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Representation of Ethnic Minorities in Swedish Clinical Cancer Trials: A Qualitative Study of Physicians' Experiences
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.ORCID iD: 0000-0001-7486-4678
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics. Ersta Sköndal University College.ORCID iD: 0000-0001-6011-6740
2018 (English)In: Harvard Public Health Review, Vol. 20, p. 1-10Article in journal (Refereed) Published
Abstract [en]

International literature shows ethnic minorities and immigrants being underrepresented in clinical trials. This compromises the generalizability of the results and distributes the benefits of participating unequally. This problem is unexplored in Sweden. Therefore, this explorative qualitative study examines the barriers Swedish physicians encounter, the strategies they use to prevent and circumvent the issue, and the attitudes and perceptions they have. We found that physicians do encounter ethnic minority patients that they exclude from participation in clinical cancer trials. This is primarily because of language barriers preventing patients from understanding participant information. Conscious strategies to counter this are lacking. A lack of translated material and strict inclusion criteria are two obstacles that can be overcome. The general conception is that this issue is uncommon and unimportant from a medical perspective, but questions of fairness have been raised. For such reasons, further discussion and research on this issue are needed. 

Place, publisher, year, edition, pages
2018. Vol. 20, p. 1-10
Keywords [en]
Clinical trials, recruitment, ethnic minorities, informed consent, ethics
National Category
Ethics
Research subject
Ethics
Identifiers
URN: urn:nbn:se:uu:diva-375418OAI: oai:DiVA.org:uu-375418DiVA, id: diva2:1283590
Available from: 2019-01-29 Created: 2019-01-29 Last updated: 2019-05-29Bibliographically approved

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http://harvardpublichealthreview.org/swedishclinical/

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Spörndly, RobertEriksson, Stefan

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CiteExportLink to record
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