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Parents’ experiences of caring responsibility for  their adult child with schizophrenia
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Sociology. (Välfärd och Livslopp)ORCID iD: 0000-0002-3870-6426
2017 (English)In: ”Every Child has the Right to …”2nd International Young Carers Conference29 – 31 May 2017: Health and Social Care systems / [ed] Nationellt kompetenscentrum anhöriga - för ett anhörigvänligt samhälle, Malmö, 2017Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

As a consequence of the latest psychiatry-related reform in Sweden and its implementation, related parties and family members have taken over from the healthcare system a large responsibility for the care of persons with a mental disability and illness. The aim of this study was to systematically analyze and describe the experiences of parents’ care responsibility. The questions were: what are the experiences around the parents informal care activities and responsibilities, how do parents construct and manage their caring responsibility and with what consequences? Semi-structured in-depth interviews were conducted (16 h data recorded material) with eight parents who were all members of the Interest Group for Schizophrenia [

Intresseföreningen för schizophrenic (IFS)] in Sweden. A deductive hermeneutic method was used for the interpretation of the data material. The parents endow their informal caring responsibility with meaning of being a good parent, responsible and accountable within the context of their personal and social relationships as well as to the psychiatric care representatives. In this tense situation parents’ compromise between elements of struggle, cooperation, avoidance and adaption in their interaction with the world outside as well as the world inside.

Place, publisher, year, edition, pages
Malmö, 2017.
Keywords [en]
Interaction, parents, informal care responsibility, mentally ill family member, psychiatric care.
National Category
Sociology
Research subject
Health Care Research
Identifiers
URN: urn:nbn:se:uu:diva-337619OAI: oai:DiVA.org:uu-337619DiVA, id: diva2:1170352
Conference
The 2nd International Young Carers Conference The Swedish Family Care Competence Centre (SFCCC) 29-31 Maj, Malmö, Sweden.
Available from: 2018-01-03 Created: 2018-01-03 Last updated: 2018-02-22Bibliographically approved

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Hellström Muhli, Ulla

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CiteExportLink to record
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Citation style
  • apa
  • ieee
  • modern-language-association
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Language
  • de-DE
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  • fi-FI
  • nn-NO
  • nn-NB
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Output format
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