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Experiences of Individuals Awaiting Lung Transplantation
Stockholm CF Center Karolinska University Hospital, Stockholm, Sweden.
Stockholm CF Center Karolinska University Hospital, Stockholm, Sweden.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics. Ersta Sköndal University College Stockholm, Sweden,.ORCID iD: 0000-0001-6011-6740
2018 (English)In: Respiratory care, ISSN 0020-1324, E-ISSN 1943-3654, Vol. 63, no 12, p. 1535-1540Article in journal (Refereed) Published
Abstract [en]

Lung transplantation is an established intervention for patients with advanced and life-threateningrespiratory disease. Unfortunately, the shortage of organ donors results in a need for organs thatgreatly exceeds availability. This narrative review aimed to investigate the experiences of patientswith respiratory diseases who wait for lung transplantation. Articles were retrieved from medicalliterature databases. Thirteen qualitative studies were reviewed, one of them used a mixed method.We found that individuals faced varied and complex situations differently while waiting for lung transplantations,depending on physical, psychological, social, and existential factors. Waiting gives hope fora future without the limitations imposed by the disease but also causes great stress. Many individualsstruggled with the existential guilt associated with the privilege of having access to transplantation. Thisreview highlighted that support from health-care professionals, next of kin, patients who had previouslyreceived a transplantation, and close friends have a vital role to play for individuals waiting for a lungtransplantation.

Place, publisher, year, edition, pages
2018. Vol. 63, no 12, p. 1535-1540
Keywords [en]
respiratory diseases; lung transplantation; waiting list; experiences; palliative care.
National Category
Nursing
Identifiers
URN: urn:nbn:se:uu:diva-371676DOI: 10.4187/respcare.06401ISI: 000450874500012OAI: oai:DiVA.org:uu-371676DiVA, id: diva2:1273931
Available from: 2018-12-25 Created: 2018-12-25 Last updated: 2019-01-16Bibliographically approved

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