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Children with cancer share their views: tell the truth but leave room for hope
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics. Visby Lasarett, Oncol Unit, Visby, Sweden..
Karolinska Inst, Karolinska Univ Hosp, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden.;Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden..
Karolinska Inst, Karolinska Univ Hosp, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden.;Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden..
Karolinska Inst, Karolinska Univ Hosp, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden..
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2016 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 105, no 9, 1094-1099 p.Article in journal (Refereed) Published
Abstract [en]

AimOne in five children diagnosed with cancer will die from the disease. The aim of the study was to explore how children with cancer want to receive bad news about their disease, such as when no more treatment options are available. MethodsWe conducted individual interviews with ten children with cancer, aged seven to 17 years, at a single paediatric oncology unit in central Sweden. Interviews were audio-taped and analysed with systematic text condensation. Bad news was defined as information about a potentially fatal outcome, such as a disease relapse, or information that the treatment administered was no longer working and that there was no more treatment possible. ResultsAll children expressed that they wanted truthful information and they did not want to be excluded from bad news regarding their illness. They wanted to be informed as positively as possible, allowing them to maintain hope, and in words that they could understand. They also wanted to receive any bad news at the same time as their parents. ConclusionChildren with cancer want to be fully informed about their disease, but they also wanted it to be relayed as positively as possible so that they could stay hopeful.

Place, publisher, year, edition, pages
2016. Vol. 105, no 9, 1094-1099 p.
Keyword [en]
Communication, End-of-life care, Ethics, Paediatric oncology, Palliative care
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:uu:diva-304158DOI: 10.1111/apa.13496ISI: 000382742900029PubMedID: 27272911OAI: oai:DiVA.org:uu-304158DiVA: diva2:1014930
Funder
Swedish Childhood Cancer Foundation
Available from: 2016-10-03 Created: 2016-10-03 Last updated: 2017-05-16Bibliographically approved

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