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Sveen, Josefin, DocentORCID iD iconorcid.org/0000-0002-5523-8126
Publications (10 of 30) Show all publications
Udo, C., Lövgren, M., Sveen, J., Bylund-Grenklo, T., Alvariza, A. & Kreicbergs, U. (2019). A Nationwide Study of Young Adults' Perspectives on Participation in Bereavement Research. Journal of Palliative Medicine
Open this publication in new window or tab >>A Nationwide Study of Young Adults' Perspectives on Participation in Bereavement Research
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2019 (English)In: Journal of Palliative Medicine, ISSN 1096-6218, E-ISSN 1557-7740Article in journal (Refereed) Epub ahead of print
Abstract [en]

Background: Young adults represent a minority in research; they are often considered too young or too old for participation. There is sparse information, especially in bereavement research, regarding how this age group perceives research participation and what they consider beneficial or harmful.

Aim: To explore how parentally bereaved and nonbereaved young adults perceive research participation.

Design: Qualitative analysis of free-text comments collected in a Swedish nation-wide survey.

Setting/Participants: Parentally cancer-bereaved and nonbereaved young adults between 18 and 25 years old living in Sweden.

Results: Five categories were identified from the free-text comments, three among the cancer-bereaved: (1) therapeutic to remember the deceased, (2) valuable to help others and improve care, and (3) short-term distressful-long-term beneficial, and two among the nonbereaved: (1) increased reflection and awareness about life, and (2) an opportunity to help others.

Conclusions: It is important to invite young adults to participate in bereavement research. The results suggest that potential harm is minimal and that participating in bereavement research can have a beneficial effect on young adults.

Place, publisher, year, edition, pages
MARY ANN LIEBERT, INC, 2019
Keywords
bereavement research, comparison group, young adult
National Category
Other Medical Sciences not elsewhere specified
Identifiers
urn:nbn:se:uu:diva-381127 (URN)10.1089/jpm.2018.0630 (DOI)000461788800001 ()30892140 (PubMedID)
Available from: 2019-04-04 Created: 2019-04-04 Last updated: 2019-04-04Bibliographically approved
Pohlkamp, L., Kreicbergs, U. & Sveen, J. (2019). Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study. Psycho-Oncology, 28(7), 1530-1536
Open this publication in new window or tab >>Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
2019 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 28, no 7, p. 1530-1536Article in journal (Refereed) Published
Abstract [en]

Objective To assess differences in prolonged grief, depression, posttraumatic stress, and sleep disturbances in bereaved parents across years since loss (1-5 years) and by gender and to assess potential interactive effects of time since loss and gender on bereavement outcomes. Methods This study examined symptom levels of prolonged grief disorder, depression, posttraumatic stress, and insomnia in bereaved parents. A sample, including 133 mothers and 92 fathers who had lost a child to cancer 1 to 5 years previously, subdivided to five subsamples, one for each year since loss. Analysis of variance (ANOVA) was used to assess differences in symptom levels, related to years since loss, and gender. Results Regardless of how many years had passed since the loss, symptom levels of prolonged grief, depression, posttraumatic stress symptoms, and insomnia were elevated in all subsamples. Mothers showed higher symptom levels of prolonged grief, depression, and posttraumatic stress than fathers. However, no significant interaction effects were found between years since loss and gender on any of the symptom levels. Conclusions Cancer-bereaved mothers and fathers are vulnerable to prolonged grief and psychological symptoms up to 5 years after the death of their child. Findings highlight that bereaved parents may need long-term support, and the results deserve further attention in research and clinical care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
childhood cancer, depression, fathers, mothers, insomnia, pediatric oncology, PGD, posttraumatic stress, prolonged grief
National Category
Other Medical Sciences not elsewhere specified Nursing
Identifiers
urn:nbn:se:uu:diva-390903 (URN)10.1002/pon.5112 (DOI)000474293000021 ()31108000 (PubMedID)
Funder
Swedish Childhood Cancer Foundation, PR2015-0050Swedish Childhood Cancer Foundation, TJ2015-0021
Available from: 2019-08-19 Created: 2019-08-19 Last updated: 2019-08-19Bibliographically approved
Weber, M., Alvariza, A., Kreicbergs, U. & Sveen, J. (2019). Communication in families with minor children following the loss of a parent to cancer. European Journal of Oncology Nursing, 39, 41-46
Open this publication in new window or tab >>Communication in families with minor children following the loss of a parent to cancer
2019 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 39, p. 41-46Article in journal (Refereed) Published
Abstract [en]

Purpose:

Family communication is a known protective factor for minor children's psychological health following the death of a parent, but there is little research describing communication within such families specifically from the perspective of the children. The purpose of this study was therefore to explore communication in parentally bereaved families from the perspective of the children and surviving parent.

Methods:

Interviews with four parents and four children from four families were analyzed using inductive content analysis. Interviews took place in the family's home or at the research center based on the family's wishes 4-14 months after a parent had died. Interviews had an open approach and were based on an interview guide. Each interview was between 60 and 120 min long.

Results:

Four categories emerged which were related to family members' experiences of family communication while adjusting to their new circumstances as bereaved: the importance of open and honest communication in the family; new challenges in the family which affect communication; communicating the need for help; and talking about and remembering the deceased parent.

Conclusions:

This study illuminates the connection between family communication and adjustments to new circumstances following the death of a parent. The results suggest that the relationship between family adjustment and communication may be circular whereby the family's ability to adjust to their new circumstances is affected by how the family communicates. Similarly, family communication may be affected by the family's coping strategies and ability to adjust to their new circumstances.

Keywords
Family communication, Parental death, Bereavement
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-382259 (URN)10.1016/j.ejon.2019.01.005 (DOI)000462419500006 ()30850137 (PubMedID)
Available from: 2019-04-23 Created: 2019-04-23 Last updated: 2019-04-23Bibliographically approved
Hensler, I., Sveen, J., Cernvall, M. & Arnberg, F. (2019). PTSD Coach Sweden: A Self-Management App for Trauma-Related Symptoms: A RCT study protocol evaluating a self-help app for posttraumatic stress in a Swedish community sample. Paper presented at ESTSS2019 (European Society for Traumatic Stress Studies), Rotterdam, Netherlands, 14-16 June 2019. European Journal of Psychotraumatology, 10(S1), Article ID 4–010.
Open this publication in new window or tab >>PTSD Coach Sweden: A Self-Management App for Trauma-Related Symptoms: A RCT study protocol evaluating a self-help app for posttraumatic stress in a Swedish community sample
2019 (English)In: European Journal of Psychotraumatology, ISSN 2000-8066, E-ISSN 2000-8066, Vol. 10, no S1, article id 4–010Article in journal, Meeting abstract (Other academic) Published
Abstract [en]

Background: Resources to administer evidence-based care for PTSD and trauma-related complications are scarce, especially in particular geographical areas, during mass casualty situations and for individuals with subclinical symptoms as clinics prioritize more severe cases. Effective interventions for PTSD through technical platforms could disseminate information and self-management strategies to decrease individual suffering and societal costs. Assessment at multiple time points can elucidate which aspects of an intervention that are effective, in addition to the evolution of intervention use and well-being over time. 

Objective: Evaluate an app-administered self-help intervention (PTSD Coach Sweden) aiming to reduce and manage PTSD symptoms and other related complications. 

Method: In this trial, 200 participants from Sweden who have experienced a traumatic event in the past two years and who report posttraumatic stress symptoms will be randomized to three months use of the app or waitlist. The primary endpoint is self-rated PTSD symptom severity at three months, with follow-up at six and nine months. Secondary outcomes include depressive symptoms, physical symptoms, functional impairment and health care use. Ecological momentary assessment of health status and use of strategies corresponding to app content is used for 21 days during the first three months.

Results: Lessons learned and recommendations from the preparations of app-based intervention trials are presented. Available data from the primary endpoint are presented. 

Conclusions: App-based interventions hold promise to increase outreach, but further trials are needed. Several challenges introduced when preparing an app-based intervention are discussed.

Keywords
PTSD, posttraumatic stress, app intervention
National Category
Psychiatry
Research subject
Psychiatry; Psychology
Identifiers
urn:nbn:se:uu:diva-391388 (URN)10.1080/20008198.2019.1613837 (DOI)
Conference
ESTSS2019 (European Society for Traumatic Stress Studies), Rotterdam, Netherlands, 14-16 June 2019
Available from: 2019-08-22 Created: 2019-08-22 Last updated: 2019-08-26Bibliographically approved
Sveen, J., Pohlkamp, L., Kreicbergs, U. & Eisma, M. C. (2019). Rumination in bereaved parents: Psychometric evaluation of the Swedish version of the Utrecht Grief Rumination Scale (UGRS). PLoS ONE, 14(3)
Open this publication in new window or tab >>Rumination in bereaved parents: Psychometric evaluation of the Swedish version of the Utrecht Grief Rumination Scale (UGRS)
2019 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 14, no 3Article in journal (Refereed) Published
Abstract [en]

Background

Bereaved parents may be at higher risk to develop persistent, severe and disabling grief, termed prolonged grief. Grief rumination, repetitive thinking about the causes and consequences of the loss, is a malleable cognitive process that maintains prolonged grief. Grief rumination can be measured with the Utrecht Grief Rumination Scale (UGRS). The present study aimed to examine the psychometric properties of the new Swedish version of the UGRS in a sample of bereaved parents.

Methods

A Swedish nationwide postal survey including measures of demographic and loss-related variables, grief rumination (UGRS), and symptoms of prolonged grief, posttraumatic stress, anxiety, depression, and insomnia, was completed by 226 parents (133 mothers and 93 fathers) who lost a child to cancer in the past five years. Psychometric properties of the UGRS were examined through confirmatory factor analyses (CFA), reliability analyses, and assessment of UGRS score associations with symptoms of prolonged grief, posttraumatic stress, depression, anxiety, and insomnia.

Results

The internal consistency of the Swedish UGRS was good. The CFA yielded an acceptable fit for a two-factor hierarchical model with five sub-factors. Grief rumination was positively associated with all psychopathology symptom measures. Higher scores on UGRS were found in parents with possible prolonged grief disorder compared to those without (d=1.47). Moreover, the Swedish UGRS was associated with prolonged grief symptoms over and above loss-related and demographic variables and other psychopathology symptoms.

Conclusions

The Swedish UGRS demonstrated good psychometric properties, which supports its use as a measure to assess grief rumination in Swedish bereaved parents in research and practice.

National Category
Psychiatry
Identifiers
urn:nbn:se:uu:diva-381074 (URN)10.1371/journal.pone.0213152 (DOI)000461573000015 ()30889209 (PubMedID)
Available from: 2019-04-23 Created: 2019-04-23 Last updated: 2019-04-23Bibliographically approved
Cernvall, M., Sveen, J., Bergh Johannesson, K. & Arnberg, F. (2018). A pilot study of user satisfaction and perceived helpfulness of the Swedish version of the mobile app PTSD Coach. European Journal of Psychotraumatology, 9(Suppl 1), Article ID 1472990.
Open this publication in new window or tab >>A pilot study of user satisfaction and perceived helpfulness of the Swedish version of the mobile app PTSD Coach
2018 (English)In: European Journal of Psychotraumatology, ISSN 2000-8066, E-ISSN 2000-8066, Vol. 9, no Suppl 1, article id 1472990Article in journal (Refereed) Published
Abstract [en]

Background: There is a need for accessible interventions in the aftermath of traumatic events with documented efficacy for preventing or reducing negative mental health consequences. The PTSD Coach is a mobile app that has shown to be effective in reducing symptoms of posttraumatic stress (PTSS). Objective: The purpose of the current study was to evaluate the user satisfaction, perceived helpfulness and potential reductions of PTSS and symptoms of depression among participants using the Swedish version of the PTSD Coach. Method: This was an uncontrolled pre-test post-test open trial including participants recruited from the community via advertisement and from an ongoing observational study who had experienced a potentially traumatic event in the last five years. Participants had access to the Swedish PTSD Coach app for four weeks. Results: Eleven participants (mean age = 38.6, female = 8) completed the study. Nine of the participants met criteria for full or partial PTSD. Results from the PTSD Coach Survey indicated that participants found the app slightly to moderately helpful and were slightly to moderately satisfied with the app. Nominal but not statistically significant reductions of medium effect sizes in PTSS (PCL-5) and depression (PHQ-9) from pre- to post-assessment were found. In interviews, participants indicated that they found elements such as learning about PTSD, breathing exercises and monitoring symptoms helpful in managing symptoms. However, several participants indicated that they had not used the app as much as they had intended to. Participants also had suggestions for improvements such as enhanced app structure and better guidance regarding how to use the app. Conclusions: The perceived helpfulness and user satisfaction were slightly lower compared to research on the original version of the app. Experiences from the study are discussed and a future controlled study of the Swedish version of the PTSD Coach is suggested.

Keywords
PTSD Coach, Posttraumatic stress, mobile apps, mobile phone intervention, smartphones, • Participants found the Swedish version of the PTSD Coach slightly to moderately helpful.• There were nominal but statistically non-significant reductions of symptoms of PTSD and depression with medium effect sizes.• Participants had suggestions for improvement of the app.
National Category
Psychiatry
Research subject
Psychiatry; Psychology
Identifiers
urn:nbn:se:uu:diva-357141 (URN)10.1080/20008198.2018.1472990 (DOI)000469464200001 ()29805783 (PubMedID)
Funder
Swedish National Board of Health and Welfare
Available from: 2018-08-13 Created: 2018-08-13 Last updated: 2019-08-19Bibliographically approved
Sveen, J. & Willebrand, M. (2018). Feelings of guilt and embitterment in parents of children with burns and its associations with depression. Burns, 44(5), 1135-1140
Open this publication in new window or tab >>Feelings of guilt and embitterment in parents of children with burns and its associations with depression
2018 (English)In: Burns, ISSN 0305-4179, E-ISSN 1879-1409, Vol. 44, no 5, p. 1135-1140Article in journal (Refereed) Published
Abstract [en]

Objectives: The aim was to examine guilt and embitterment in mothers and fathers of children with burns and its associations with depression and burn severity. Methods: Parents (N=61, mothers n=41, fathers n=20) completed self-report questionnaires on guilt and embitterment, 0.8-5.6 years after their child's burn. Burn severity and sociodemographic variables were obtained from medical records and symptoms of depression were assessed with the Montgomery-Asberg Depression Rating Scale (MADRS). Results: The parents reported low levels of guilt, embitterment and depression. Burn-specific and general guilt were higher in mothers than fathers, but there were no differences in embitterment or symptoms of depression. General guilt was associated with depression, whereas burn-specific guilt and embitterment were not. Conclusions: Parents with general guilt may suffer from symptoms of depression. An implication is that clinicians should address guilt feelings among parents in order to alleviate distress and to identify any need for further counseling.

Place, publisher, year, edition, pages
ELSEVIER SCI LTD, 2018
Keywords
Guilt, Embitterment, Depression, Pediatric burns, Mothers, Fathers
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:uu:diva-359870 (URN)10.1016/j.burns.2018.02.005 (DOI)000436791900011 ()29929898 (PubMedID)
Funder
Swedish Research Council, 2010-3033
Available from: 2018-09-07 Created: 2018-09-07 Last updated: 2018-09-07Bibliographically approved
Willebrand, M., Sjöberg, F., Huss, F. & Sveen, J. (2018). Parents' perceived quality of pediatric burn care.. Journal of critical care, 43, 256-259
Open this publication in new window or tab >>Parents' perceived quality of pediatric burn care.
2018 (English)In: Journal of critical care, ISSN 0883-9441, E-ISSN 1557-8615, Vol. 43, p. 256-259Article in journal (Refereed) Published
Abstract [en]

PURPOSE: To describe parents' perceived quality of pediatric burn care and evaluate factors associated with differences in perceived quality among parents.

METHODS: 62 parents of children with burns were recruited on a Swedish national basis 0.8 to 5.6years after the child's injury. Measures were an adaptation of the Quality of Care Indices - Parent questionnaire consisting of 8 subscales and one overall question, the Impact of Event Scale -Revised, Montgomery Åsberg Depression Rating Scale, and Injury-specific fear-avoidance.

RESULTS: Ratings of quality of care were high, especially regarding Staff Attitudes, Medical Treatment, and Caring Processes. Overall satisfaction rated from 1 to 10 was on average 9.1 (SD=1.2). Overall satisfaction and specific indices of Quality of care were not associated with burn severity, parent gender, or parent age. However, Quality of care was associated with current symptoms of posttraumatic stress and depression, and parents of girls expressed being less satisfied with Participation.

CONCLUSIONS: Parents' perceived quality of care is associated with psychological health, but not with characteristics of the child's injury or age. The results suggest that burn care can improve by involving parents of girls more and by being more attentive towards parents who themselves appear stressed or worried.

Keywords
Burns, Care, Child, Pediatric, Quality
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-334009 (URN)10.1016/j.jcrc.2017.08.037 (DOI)000418522800042 ()28946104 (PubMedID)
Funder
Swedish Research Council, 2010-3033
Available from: 2017-11-20 Created: 2017-11-20 Last updated: 2018-01-25Bibliographically approved
Pohlkamp, L., Kreicbergs, U., Prigerson, H. G. & Sveen, J. (2018). Psychometric properties of the Prolonged Grief Disorder-13 (PG-13) in bereaved Swedish parents. Psychiatry Research, 267, 560-565
Open this publication in new window or tab >>Psychometric properties of the Prolonged Grief Disorder-13 (PG-13) in bereaved Swedish parents
2018 (English)In: Psychiatry Research, ISSN 0165-1781, E-ISSN 1872-7123, Vol. 267, p. 560-565Article in journal (Refereed) Published
Abstract [en]

This study aimed to validate the Swedish version of the Prolonged Grief Disorder-13 tool (PG-13) by examining its psychometric properties, including factor structure, discriminant and concurrent validity. The PG-13 was assessed in a sample of Swedish parents who had lost a child to cancer 1-5 years previously. The sample included 225 parents (133 mothers and 92 fathers) with a mean age of 46.02 years (SD = 8.15) and 16.0% met the criteria for Prolonged Grief Disorder (PGD). A principal component analysis was performed, and the results supported a one-factor structure of the PG-13. The PG-13 was shown to have high internal consistency and intelligible associations with concurrent psychological symptoms and grief rumination as well as with known risk factors for PGD. These results indicate satisfactory psychometric properties of the instrument, thus supporting the use of the PG-13 as a valid measure of PGD.

Keywords
Bereavement, Prolonged Grief Disorder, Parents, Pediatric oncology, Validation, Principal component analysis
National Category
Psychiatry Other Medical Sciences not elsewhere specified
Identifiers
urn:nbn:se:uu:diva-368048 (URN)10.1016/j.psychres.2018.06.004 (DOI)000445983700080 ()29982112 (PubMedID)
Funder
Swedish Childhood Cancer Foundation
Available from: 2018-12-07 Created: 2018-12-07 Last updated: 2018-12-07Bibliographically approved
Sveen, J., Bergh Johannesson, K., Cernvall, M. & Arnberg, F. (2018). Trajectories of prolonged grief one to six years after a natural disaster. PLoS ONE, 13(12), Article ID e0209757.
Open this publication in new window or tab >>Trajectories of prolonged grief one to six years after a natural disaster
2018 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 13, no 12, article id e0209757Article in journal (Refereed) Published
Abstract [en]

Background

The long-term trajectories of prolonged grief are poorly understood. The aims were to examine the course of grief among bereaved disaster survivors up to six years post loss and factors predicting worse bereavement outcome. A third aim was to explore differences in grief indicators between trajectories.

Methods

Bereaved Swedish tourists who survived the 2004 Indian Ocean tsunamis responded to surveys including the Inventory of Complicated Grief 1 to 6 years after the disaster. Latent growth mixture modeling was used to identify longitudinal trajectories of grief. Multinomial logistic regression analysis was used to examine predictors of class membership.

Results

Three trajectories were identified: resilient (41% of the sample), recovering (48%), and chronic (11%). The strongest predictor of chronic grief was the loss of one’s child. When examining grief indicators, the chronic trajectory was characterized by not accepting the loss, while yearning was common in all trajectories.

Conclusions

This study highlights the importance of considering how traumatically bereaved individuals can be affected by loss for several years after a disaster, especially after losing one’s child. An inability to accept the loss, more so than yearning, appears to characterize bereaved survivors at risk of a chronic trajectory of grief.

National Category
Psychiatry
Research subject
Psychiatry
Identifiers
urn:nbn:se:uu:diva-372693 (URN)10.1371/journal.pone.0209757 (DOI)000454149400078 ()30576369 (PubMedID)
Funder
Swedish National Board of Health and Welfare, 44676/2012
Available from: 2019-01-09 Created: 2019-01-09 Last updated: 2019-01-15Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-5523-8126

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