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Publications (10 of 13) Show all publications
Scandurra, I., Hägglund, M., Johansen, M., Bergmo, T. & Zanaboni, P. (2017). Impact of Patient Accessible EHRs: An Interactive Workshop to Share Experiences and Explore Evaluation Approaches. In: : . Paper presented at 16th World Congress on Medical and Health Informatics (MedInfo 2017) - Precision Healthcare through Informatics, Hangzhou, China, August 21-25, 2017.
Open this publication in new window or tab >>Impact of Patient Accessible EHRs: An Interactive Workshop to Share Experiences and Explore Evaluation Approaches
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2017 (English)Conference paper, Oral presentation only (Other academic)
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:uu:diva-392237 (URN)
Conference
16th World Congress on Medical and Health Informatics (MedInfo 2017) - Precision Healthcare through Informatics, Hangzhou, China, August 21-25, 2017
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Scandurra, I., Pettersson, M. & Hägglund, M. (2017). When do people read their health record?: analysis of usage data of a national eHealth service giving patients access to their electronic health record. In: : . Paper presented at Informatics for Health 2017, Manchester, UK, April 24-26, 2017.
Open this publication in new window or tab >>When do people read their health record?: analysis of usage data of a national eHealth service giving patients access to their electronic health record
2017 (English)Conference paper, Poster (with or without abstract) (Other academic)
Abstract [en]

Introduction: eHealth services for citizens provide support for patients and families, as well as for healthcare professionals. In Sweden different eHealth services have been developed since the late 1990s and they are now used by millions of users. One of the national eHealth services that provides opportunities for increased participation in care is the Patient Accessible Electronic Health Record (PAEHR). To date (February 2017) over one million citizens (of 10 million inhabitants) have accessed their own electronic health record (EHR). In this study, we describe current usage by analysing log-data from the service. Who are the users, and how and when do they use the service?

Method: Data collection of routinely captured usage data was administered by Inera AB, owner of all Swedish national eHealth services. Data was analyzed through IBM SPSS in accordance with the declaration of Helsinki. Queries for this quantitative study were created based on previously published results regarding concerns often expressed by healthcare professionals (HCP) as well as routinely captured log-data. Descriptive usage statistics were analysed towards such HCP concerns, e.g. increased workload due to worried patients reading but not understanding the PAEHR content.

Results: Current status of the Swedish PAEHR is presented, e.g. number of users, demographic data (age, gender) in relation to log-in statistics. Regarding log-ins, first-time users and unique hits show that attention by national media has an impact a news cast resulted in 31,000 logged in compared to a week day average of 20,000. To date more than 1 million citizens have chosen to log in and the numbers are increasing. A newly connected region (Örebro) has an average of 500 new users a day. This can be compared to the first region (Uppsala) which during the first year (2012- 2013) had approx. 100 new users a day, although the strategy then was not to advertise the service. In total 10,000 to 13,000 new users log in every day nationally. More women than men log in and their mean age are 23-32 years. The older the users get the less they use the PAEHR, however some users are older than 93 years. During weekends the activity decreases, as opposed to HCP expectations. More often, users log in on week days, e.g. on Monday morning.

Discussion: Usage statistics were related to concerns of HCP, which seem to have little resemblance to reality. One concern was that the service would not provide benefit for patients, here contradicted by the increasing number of both first-time and recurrent users. However, such indicators need to be further analysed. Paper records and PAEHR usage are difficult to compare, due to lack of statistics regarding printout reading. Usage comparisons between PAEHR solutions of different counties would however be interesting.

Conclusion: Recurrent concerns of mainly HCP seem to be contradicted by actual usage by patients. This may lead to a decreased controversy of how PAEHR is experienced by patients and HCP. Knowledge about how users actually use PAEHR may also improve the service as such.

National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:uu:diva-392238 (URN)
Conference
Informatics for Health 2017, Manchester, UK, April 24-26, 2017
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Hägglund, M., Heinze, O., Pobiruchin, M., Pohl, A.-L., Scandurra, I., Schreiweis, B. & Wiesner, M. (2016). Opportunities and Challenges of Consumer-centric eHealth Services: An Interdisciplinary Workshop. In: : . Paper presented at HEC 2016, München, Germany, August 28 - September 2, 2016.
Open this publication in new window or tab >>Opportunities and Challenges of Consumer-centric eHealth Services: An Interdisciplinary Workshop
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2016 (English)Conference paper, Oral presentation with published abstract (Other academic)
National Category
Information Systems, Social aspects
Identifiers
urn:nbn:se:uu:diva-392240 (URN)
Conference
HEC 2016, München, Germany, August 28 - September 2, 2016
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Scandurra, I. & Hägglund, M. (2015). Developing and implementing national eHealth services for patients: an interactive exploration of challenges and potential solutions. In: Driving Quality in Informatics: Fulfilling the Promise. Paper presented at An international conference addressing Information Technology and Communication in Health (ITCH) 2015, Victoria, BC, Canada, February 26-March 1, 2015.
Open this publication in new window or tab >>Developing and implementing national eHealth services for patients: an interactive exploration of challenges and potential solutions
2015 (English)In: Driving Quality in Informatics: Fulfilling the Promise, 2015Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Developing and Implementing National eHealth Services for Patients – An Interactive Exploration of Challenges and Potential Solutions Isabella Scandurra, Informatics, School of Business, Örebro University, Sweden; Maria Hägglund, Health Informatics Centre, Karolinska Institutet, Sweden As a means to address current challenges for and demands on health and social care, e.g. quality of care and patient empowerment, information and communication technologies (ICT) are being used to supply citizens with various health services. One example is to give patients web access to their own electronic health records (EHRs). In this workshop, we will provide examples and experiences from ongoing work in Sweden to develop and implement eHealth services for citizens; SUSTAINS [1] and My Care Pathways [2].The workshop participants will be engaged in interactive discussions regarding challenges and potential solutions based on their experiences from different contexts. The aim of the workshop is twofold: 1. To explore challenges for developing and implementing e-health systems for citizens to access their patient information and other e-health services online. 2. To suggest strategies and activities that could provide potential solutions to the identified challenge. Workshop structure The disposition of the workshop is as follows: a 90 minute session, a 15 minutes break and another 75 minute session. The two sessions will contain both presentations from the workshop organizers and interactive discussions and work in smaller groups to engage all participants and share experiences from different contexts. This disposition requires active participants to generate new ideas and knowledge through discussions and reflections where all participants contribute with their knowledge and understanding of the problem. The topic is expected to engage a lot of people, maybe not only those present at the workshop or at the conference. The workshop organizers will encourage live tweeting during the sessions and invite followers. 

National Category
Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:uu:diva-392244 (URN)
Conference
An international conference addressing Information Technology and Communication in Health (ITCH) 2015, Victoria, BC, Canada, February 26-March 1, 2015
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Hägglund, M., Åhlfeldt, R.-M., Koch, S., Ålander, T. & Scandurra, I. (2015). Developing and implementing national eHealth services for patients: an interactive exploration of challenges andpotential solutions. In: Ronald Cornet, Lăcrămioara Stoicu-Tivadar, Alexander Hörbst, Carlos Luis Parra Calderón, Stig Kjær Andersen, Mira Hercigonja-Szekeres (Ed.), Digital Healthcare Empowering Europeans: Proceedings of MIE2015. Paper presented at Workshop at 26th Medical Informatics in Europe Conference, MIE 2015, Madrid, May 27th-29th 2015.. IOS Press
Open this publication in new window or tab >>Developing and implementing national eHealth services for patients: an interactive exploration of challenges andpotential solutions
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2015 (English)In: Digital Healthcare Empowering Europeans: Proceedings of MIE2015 / [ed] Ronald Cornet, Lăcrămioara Stoicu-Tivadar, Alexander Hörbst, Carlos Luis Parra Calderón, Stig Kjær Andersen, Mira Hercigonja-Szekeres, IOS Press , 2015Conference paper, Published paper (Refereed)
Abstract [en]

In this workshop, examples and experiences from ongoing work todevelop and implement eHealth services for citizens will be provided. Challengesand potential solutions based on different international contexts will be discussedin interactive sessions. The results will form a report suggesting strategies andactivities that could provide potential solutions to the identified challenges.

Place, publisher, year, edition, pages
IOS Press, 2015
Series
Studies in Health Technology and Informatics, ISSN 0926-9630 ; 210
Keywords
Patient access to records, Electronic health records, Professional-Patient relations, Patient empowerment
National Category
Information Systems
Research subject
Technology; Information Systems
Identifiers
urn:nbn:se:uu:diva-392243 (URN)
Conference
Workshop at 26th Medical Informatics in Europe Conference, MIE 2015, Madrid, May 27th-29th 2015.
Projects
DOME
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-02Bibliographically approved
Scandurra, I., Hägglund, M., Åhlfeldt, R.-M. & Persson, A. (2013). Building usability into National eHealth strategies: An Action Research Approach. In: Action Research, Interventions, and Participatory Design: . Paper presented at 4th international workshop on Infrastructures for Healthcare (IHC): Action Research, Interventions, and Participatory Design,13-14 June, Tromsø, Norway, 2013.
Open this publication in new window or tab >>Building usability into National eHealth strategies: An Action Research Approach
2013 (English)In: Action Research, Interventions, and Participatory Design, 2013Conference paper, Published paper (Refereed)
National Category
Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:uu:diva-392249 (URN)
Conference
4th international workshop on Infrastructures for Healthcare (IHC): Action Research, Interventions, and Participatory Design,13-14 June, Tromsø, Norway, 2013
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Scandurra, I., Åhlfeldt, R.-M., Persson, A. & Hägglund, M. (2013). Challenges in Applying a Participatory Approach in a Nation-wide Project -The Case of ‘Usability of Swedish eHealth Systems 2013’. In: Torkil Clemmensen, Bengt Sandblad, Arminda Lopes & Jose Abdelnour-Nocera (Ed.), Past History and Future Challenges of Human Work Interaction Design (HWID): Generating cross-domain knowledge about connecting work analysis and interaction design. Paper presented at INTERACT 2013 – 14th IFIP TC13 Conference on Human-Computer Interaction, Cape Town, South Africa, September 2013 (pp. 33-38). Cape Town: INTERACT
Open this publication in new window or tab >>Challenges in Applying a Participatory Approach in a Nation-wide Project -The Case of ‘Usability of Swedish eHealth Systems 2013’
2013 (English)In: Past History and Future Challenges of Human Work Interaction Design (HWID): Generating cross-domain knowledge about connecting work analysis and interaction design / [ed] Torkil Clemmensen, Bengt Sandblad, Arminda Lopes & Jose Abdelnour-Nocera, Cape Town: INTERACT , 2013, p. 33-38Conference paper, Published paper (Refereed)
Abstract [en]

Many healthcare organizations are currently committed to organizational change and quality improvement projects. Unfortunately, little effort is put into health information system development according to usability requirements and methodology, leading to bottlenecks in the eHealth systems when implemented into daily practice. This paper presents the experiences of applying a participatory approach in a nation-wide project. The aim of this national initiative was to build usability of eHealth systems into the Swedish national eHealth strategy and its action plan to ensure impact on practice. Action researchers within the health informatics domain collaborated with representatives of different care professions to propose high-priority changes necessary to improve the usability of health information systems. Reflections from the first phase of this initiative are further explored in terms of methodological challenges and recommendations, whereof one recommendation is to increase the use of HI-U specialists – health informaticians with usability and human work interaction design expertise within national and local eHealth development.

Place, publisher, year, edition, pages
Cape Town: INTERACT, 2013
Series
Workshop Proceedings Series of the INTERACT 2013 Conference
Keywords
Participatory design, human-computer interaction, nation-wide deployment, eHealth strategy, future workshop, user representatives
National Category
Computer and Information Sciences
Research subject
Technology
Identifiers
urn:nbn:se:uu:diva-392247 (URN)978-0-620-58037-3 (ISBN)
Conference
INTERACT 2013 – 14th IFIP TC13 Conference on Human-Computer Interaction, Cape Town, South Africa, September 2013
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Hägglund, M. & Scandurra, I. (2011). Does user centred design work in homecare for elderly?: a retrospective on the OLD@HOME case. Paper presented at International Congress on Telehealth and Telecare, London, UK, March 2011. International Journal of Integrated Care, 11
Open this publication in new window or tab >>Does user centred design work in homecare for elderly?: a retrospective on the OLD@HOME case
2011 (English)In: International Journal of Integrated Care, ISSN 1568-4156, E-ISSN 1568-4156, Vol. 11Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Introduction: Mobile information and communication technology (ICT) has been suggested to improve collaboration in integrated homecare, yet, few successful implementations are available. User centred design (UCD) can improve the usefulness of ICT, however, it is often claimed to be expensive and difficult to use in healthcare. In the action research project OLD@HOME (Sweden 2002–2005) a user centred approach was adapted to the specific context of integrated homecare for elderly.

Aim: To revisit OLD@HOME and explore what methodological adjustments were needed to adapt UCD to integrated homecare of elderly, and what the long-term effects of using UCD were.

Results: Our collaborative design method included all stakeholders and enabled development of both new work situations and new tools. Five years after implementation, the system is still used by home help service personnel, for both homecare- and office-based work, as it provides ubiquitous access to information and communication. Technical support is rarely needed; experienced users handle occurring problems, training and introduction of new users.

Conclusions: We consider the development method a key factor for the OLD@HOME system’s success as it enabled the design of a homecare system that is not only easy to use, but adapted to the context of integrated homecare for elderly

Place, publisher, year, edition, pages
Utrecht: Igitur, 2011
Keywords
elderly, homecare, mobile information and communication technology
National Category
Computer Sciences Medical and Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:uu:diva-392253 (URN)10.5334/ijic.731 (DOI)000312005400042 ()
Conference
International Congress on Telehealth and Telecare, London, UK, March 2011
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Scandurra, I. & Hägglund, M. (2009). An ICT development method containing Continuous User Validation improves the entire care process AND the individual work situation. In: : . Paper presented at International Network of Integrated Care.
Open this publication in new window or tab >>An ICT development method containing Continuous User Validation improves the entire care process AND the individual work situation
2009 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Introduction: Integrated care involves different professionals, belonging to different care provider organizations and requires immediate and ubiquitous access to patient-oriented information, supporting an integrated view on the care process.

Purpose: To present a method for development of usable and work process-oriented information and communication technology (ICT) systems for integrated care.

Theory and method: Based on Human-computer Interaction Science and in particular Participatory Design, we present a new collaborative design method in the context of health information systems (HIS) development. This method implies a thorough analysis of the entire interdisciplinary cooperative work and a transformation of the results into technical specifications, via user validated scenarios, prototypes and use cases, ultimately leading to the development of appropriate ICT for the variety of occurring work situations for different user groups, or professions, in integrated care.

Results and conclusions: Application of the method in homecare of the elderly resulted in an HIS that was well adapted to the intended user groups. Conducted in multi-disciplinary seminars, the method captured and validated user needs and system requirements for different professionals, work situations, and environments not only for current work; it also aimed to improve collaboration in future (ICT supported) work processes. A holistic view of the entire care process was obtained and supported through different views of the HIS for different user groups, resulting in improved work in the entire care process as well as for each collaborating profession.

Series
international journal of integrated care, ISSN 1568-4156 ; suppl. vol. 9 (2009)
Keywords
ICT development method, participatory design, interdisciplinary cooperative work, user validation
National Category
Health Sciences
Research subject
Informatics
Identifiers
urn:nbn:se:uu:diva-392255 (URN)
Conference
International Network of Integrated Care
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Hägglund, M. & Scandurra, I. (2008). Empowering patients and relatives in elderly care by information access. In: : . Paper presented at 6th International Conference on ICT.
Open this publication in new window or tab >>Empowering patients and relatives in elderly care by information access
2008 (English)Conference paper, Published paper (Refereed)
National Category
Health Sciences
Research subject
Medical Informatics
Identifiers
urn:nbn:se:uu:diva-392256 (URN)
Conference
6th International Conference on ICT
Available from: 2019-09-01 Created: 2019-09-01 Last updated: 2019-09-01
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-2597-1079

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