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Data Portability in Health Research and Biobanking
Inserm, Toulouse, France; Université Paul Sabatier Toulouse, France; US13, Infrastructure Biobanques, CS ELSI, Inserm, Paris, France; BBMRI-ERIC, Graz, Austria..
University of Turku, Finland; Hospital District of Southwest Finland; Finnish Biobank Cooperative FINBB; BBMRI-ERIC, Graz, Austria.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics. Biomedical Research Foundation of the Academy of Athens, Greece; Hellenic Health Foundation, Athens, Greece; BBMRI-ERIC, Graz, Austria.
Julius Center for Health Sciences and Primary Care, Department of Medical Humanities, University Medical Center Utrecht, The Netherlands.
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2018 (English)In: European Data Protection Law Review, ISSN 2364-2831, Vol. 4, no 3, p. 296-307Article in journal (Refereed) Published
Abstract [en]

This article examines the content of data portability right (II), operationalisation of data portability in health research context and related challenges (III) by considering both GDPR provisions and special Guidelines from the European Data Protection Board (ex-Article 29 Data Protection Working Party). We provide in depth analysis of the provisions and tables for easing the identification of potential implementation of data portability in health research contexts.

Place, publisher, year, edition, pages
2018. Vol. 4, no 3, p. 296-307
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Law and Society
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URN: urn:nbn:se:uu:diva-420420DOI: 10.21552/edpl/2018/3/8OAI: oai:DiVA.org:uu-420420DiVA, id: diva2:1470702
Available from: 2020-09-25 Created: 2020-09-25 Last updated: 2020-11-10Bibliographically approved

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