overcome obstacles to in-person treatment options. The efficacy of app interventions targeting posttraumatic stress disorder (PTSD) is unclear, and results from previous studies on PTSD Coach—an app for managing trauma-related distress—are inconsistent.

Objective: This study investigates whether access to the Swedish version of the PTSD Coach affects posttraumatic stress, depressive, and somatic symptoms. In addition, we aim to assess the perceived helpfulness, satisfaction, negative effects, response, and remission related to PTSD Coach.

Methods: Adults who had experienced potentially traumatic events in the past 2 years were randomized (1:1) to have access to PTSD Coach (n=89) or be on the waitlist (n=90). We assessed clinical characteristics at baseline (semistructured interviews and self-rating scales) and after 3 months (self-rating scales). We analyzed the data in R software using linear mixed effects models, chi-square tests, and Fisher exact test.

Results: Intention-to-treat analyses indicated that access to PTSD Coach decreased posttraumatic stress and depressive symptoms but not somatic symptoms. More participants who had access to PTSD Coach responded with clinically significant improvement and fewer instances of probable PTSD after 3 months compared with waitlist controls. Overall, participants found that PTSD Coach was slightly to moderately helpful and moderately satisfactory. Half of the intervention group (36/71, 51%) reported at least one negative reaction related to using PTSD Coach (eg, disappointment with the app or its results, arousal of stress, or distressing memories).

Conclusions: Using PTSD Coach may trigger symptoms among a few users; however, most of them perceived PTSD Coach as helpful and satisfactory. This study showed that having access to PTSD Coach helped improve psychological trauma-related symptoms. In addition, we have discussed implications for future research and clinical practice.

Place, publisher, year, edition, pages
JMIR Publications, 2022
Keywords
PTSD; self-management app; mHealth (618); RCT; negative effects; mobile phone (531)
National Category
Psychiatry
Identifiers
urn:nbn:se:uu:diva-472061 (URN)10.2196/31419 (DOI)000789361600001 ()35353052 (PubMedID)
Note

Correction in: Journal of Medical Internet Research, Volume 25, Article Number e45847

DOI: 10.2196/45847

Available from: 2022-04-04 Created: 2022-04-04 Last updated: 2024-01-17Bibliographically approved
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