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The ’Other’ in end-of-life care: providers' understandings of patients with migrant backgrounds
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Sociology. (Välfard och Livslopp)
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Sociology. (Välfard och Livslopp)
Linköpings universitet.
2018 (English)In: Final Journeys: Migrant End-of-life Care and Rituals in Europe / [ed] A. Hunter & E. Soom Ammann, Oxon: Routledge, 2018, p. 9-23Chapter in book (Refereed)
Abstract [en]

Research on how end-of-life care providers make sense of cultural, ethnic and religious diversity is relatively scarce. This article explores end-of-life care providers’ understandings of patients with migrant backgrounds through a study based on focus group interviews. The analysis brings to the fore three themes: the expectation that the existence of difference and uncertainty is a given when caring for patients with migrant backgrounds; the expectation that the extension of responsibility that difference entails creates a variety of dilemmas; and the expectation that difference will bring about misunderstandings and that patients’ needs can go unmet as a result of this. On the basis of these themes we suggest that the end-of-life care providers interviewed regard patients with migrant backgrounds as ‘Others’ and themselves as providers that cannot deliver so called culture-competent care. The findings are problematised using the lens that the debate on patient-centredness offers. The article suggests that if the uniqueness of all patients is to be seriously taken into account then ‘Othering’ is perhaps what patient-centredness actually entails.

Place, publisher, year, edition, pages
Oxon: Routledge, 2018. p. 9-23
National Category
Sociology (excluding Social Work, Social Psychology and Social Anthropology)
Research subject
Sociology
Identifiers
URN: urn:nbn:se:uu:diva-372511DOI: 10.4324/9781315180137-2ISBN: 9781315180137 (electronic)ISBN: 9781138749702 (print)OAI: oai:DiVA.org:uu-372511DiVA, id: diva2:1276021
Funder
Welfare and Life-courseAvailable from: 2019-01-07 Created: 2019-01-07 Last updated: 2019-09-13Bibliographically approved

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Torres, SandraÅgård, Pernilla

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