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When all I wanted was to hold my baby-The experiences of parents of infants who received therapeutic hypothermia
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health. Univ Childrens Hosp, Neonatal Intens Care Unit, Uppsala, Sweden.;Uppsala Univ, Dept Womens & Childrens Hlth, S-75185 Uppsala, Sweden..ORCID iD: 0000-0003-2669-279X
Univ Childrens Hosp, Neonatal Intens Care Unit, Uppsala, Sweden..
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Perinatal, Neonatal and Pediatric Cardiology Research. Univ Childrens Hosp, Neonatal Intens Care Unit, Uppsala, Sweden.;Uppsala Univ, Dept Womens & Childrens Hlth, S-75185 Uppsala, Sweden..ORCID iD: 0000-0003-3498-6069
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Perinatal, Neonatal and Pediatric Cardiology Research. Univ Childrens Hosp, Neonatal Intens Care Unit, Uppsala, Sweden.;Uppsala Univ, Dept Womens & Childrens Hlth, S-75185 Uppsala, Sweden..ORCID iD: 0000-0002-9510-048x
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2021 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 110, no 2, p. 480-486Article in journal (Refereed) Published
Abstract [en]

Aim The knowledge is limited about how parents experience the time when their infant is receiving therapeutic hypothermia (TH) after severe perinatal asphyxia. The aim of this study was to explore parents' experience of closeness and involvement in their infant's care while in the neonatal intensive care unit (NICU) with their newborn undergoing TH. Methods Face-to-face, semi-structured interviews were conducted with parents (n = 11) whose infants (n = 8, aged 3-5 years at the time of the study) underwent TH at a level III Swedish NICU during 2013-2016. The interviews were analysed using qualitative content analysis. Results All the parents shared the trauma of being both physically and psychologically separated from their infant. They all described a need for information and emotional support, and reported that the NICU staff had influenced the extent to which they as parents had been able to be near and actively participate in the care. Parents described the wish to be closer to their infant and to be more actively involved in their infant's care. Conclusion Strategies to enable parent-infant closeness and active guidance from staff might help alleviate the emotional stress of parents and promote their participation during TH.

Place, publisher, year, edition, pages
WILEY John Wiley & Sons, 2021. Vol. 110, no 2, p. 480-486
Keywords [en]
closeness, neonatal intensive care, parental involvement, parental presence, perinatal asphyxia, therapeutic hypothermia treatment
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:uu:diva-439260DOI: 10.1111/apa.15431ISI: 000551470200001PubMedID: 32564441OAI: oai:DiVA.org:uu-439260DiVA, id: diva2:1541339
Available from: 2021-03-31 Created: 2021-03-31 Last updated: 2024-01-15Bibliographically approved

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Bäcke, PyrolaHellström-Westas, LenaÅgren, JohanThernström Blomqvist, Ylva

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