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Patient participation during and after a self-management programme in primary healthcare – The experience of patients with chronic obstructive pulmonary disease or chronic heart failure
Örebro universitet.
Örebro universitet.
Karlstad universitet.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. Division of Nursing, Department of Medical and Health Sciences, Linköping University, Sweden.ORCID iD: 0000-0002-7737-169X
2017 (English)In: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134Article in journal (Refereed) In press
Abstract [en]

Objective

Patient participation is facilitated by patients’ ability to take responsibility for and engage in health issues. Yet, there is limited research as to the promotion of these aspects of patient participation in long-term healthcare interactions. This paper describes patient participation as experienced by patients with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF); the aim was to describe if and how a self-management programme in primary healthcare influenced patient participation.

Methods

Patients who had participated in a self-management programme were interviewed in nine focus groups (36 patients). Data was analysed using qualitative content analysis.

Results

Patients described equality in personal interactions, opportunities to share and discuss, and a willingness to share and learn to facilitate patient participation in a self-management programme. Consequently, patient participation was promoted by a match between the individuals’ personal traits and the context.

Conclusion

Features facilitating patient participation by means of sharing and assimilating knowledge and insights should be included in self-management programmes and in the care for patients with COPD and CHF.

Place, publisher, year, edition, pages
Elsevier, 2017.
National Category
Nursing
Identifiers
URN: urn:nbn:se:uu:diva-342434DOI: 10.1016/j.pec.2017.12.020OAI: oai:DiVA.org:uu-342434DiVA, id: diva2:1184267
Available from: 2018-02-20 Created: 2018-02-20 Last updated: 2018-03-23Bibliographically approved

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Eldh, Ann Catrine

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