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Scientific research regime 2.0?: How the proposed EHDS Regulation may change the GDPR Research Regime
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Law, Department of Law.ORCID iD: 0000-0002-5621-8485
2022 (English)In: Technology and regulation, E-ISSN 2666-139X, p. 135-147Article in journal (Refereed) Published
Abstract [en]

The proposed European Health Data Space regulation (the proposed EHDS regulation) intends to facilitate the secondary use of electronic health data for scientific research purposes. The mechanism that the proposal contains will co-exist with the scientific research regime that has been established under the General Data Protection Regulation. This article examines how the proposed EHDS regulation promises to transform the EU scientific research regime and protection of a data subject in scientific research. This paper shows that a scientific research regime 2.0 is put forward, where sharing is enhanced at the cost of self-determination of the individual and without resolving many of the challenges that emerged under the GDPR.

Place, publisher, year, edition, pages
Open Press Tilburg University , 2022. p. 135-147
Keywords [en]
health data, genetic data, scientific research, GDPR scientific research regime, secondary use
National Category
Social Sciences Law
Research subject
Medical Law
Identifiers
URN: urn:nbn:se:uu:diva-493103DOI: 10.26116/techreg.2022.014OAI: oai:DiVA.org:uu-493103DiVA, id: diva2:1725848
Available from: 2023-01-11 Created: 2023-01-11 Last updated: 2023-01-19Bibliographically approved

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Slokenberga, Santa

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CiteExportLink to record
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  • apa
  • ieee
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  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
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Output format
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