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Validation of data quality in the Swedish National Register for Oesophageal and Gastric Cancer
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences, Upper Abdominal Surgery.
Karolinska Univ Hosp, Ctr Digest Dis, Div Surg, Stockholm, Sweden.;Karolinska Inst, Dept Clin Sci Intervent & Technol, Stockholm, Sweden..
Skane Univ Hosp, Dept Surg, Lund, Sweden..
Karolinska Univ Hosp, Ctr Digest Dis, Div Surg, Stockholm, Sweden.;Karolinska Inst, Dept Clin Sci Intervent & Technol, Stockholm, Sweden..
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2016 (English)In: British Journal of Surgery, ISSN 0007-1323, E-ISSN 1365-2168, Vol. 103, no 10, 1326-1335 p.Article in journal (Refereed) Published
Abstract [en]

Background The Swedish National Register for Oesophageal and Gastric Cancer (NREV) was launched in 2006. Data are reported at diagnosis (diagnostic survey), at the time of surgery (surgical survey) and at first outpatient follow-up (follow-up survey). The aim of this study was to evaluate data originating from NREV in terms of comparability, completeness, accuracy and timeliness. Methods Coding routines were compared with international standards and completeness was evaluated by means of a 5-year (2009-2013) comparison with mandatory national registers. Validity was tested by comparison with reabstracted data from source medical records in 400 patients chosen randomly with stratification for hospital size and catchment area population. Timeliness of registration was described. Results Coding routines followed national and international guidelines. Compared with the Swedish Cancer Registry from 2009 to 2013, 6069 (95.5 per cent) of 6354 patients were registered in NREV at the time of data extraction. Of 60 variables investigated, 10966 of 12035 original entries were correct in the reabstraction, resulting in an exact agreement of 91.1 per cent in the register. There were 782 (6.5 per cent) incorrect and 287 (2.4 per cent) missing entries. Median time to registration was 3.9, 3.4 and 4.1 months for diagnostic, surgical and follow-up surveys respectively. Conclusion NREV has reached a position with good coverage of those with the relevant diagnoses, and contains comparable and valid data. Quality data on each variable are available. Timeliness is an area with potential for improvement.

Place, publisher, year, edition, pages
2016. Vol. 103, no 10, 1326-1335 p.
National Category
Gastroenterology and Hepatology Surgery
Identifiers
URN: urn:nbn:se:uu:diva-305486DOI: 10.1002/bjs.10234ISI: 000383289500012PubMedID: 27467590OAI: oai:DiVA.org:uu-305486DiVA: diva2:1038509
Available from: 2016-10-18 Created: 2016-10-18 Last updated: 2016-10-18Bibliographically approved

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Linder, GustavHedberg, Jakob
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