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Do activities by personal assistance contribute to participation in community life in Sweden?
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Hälso- och sjukvårdsforskning)ORCID iD: 0000-0002-0905-5097
2017 (English)Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Background:  This study examines how groups of components, extracted from a questionnaire, represent a distribution of activities provided by personal assistance in Sweden across age, gender and eligible person categories. By comparing the outcome of personal assistance to the intention set out in LSS Act, we examined whether the outcome are in compliance with the right of participation, as expressed in § 19 of UNCRPD. Participation is in the study defined by the International Classification of Functions, ICF. 

Method: Register data and data from a questionnaire were used (N=15,289). Principal component analysis was performed and the internal consistency was tested. Descriptive statistics (chi-square test) were used across age, gender and eligible person categories and components. 

Results: An uneven distribution of personal assistance across the components Health and Care; Home, Leisure and Social Interaction; and Daily Occupation was found. Significant differences in personal assistance reported were found between children and adults, men and women and between the three eligible person categories.

Conclusions: The discrepancy between reported and expected outcome of personal assistance indicates that article 19 of the UNCRPD has not been met. The unequal access to participation across age, gender and eligible person categories would seem to further signify that support and service is promoting activities of a caring nature rather than fulfilling article 19 of the UNCRPD

Place, publisher, year, edition, pages
Örebro, 2017.
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:uu:diva-322281OAI: oai:DiVA.org:uu-322281DiVA, id: diva2:1096556
Conference
Nordic Network on Disability Research, NNDR 2017
Funder
Forte, Swedish Research Council for Health, Working Life and WelfareAvailable from: 2017-05-18 Created: 2017-05-18 Last updated: 2017-05-18

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von Granitz, Heléne
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