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Written narratives from immigrants following a prenatal diagnosis: qualitative exploratory study
Uppsala universitet, Medicinska och farmaceutiska vetenskapsområdet, Medicinska fakulteten, Institutionen för kvinnors och barns hälsa, Forskargrupper (Inst. för kvinnor och barns hälsa), Klinisk psykologi i hälso- och sjukvård. Sophiahemmet Univ, Box 5605, SE-11486 Stockholm, Sweden.ORCID-id: 0000-0003-4141-8692
Uppsala universitet, Medicinska och farmaceutiska vetenskapsområdet, Medicinska fakulteten, Institutionen för kvinnors och barns hälsa.
Uppsala universitet, Medicinska och farmaceutiska vetenskapsområdet, Medicinska fakulteten, Institutionen för kvinnors och barns hälsa, Forskargrupper (Inst. för kvinnor och barns hälsa), Klinisk psykologi i hälso- och sjukvård. Ersta Skondal Bracke Univ Coll, Dept Hlth Care Sci, Stockholm, Sweden.ORCID-id: 0000-0001-5104-1281
2019 (engelsk)Inngår i: BMC Pregnancy and Childbirth, ISSN 1471-2393, E-ISSN 1471-2393, Vol. 19, artikkel-id 154Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Background

Expectant parents often have optimistic expectations of the obstetric ultrasound examination and are unprepared for a diagnosis of foetal anomaly. Research that gives voice to the experiences of immigrants faced with a prenatal diagnosis is scarce, and there is a need for more exploratory research that provides insights into the experiences of these persons. The aim of this study was to explore narratives of experiences of immigrants with Arabic or Sorani interpreter needs when presented with a prenatal diagnosis of foetal anomaly.

Methods

A web-based tool with open-ended questions was distributed via Arabic and Kurdish non-profit associations and general women's associations in Sweden. Responses were received from six women and analysed with qualitative content analysis.

Results

The analysis resulted in three themes: (1) an unexpected hurricane of emotions, (2) trying to understand the situation though information in an unfamiliar language, and (3) being cared for in a country with accessible obstetric care and where induced abortion is legal.

Conclusions

Immigrant women described an unexpected personal tragedy when faced with a prenatal diagnosis of foetal anomaly, and emphasised the importance of respectful and empathic psychological support. Their experiences of insufficient and incomprehensible information call attention to the importance of tailored approaches and the use of adequate medical interpreting services. There is a need for more descriptive studies that investigate decision-making and preparedness for induced abortion among immigrants faced with a prenatal diagnosis.

sted, utgiver, år, opplag, sider
2019. Vol. 19, artikkel-id 154
Emneord [en]
Consumer health information, Counselling, Immigrants, Prenatal diagnosis, Support
HSV kategori
Identifikatorer
URN: urn:nbn:se:uu:diva-384074DOI: 10.1186/s12884-019-2292-9ISI: 000467218600004PubMedID: 31060526OAI: oai:DiVA.org:uu-384074DiVA, id: diva2:1318777
Tilgjengelig fra: 2019-05-28 Laget: 2019-05-28 Sist oppdatert: 2019-05-28bibliografisk kontrollert

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