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Parents experiences of feeding their extremely preterm children during the first 2‐3 years – A qualitative study
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Blom Johansson: Speech-Language Pathology. KOM‐X, County Council of Gävleborg, Region Hospital, Gävle, Sweden.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Disciplinary Domain of Medicine and Pharmacy, research centers etc., Centre for Research and Development, Gävleborg. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Blom Johansson: Speech-Language Pathology. Speech Pathology Department, Gävle Hospital, Gävle, Sweden.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Perinatal, Neonatal and Pediatric Cardiology Research. Neonatal Intensive Care Unit, University Hospital, Uppsala, Sweden.ORCID iD: 0000-0002-8413-9274
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Perinatal, Neonatal and Pediatric Cardiology Research. Neonatal Intensive Care Unit, University Hospital, Uppsala, Sweden.ORCID iD: 0000-0001-5955-1278
2020 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 109, no 5, p. 976-981Article in journal (Refereed) Published
Abstract [en]

Aim To describe parents of extremely preterm children experiences regarding feeding of their children during the first 3 years of the child's life. Methods This is a qualitative study involving interviews conducted with 12 parents of nine children who had been cared for at one neonatal intensive care unit in Sweden. The interviews were conducted between May and September 2018; the data were analysed using qualitative content analysis. Results All parents experienced some difficulties with their child's eating development and described feeding their child as sometimes both difficult and frustrating. Variation in when these difficulties arose made it hard for the parents to obtain the individual support they wanted and needed. Parents experienced a need for more support - from both staff members and parents with similar experiences - during and after their child's stay at the NICU. Conclusion All parents participating in the study experienced difficulties during some phase of their child's feeding development. They expressed the need for more specialised support both during and after their child's time at the hospital.

Place, publisher, year, edition, pages
Wiley , 2020. Vol. 109, no 5, p. 976-981
Keywords [en]
dysphagia, extremely preterm infants, feeding difficulties, neonatal intensive care unit, parental experiences
National Category
Nursing Pediatrics
Research subject
Pediatrics
Identifiers
URN: urn:nbn:se:uu:diva-400399DOI: 10.1111/apa.15060ISI: 000493289900001PubMedID: 31621108OAI: oai:DiVA.org:uu-400399DiVA, id: diva2:1381175
Available from: 2019-12-20 Created: 2019-12-20 Last updated: 2021-03-26Bibliographically approved

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Gonzalez Lindh, MargaretaAhlsson, FredrikThernström Blomqvist, Ylva

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Blom Johansson: Speech-Language PathologyCentre for Research and Development, GävleborgPerinatal, Neonatal and Pediatric Cardiology Research
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