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Being a family member of a burn survivor –: Experiences and needs
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, University Hospital. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, University Hospital.
Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden The Burn Center, Department of Hand and Plastic Surgery, Linköping University Hospital, Linköping, Sweden.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, University Hospital. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences.
2018 (English)In: Burns Open, ISSN 2468-9122, Vol. 2, no 4, p. 193-198Article in journal (Refereed) Published
Abstract [en]

Background

Family members are important in the recovery process of persons with severe burns; however, few previous studies have focused on how this group experiences care and rehabilitation.

Objective

To explore family members’ experiences and needs, during the time in hospital and after discharge.

Methodology

Explorative study with a qualitative descriptive design. Ten semi-structured interviews with family members of injured persons treated at the national burn centres were recorded digitally, transcribed verbatim, and analysed using content analysis.

Findings

Five categories were related to experiences during care: Experiencing excellent treatment and support, Experiencing mistrust and a rejecting attitude, Feelings of chaos and shock, Being the hub of the family network, Feeling hope and thankfulness. Three categories were related to experiences during rehabilitation: Ambiguous feelings, Multifaceted support and Handling the situation.

Conclusion

The experiences of the time in hospital and during rehabilitation are individual and comprise a mixture of positive and negative experiences and a diversity of needs. The results suggest that healthcare professionals should be proactive and identify specific needs for support as well as provide individualized treatment of family members.

Place, publisher, year, edition, pages
Elsevier , 2018. Vol. 2, no 4, p. 193-198
Keywords [en]
Burns, Critical care, Family centred care, Family members, Needs, Experiences
National Category
Nursing
Identifiers
URN: urn:nbn:se:uu:diva-367302DOI: 10.1016/j.burnso.2018.07.001OAI: oai:DiVA.org:uu-367302DiVA, id: diva2:1266919
Conference
2018/11/29
Available from: 2018-11-29 Created: 2018-11-29 Last updated: 2019-01-23Bibliographically approved

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Bäckström, JosefinWillebrand, MimmieHaglund, Kristina

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