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Sveen, Josefin, DocentORCID iD iconorcid.org/0000-0002-5523-8126
Publications (10 of 38) Show all publications
Pohlkamp, L., Kreicbergs, U. & Sveen, J. (2020). Factors During a Child's Illness Are Associated With Levels of Prolonged Grief Symptoms in Bereaved Mothers and Fathers. Journal of Clinical Oncology, 38(2), 137-144
Open this publication in new window or tab >>Factors During a Child's Illness Are Associated With Levels of Prolonged Grief Symptoms in Bereaved Mothers and Fathers
2020 (English)In: Journal of Clinical Oncology, ISSN 0732-183X, E-ISSN 1527-7755, Vol. 38, no 2, p. 137-144Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Previous research shows that bereaved parents are at an increased risk for intense and prolonged grief responses. To offer effective support to parents during a child's cancer treatment and after their child's death, more knowledge is needed about factors related to the child's illness trajectory that may contribute to prolonged grief in bereaved parents and about possible sex differences related to such factors. Therefore, we examined possible contributing factors associated with prolonged grief in cancer-bereaved mothers and fathers 1 to 5 years after their child died of cancer.

METHODS: We studied data from a population-based nationwide survey, including 133 mothers and 92 fathers who had lost a child to cancer 1 to 5 years earlier, using univariable and multiple regression analyses to assess the associations between prolonged grief and possible contributing variables.

RESULTS: The variables associated with lower levels of prolonged grief symptoms for mothers were being able to talk about feelings within the family (P = .00) and trusting that health care professionals made every possible effort to cure the child (P = .01). The statistically significantly associated variables for fathers were having said farewell to the deceased child in the way they wanted (P = .00) and feeling that they had received practical support from health care professionals during the child's illness trajectory (P = .01).

CONCLUSION: We found factors during the illness of children with cancer that contributed to prolonged grief for parents; these were different for mothers and fathers. The results may have implications for design of family bereavement support within pediatric oncology care, including addressing the differing needs of mothers and fathers more effectively.

Place, publisher, year, edition, pages
American Society of Clinical Oncology, 2020
National Category
Psychiatry Cancer and Oncology
Identifiers
urn:nbn:se:uu:diva-401972 (URN)10.1200/JCO.19.01493 (DOI)000508198400005 ()31725342 (PubMedID)
Funder
Swedish Childhood Cancer Foundation
Available from: 2020-01-10 Created: 2020-01-10 Last updated: 2020-03-24Bibliographically approved
Udo, C., Lövgren, M., Sveen, J., Bylund-Grenklo, T., Alvariza, A. & Kreicbergs, U. (2019). A Nationwide Study of Young Adults' Perspectives on Participation in Bereavement Research. Journal of Palliative Medicine, 22(10), 1271-1273
Open this publication in new window or tab >>A Nationwide Study of Young Adults' Perspectives on Participation in Bereavement Research
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2019 (English)In: Journal of Palliative Medicine, ISSN 1096-6218, E-ISSN 1557-7740, Vol. 22, no 10, p. 1271-1273Article in journal (Refereed) Published
Abstract [en]

Background: Young adults represent a minority in research; they are often considered too young or too old for participation. There is sparse information, especially in bereavement research, regarding how this age group perceives research participation and what they consider beneficial or harmful.

Aim: To explore how parentally bereaved and nonbereaved young adults perceive research participation.

Design: Qualitative analysis of free-text comments collected in a Swedish nation-wide survey.

Setting/Participants: Parentally cancer-bereaved and nonbereaved young adults between 18 and 25 years old living in Sweden.

Results: Five categories were identified from the free-text comments, three among the cancer-bereaved: (1) therapeutic to remember the deceased, (2) valuable to help others and improve care, and (3) short-term distressful-long-term beneficial, and two among the nonbereaved: (1) increased reflection and awareness about life, and (2) an opportunity to help others.

Conclusions: It is important to invite young adults to participate in bereavement research. The results suggest that potential harm is minimal and that participating in bereavement research can have a beneficial effect on young adults.

Keywords
bereavement research, comparison group, young adult
National Category
Other Medical Sciences not elsewhere specified
Identifiers
urn:nbn:se:uu:diva-381127 (URN)10.1089/jpm.2018.0630 (DOI)000461788800001 ()30892140 (PubMedID)
Available from: 2019-04-04 Created: 2019-04-04 Last updated: 2019-12-18Bibliographically approved
Weber, M., Alvariza, A., Kreicbergs, U. & Sveen, J. (2019). Adaptation of a Grief and Communication Family Support Intervention for Parentally Bereaved Families in Sweden. Death Studies
Open this publication in new window or tab >>Adaptation of a Grief and Communication Family Support Intervention for Parentally Bereaved Families in Sweden
2019 (English)In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683Article in journal (Refereed) Epub ahead of print
Abstract [en]

This article aims to describe the adaptation of the evidence-based Family Bereavement Program to a Swedish context. Empirical support indicating that family communication is a protective factor for parentally bereaved children was used to motivate the focus of the intervention. Modules from the Family Bereavement Program manual were translated, culturally adapted, and modified to fit a family format. The manual for the Grief and Communication Family Support Intervention was pilot-tested with two families, which resulted in minor modifications being made to the manual. Therapists reported that they could follow the manual and adapt it to children's varying ages.

National Category
Psychiatry Nursing
Identifiers
urn:nbn:se:uu:diva-401974 (URN)10.1080/07481187.2019.1661883 (DOI)31584356 (PubMedID)
Available from: 2020-01-10 Created: 2020-01-10 Last updated: 2020-01-20Bibliographically approved
Nilsson, A., Orwelius, L., Sveen, J., Willebrand, M., Ekselius, L., Gerdin, B. & Sjoberg, F. (2019). Anxiety and depression after burn, not as bad as we think-A nationwide study. Burns, 45(6), 1367-1374
Open this publication in new window or tab >>Anxiety and depression after burn, not as bad as we think-A nationwide study
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2019 (English)In: Burns, ISSN 0305-4179, E-ISSN 1879-1409, Vol. 45, no 6, p. 1367-1374Article in journal (Refereed) Published
Abstract [en]

Objective: A history of psychiatric disorders is more common among patients who have had burns than in the general population. To try and find out the scale of the problem we have assessed self-reported symptoms of anxiety and depression after a burn. Methods: Consecutive patients with burns measuring more than 10% total body surface area or duration of stay in hospital of seven days or more were included. Personal and clinical details about the patients were extracted from the database at each center. Data were collected from the Hospital Anxiety and Depression Scale, as well as Health-Related Quality of Life (HRQoL; Short Form-36, SF-36) and questionnaires about socioeconomic factors. All results were obtained 12 and 24 months after the burn, and compared with those from a reference group. Results: A total of 156 patients responded to the questionnaires. Mean (SD) age and TBSA (%) were 46 (16.4) years and 23.6 (19.2) %, respectively. There were no differences in incidence between the burn and reference groups in anxiety or depression either 12 or 24 months after the burn. Those who reported higher anxiety and depression scores also had consistently poorer HRQoL as assessed by the SF-36. Conclusion: Seen as a group, people who have had burns report anxiety and depression the same range as a reference group. Some patients, however, express more anxiety and depression, and concomitantly poorer HRQoL. These patients should be identified, and offered additional support. (C) 2019 Elsevier Ltd and ISBI. All rights reserved.

Place, publisher, year, edition, pages
ELSEVIER SCI LTD, 2019
Keywords
Burns, Quality of life, Anxiety, Depression, Follow-up studies
National Category
Psychiatry
Identifiers
urn:nbn:se:uu:diva-394054 (URN)10.1016/j.burns.2019.03.014 (DOI)000483339500013 ()31378623 (PubMedID)
Available from: 2019-10-03 Created: 2019-10-03 Last updated: 2019-10-03Bibliographically approved
Pohlkamp, L., Kreicbergs, U. & Sveen, J. (2019). Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study. Psycho-Oncology, 28(7), 1530-1536
Open this publication in new window or tab >>Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
2019 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 28, no 7, p. 1530-1536Article in journal (Refereed) Published
Abstract [en]

Objective To assess differences in prolonged grief, depression, posttraumatic stress, and sleep disturbances in bereaved parents across years since loss (1-5 years) and by gender and to assess potential interactive effects of time since loss and gender on bereavement outcomes. Methods This study examined symptom levels of prolonged grief disorder, depression, posttraumatic stress, and insomnia in bereaved parents. A sample, including 133 mothers and 92 fathers who had lost a child to cancer 1 to 5 years previously, subdivided to five subsamples, one for each year since loss. Analysis of variance (ANOVA) was used to assess differences in symptom levels, related to years since loss, and gender. Results Regardless of how many years had passed since the loss, symptom levels of prolonged grief, depression, posttraumatic stress symptoms, and insomnia were elevated in all subsamples. Mothers showed higher symptom levels of prolonged grief, depression, and posttraumatic stress than fathers. However, no significant interaction effects were found between years since loss and gender on any of the symptom levels. Conclusions Cancer-bereaved mothers and fathers are vulnerable to prolonged grief and psychological symptoms up to 5 years after the death of their child. Findings highlight that bereaved parents may need long-term support, and the results deserve further attention in research and clinical care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
childhood cancer, depression, fathers, mothers, insomnia, pediatric oncology, PGD, posttraumatic stress, prolonged grief
National Category
Other Medical Sciences not elsewhere specified Nursing
Identifiers
urn:nbn:se:uu:diva-390903 (URN)10.1002/pon.5112 (DOI)000474293000021 ()31108000 (PubMedID)
Funder
Swedish Childhood Cancer Foundation, PR2015-0050Swedish Childhood Cancer Foundation, TJ2015-0021
Available from: 2019-08-19 Created: 2019-08-19 Last updated: 2019-08-19Bibliographically approved
Weber, M., Alvariza, A., Kreicbergs, U. & Sveen, J. (2019). Communication in families with minor children following the loss of a parent to cancer. European Journal of Oncology Nursing, 39, 41-46
Open this publication in new window or tab >>Communication in families with minor children following the loss of a parent to cancer
2019 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 39, p. 41-46Article in journal (Refereed) Published
Abstract [en]

Purpose:

Family communication is a known protective factor for minor children's psychological health following the death of a parent, but there is little research describing communication within such families specifically from the perspective of the children. The purpose of this study was therefore to explore communication in parentally bereaved families from the perspective of the children and surviving parent.

Methods:

Interviews with four parents and four children from four families were analyzed using inductive content analysis. Interviews took place in the family's home or at the research center based on the family's wishes 4-14 months after a parent had died. Interviews had an open approach and were based on an interview guide. Each interview was between 60 and 120 min long.

Results:

Four categories emerged which were related to family members' experiences of family communication while adjusting to their new circumstances as bereaved: the importance of open and honest communication in the family; new challenges in the family which affect communication; communicating the need for help; and talking about and remembering the deceased parent.

Conclusions:

This study illuminates the connection between family communication and adjustments to new circumstances following the death of a parent. The results suggest that the relationship between family adjustment and communication may be circular whereby the family's ability to adjust to their new circumstances is affected by how the family communicates. Similarly, family communication may be affected by the family's coping strategies and ability to adjust to their new circumstances.

Keywords
Family communication, Parental death, Bereavement
National Category
Nursing
Identifiers
urn:nbn:se:uu:diva-382259 (URN)10.1016/j.ejon.2019.01.005 (DOI)000462419500006 ()30850137 (PubMedID)
Available from: 2019-04-23 Created: 2019-04-23 Last updated: 2019-04-23Bibliographically approved
Weber, M., Alvariza, A., Kreicbergs, U. & Sveen, J. (2019). Family Communication and Psychological Health in Children and Adolescents Following a Parent's Death From Cancer. Omega, Article ID 30222819859965.
Open this publication in new window or tab >>Family Communication and Psychological Health in Children and Adolescents Following a Parent's Death From Cancer
2019 (English)In: Omega, ISSN 0030-2228, E-ISSN 1541-3764, article id 30222819859965Article in journal (Refereed) Epub ahead of print
Abstract [en]

Parentally bereaved children and adolescents are at risk of developing psychological health problems. Evidence for a correlation between communication and broad measures of psychological health exists in other populations. The aim of this study was to examine associations between family communication and specific aspects of psychological health for children and adolescents following a parent’s death from cancer using parent-proxy and adolescent self-reports. Parent-proxy reports for children and adolescents, and adolescent self-reports for Parent–Adolescent Communication, Strengths and Difficulties Questionnaire, and Prolonged Grief-13 child were analyzed using descriptive statistics and Spearman’s correlation. Parents rated communication as moderate in quality and reported good psychological health for children and adolescents. Adolescent self-reports indicated low-quality communication with their parent and poor psychological health. Significant associations between Parent–Adolescent Communication subscales and Strengths and Difficulties Questionnaire subscales were found for each group. Prolonged grief was associated with emotional problems but not communication for all three groups.

Keywords
childhood bereavement, externalizing problems, family communication, internalizing problems, prolonged grief
National Category
Psychology
Identifiers
urn:nbn:se:uu:diva-401976 (URN)10.1177/0030222819859965 (DOI)31256707 (PubMedID)
Funder
The Kamprad Family Foundation, 20150044
Available from: 2020-01-10 Created: 2020-01-10 Last updated: 2020-01-20Bibliographically approved
Hensler, I., Sveen, J., Cernvall, M. & Arnberg, F. (2019). PTSD Coach Sweden: A Self-Management App for Trauma-Related Symptoms: A RCT study protocol evaluating a self-help app for posttraumatic stress in a Swedish community sample. Paper presented at ESTSS2019 (European Society for Traumatic Stress Studies), Rotterdam, Netherlands, 14-16 June 2019. European Journal of Psychotraumatology, 10(S1), Article ID 4–010.
Open this publication in new window or tab >>PTSD Coach Sweden: A Self-Management App for Trauma-Related Symptoms: A RCT study protocol evaluating a self-help app for posttraumatic stress in a Swedish community sample
2019 (English)In: European Journal of Psychotraumatology, ISSN 2000-8066, E-ISSN 2000-8066, Vol. 10, no S1, article id 4–010Article in journal, Meeting abstract (Other academic) Published
Abstract [en]

Background: Resources to administer evidence-based care for PTSD and trauma-related complications are scarce, especially in particular geographical areas, during mass casualty situations and for individuals with subclinical symptoms as clinics prioritize more severe cases. Effective interventions for PTSD through technical platforms could disseminate information and self-management strategies to decrease individual suffering and societal costs. Assessment at multiple time points can elucidate which aspects of an intervention that are effective, in addition to the evolution of intervention use and well-being over time. 

Objective: Evaluate an app-administered self-help intervention (PTSD Coach Sweden) aiming to reduce and manage PTSD symptoms and other related complications. 

Method: In this trial, 200 participants from Sweden who have experienced a traumatic event in the past two years and who report posttraumatic stress symptoms will be randomized to three months use of the app or waitlist. The primary endpoint is self-rated PTSD symptom severity at three months, with follow-up at six and nine months. Secondary outcomes include depressive symptoms, physical symptoms, functional impairment and health care use. Ecological momentary assessment of health status and use of strategies corresponding to app content is used for 21 days during the first three months.

Results: Lessons learned and recommendations from the preparations of app-based intervention trials are presented. Available data from the primary endpoint are presented. 

Conclusions: App-based interventions hold promise to increase outreach, but further trials are needed. Several challenges introduced when preparing an app-based intervention are discussed.

Keywords
PTSD, posttraumatic stress, app intervention
National Category
Psychiatry
Research subject
Psychiatry; Psychology
Identifiers
urn:nbn:se:uu:diva-391388 (URN)10.1080/20008198.2019.1613837 (DOI)
Conference
ESTSS2019 (European Society for Traumatic Stress Studies), Rotterdam, Netherlands, 14-16 June 2019
Available from: 2019-08-22 Created: 2019-08-22 Last updated: 2020-01-08Bibliographically approved
Sveen, J., Pohlkamp, L., Kreicbergs, U. & Eisma, M. C. (2019). Rumination in bereaved parents: Psychometric evaluation of the Swedish version of the Utrecht Grief Rumination Scale (UGRS). PLoS ONE, 14(3)
Open this publication in new window or tab >>Rumination in bereaved parents: Psychometric evaluation of the Swedish version of the Utrecht Grief Rumination Scale (UGRS)
2019 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 14, no 3Article in journal (Refereed) Published
Abstract [en]

Background

Bereaved parents may be at higher risk to develop persistent, severe and disabling grief, termed prolonged grief. Grief rumination, repetitive thinking about the causes and consequences of the loss, is a malleable cognitive process that maintains prolonged grief. Grief rumination can be measured with the Utrecht Grief Rumination Scale (UGRS). The present study aimed to examine the psychometric properties of the new Swedish version of the UGRS in a sample of bereaved parents.

Methods

A Swedish nationwide postal survey including measures of demographic and loss-related variables, grief rumination (UGRS), and symptoms of prolonged grief, posttraumatic stress, anxiety, depression, and insomnia, was completed by 226 parents (133 mothers and 93 fathers) who lost a child to cancer in the past five years. Psychometric properties of the UGRS were examined through confirmatory factor analyses (CFA), reliability analyses, and assessment of UGRS score associations with symptoms of prolonged grief, posttraumatic stress, depression, anxiety, and insomnia.

Results

The internal consistency of the Swedish UGRS was good. The CFA yielded an acceptable fit for a two-factor hierarchical model with five sub-factors. Grief rumination was positively associated with all psychopathology symptom measures. Higher scores on UGRS were found in parents with possible prolonged grief disorder compared to those without (d=1.47). Moreover, the Swedish UGRS was associated with prolonged grief symptoms over and above loss-related and demographic variables and other psychopathology symptoms.

Conclusions

The Swedish UGRS demonstrated good psychometric properties, which supports its use as a measure to assess grief rumination in Swedish bereaved parents in research and practice.

National Category
Psychiatry
Identifiers
urn:nbn:se:uu:diva-381074 (URN)10.1371/journal.pone.0213152 (DOI)000461573000015 ()30889209 (PubMedID)
Available from: 2019-04-23 Created: 2019-04-23 Last updated: 2019-04-23Bibliographically approved
Lövgren, M., Melin-Johansson, C., Udo, C. & Sveen, J. (2019). Telling the truth to dying children: End-of-life communication with families. Acta Paediatrica, 108(11), 2111-2112
Open this publication in new window or tab >>Telling the truth to dying children: End-of-life communication with families
2019 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 108, no 11, p. 2111-2112Article in journal (Refereed) Published
National Category
Pediatrics
Identifiers
urn:nbn:se:uu:diva-398837 (URN)10.1111/apa.14935 (DOI)000478352000001 ()31299110 (PubMedID)
Funder
Swedish Childhood Cancer Foundation
Available from: 2019-12-11 Created: 2019-12-11 Last updated: 2019-12-11Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-5523-8126

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