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Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association
Oslo Univ Hosp, Ctr Cardiol Innovat, Dept Cardiol, Rikshosp, Oslo, Norway.;Oslo Univ Hosp, Ctr Cardiol Innovat, Inst Surg Res, Rikshosp, Oslo, Norway.;Univ Oslo, Inst Clin Med, Oslo, Norway..
Univ Belgrade, Sch Med, Belgrade, Serbia.;Univ Belgrade, Sch Med, Belgrade, Serbia.;Clin Ctr Serbia, Cardiol Clin, Belgrade, Serbia..
Clin Pasteur, Div Cardiol, Cardiac Arrhythmias Management Dept, Toulouse, France..
Hop Timone Adultes, Serv Cardiol, F-13385 Marseille 05, France..
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2018 (English)In: Europace, ISSN 1099-5129, E-ISSN 1532-2092, Vol. 20, no 2, p. 386-391Article in journal (Refereed) Published
Abstract [en]

The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues.

Place, publisher, year, edition, pages
OXFORD UNIV PRESS , 2018. Vol. 20, no 2, p. 386-391
Keywords [en]
Cardiac implantable electronic devices, Pacemaker, Implantable cardioverter-defibrillator, Cardiac resynchronization therapy, Patient preference, Patient knowledge, Complications, EHRA survey
National Category
Cardiac and Cardiovascular Systems
Identifiers
URN: urn:nbn:se:uu:diva-348397DOI: 10.1093/europace/eux365ISI: 000424924300026PubMedID: 29300970OAI: oai:DiVA.org:uu-348397DiVA, id: diva2:1197911
Available from: 2018-04-16 Created: 2018-04-16 Last updated: 2018-04-16Bibliographically approved

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