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Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities
Uppsala universitet, Medicinska och farmaceutiska vetenskapsområdet, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centrum för klinisk forskning, Västerås. Lund Univ, Dept Clin Sci Lund, Orthopaed, S-22185 Lund, Sweden.ORCID-id: 0000-0003-1711-8489
Oslo Univ Hosp, Dept Clin Neurosci Children, Oslo, Norway;Oslo Municipal, Oslo, Norway.
Oslo Univ Hosp, Dept Clin Neurosci Children, Cerebral Palsy Follow Up Program CPOP, Oslo, Norway.
Uppsala universitet, Medicinska och farmaceutiska vetenskapsområdet, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centrum för klinisk forskning, Västerås. Uppsala Univ, Ctr Clin Res Vasteras, Vasteras, Sweden;Karolinska Inst, Dept Med, Solna, Sweden.
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2019 (engelsk)Inngår i: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 41, nr 2, s. 212-218Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Purpose: To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP).

Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I-V for children born 2000-2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test-retest reliability (n = 64), and Cronbach's alpha was calculated as an indicator of internal consistency.

Results: The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p < 0.05). Test-retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72-0.92 for the domain scores. Cronbach's alpha was 0.96 for the total score and 0.83-0.96 for the domain scores.

Conclusions: The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life.

sted, utgiver, år, opplag, sider
2019. Vol. 41, nr 2, s. 212-218
Emneord [en]
Cerebral palsy, quality of life, GMFCS, CPCHILD, validity, reliability
HSV kategori
Identifikatorer
URN: urn:nbn:se:uu:diva-378209DOI: 10.1080/09638288.2017.1378930ISI: 000458323300011PubMedID: 28927310OAI: oai:DiVA.org:uu-378209DiVA, id: diva2:1294208
Tilgjengelig fra: 2019-03-06 Laget: 2019-03-06 Sist oppdatert: 2019-03-06bibliografisk kontrollert

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