Logo: to the web site of Uppsala University

uu.sePublications from Uppsala University
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Law, Department of Law.ORCID iD: 0000-0002-5621-8485
2021 (English)In: BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, ISSN 2284-4503, no 1, p. 223-250Article in journal (Refereed) Published
Abstract [en]

This article sheds a light on how the data protection requirements enshrined in the General Data Protection Regulation (GDPR) relate to shaping genetic privacy in the context of a complex and integrated genetic testing enterprise. It suggests that the informational dimension of genetic privacy in the era of data protection could be described as a sphere of controlled access. Given that the GDPR does not prescribe quantitative or contextual limitations relating to access once the applicable requirements are met, one could argue that there are good preconditions for the field to head in the direction of genetic transparency. This puts on the agenda the questions of what challenges this could bring and whether adequate mechanisms exist to deal with them.

Place, publisher, year, edition, pages
UNIV TRENTO, FAC LAW , 2021. no 1, p. 223-250
Keywords [en]
Genetic data protection, genetic privacy, genetic testing, scientific publication, scientific research
National Category
Law and Society
Identifiers
URN: urn:nbn:se:uu:diva-444782DOI: 10.15168/2284-4503-783ISI: 000652352100018OAI: oai:DiVA.org:uu-444782DiVA, id: diva2:1564195
Part of project
Decision-making for children in a state of medical indeterminacy, Swedish Research Council
Funder
Swedish Research Council, 2017-02992Available from: 2021-06-11 Created: 2021-06-11 Last updated: 2022-09-06Bibliographically approved

Open Access in DiVA

fulltext(391 kB)244 downloads
File information
File name FULLTEXT01.pdfFile size 391 kBChecksum SHA-512
0ab1ec0bf84a4f4c850a6b5077f604b971e7d7925ed0a461a00c03536a8fa29eeb6e6ce7ce0c31a162304ac0eef9ec70d0a8df64f6aff97f8375595ae0c59ad6
Type fulltextMimetype application/pdf

Other links

Publisher's full text

Authority records

Slokenberga, Santa

Search in DiVA

By author/editor
Slokenberga, Santa
By organisation
Department of Law
Law and Society

Search outside of DiVA

GoogleGoogle Scholar
Total: 245 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
urn-nbn

Altmetric score

doi
urn-nbn
Total: 174 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf