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Understanding Study Participants Views on Co-Creation of Data and Use of EHR in Clinical Studies.
2018 (English)Conference paper, Published paper (Refereed)
Abstract [en]

In order to increase clinical trial participation, the reasons for participating need to be observed. Since there is rather inadequate information concerning how individuals such as patients, decides to participate in clinical trials semi-structured interviews have been done. Examining the use of EHR in clinical trials and co-creation of data, the result showed that it is important for the researches to have access to the patients' EHR and for the patients to contribute with their own ideas of research. Important aspects of further participation in clinical trials were that it should be fun and informative. The patients agreed on that the effort of participating could decrease with the use of electronically collection and self-reporting of data, e.g. through a patient portal.

Place, publisher, year, edition, pages
2018. Vol. 247, p. 341-345
Keywords [en]
Clinical trial, EHR, co-creation
National Category
Other Medical Sciences
Research subject
Medical Informatics
Identifiers
URN: urn:nbn:se:uu:diva-364799PubMedID: 29677979OAI: oai:DiVA.org:uu-364799DiVA, id: diva2:1260540
Conference
MIE2018
Funder
VINNOVA, 2014-00736Available from: 2018-11-03 Created: 2018-11-03 Last updated: 2018-11-04

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