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The Global State of the Genetic Counseling Profession
Univ Philippines Manila, Inst Human Genet, NIH, Manila, Philippines.
KASCH, King Abdulaziz Med City, Riyadh, Saudi Arabia.
Univ Sydney, Fac Med & Hlth, Northern Clin Sch, Sydney, NSW, Australia.
Maastricht Univ, Dept Clin Genet, Med Ctr, Maastricht, Netherlands.ORCID iD: 0000-0002-0065-080X
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2019 (English)In: European Journal of Human Genetics, ISSN 1018-4813, E-ISSN 1476-5438, Vol. 27, no 2, p. 183-197Article, review/survey (Refereed) Published
Abstract [en]

The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

Place, publisher, year, edition, pages
NATURE PUBLISHING GROUP , 2019. Vol. 27, no 2, p. 183-197
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Medical Genetics
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URN: urn:nbn:se:uu:diva-377106DOI: 10.1038/s41431-018-0252-xISI: 000455983900002PubMedID: 30291341OAI: oai:DiVA.org:uu-377106DiVA, id: diva2:1289706
Available from: 2019-02-18 Created: 2019-02-18 Last updated: 2019-02-18Bibliographically approved

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Ingvoldstad, Charlotta

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Caanen, BeppyCordier, ChristopheIngvoldstad, CharlottaPaneque, Milena
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Lifestyle and rehabilitation in long term illnessDepartment of Women's and Children's Health
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