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Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies
Applied Research Division for Cognitive and Psychological Science, European Institute of Oncology, Milan, Italy; Discipline of Paediatrics, School of Women's and Children's Health, University of New South Wales, Kensington, New South Wales, Australia.
Department of Medical Psychology—Academic Medical Center, University of Amsterdam, Amsterdam, the Netherlands.
Applied Research Division for Cognitive and Psychological Science, European Institute of Oncology, Milan, Italy; Department of Oncology and Hemato-oncology, University of Milan, Milan, Italy.
Applied Research Division for Cognitive and Psychological Science, European Institute of Oncology, Milan, Italy; Department of Oncology and Hemato-oncology, University of Milan, Milan, Italy.
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2019 (English)In: Value in Health, ISSN 1098-3015, E-ISSN 1524-4733, Vol. 22, no 4, p. 491-501Article, review/survey (Refereed) Published
Abstract [en]

Background

Research has been mainly focused on how to elicit patient preferences, with less attention on why patients form certain preferences.

Objectives

To assess which psychological instruments are currently used and which psychological constructs are known to have an impact on patients' preferences and health-related decisions including the formation of preferences and preference heterogeneity.

Methods

A systematic database search was undertaken to identify relevant studies. From the selected studies, the following information was extracted: study objectives, study population, design, psychological dimensions investigated, and instruments used to measure psychological variables.

Results

Thirty-three studies were identified that described the association between a psychological construct, measured using a validated instrument, and patients' preferences or health-related decisions. We identified 33 psychological instruments and 18 constructs, and categorized the instruments into 5 groups, namely, motivational factors, cognitive factors, individual differences, emotion and mood, and health beliefs.

Conclusions

This review provides an overview of the psychological factors and related instruments in the context of patients' preferences and decisions in healthcaresettings. Our results indicate that measures of health literacy, numeracy, and locus of control have an impact on health-related preferences and decisions. Within the category of constructs that could explain preference and decision heterogeneity, health locus of control is a strong predictor of decisions in several healthcare contexts and is useful to consider when designing a patient preference study. Future research should continue to explore the association of psychological constructs with preference formation and heterogeneity to build on these initial recommendations.

Place, publisher, year, edition, pages
2019. Vol. 22, no 4, p. 491-501
Keywords [en]
decision making, instruments, measurements, patient preference, psychological variables, stated preferences
National Category
Pharmaceutical Sciences
Research subject
Social Pharmacy
Identifiers
URN: urn:nbn:se:uu:diva-381724DOI: 10.1016/j.jval.2018.12.007ISI: 000463876900014PubMedID: 30975401OAI: oai:DiVA.org:uu-381724DiVA, id: diva2:1304550
Projects
IMI-PREFER
Funder
EU, Horizon 2020, 115966Available from: 2019-04-12 Created: 2019-04-12 Last updated: 2019-05-03Bibliographically approved

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Veldwijk, JorienKihlbom, Ulrik

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