uu.seUppsala University Publications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Nutrition in patients withAmyotrophic LateralSclerosis (ALS): A three year observational study
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Food, Nutrition and Dietetics.
2018 (English)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

Background: Malnutrition in ALS patients is common and is an independent prognostic factor of survival. The purpose of this study was to describe the occurrence of some nutritional problems and some nutritional interventions and to what extent the patients had contact with a dietitian in a cohort of ALS patients.

Methods: Sixty patients with ALS were enrolled in this observational study. Data were collected in a total of seven data collections made every six months over a period of three years. There were only 12 participants left in the last data collection as, at some stage of the study, 25 diseased and 23 declined to participation.

Results: Dysphagia was present in around 55% of the patients averaged over time, chewing problems in 48%, early satiety in 41%, reduced appetite in 29% and gastrointestinal problems in 38% (mostly as constipation 35%). Texture modified drinks was only used by between 0-14% of the patients at the different data collections. Out of the patients with a weight lost >5% of their bodyweight before baseline data collection, only 47% had contact with a dietitian. Among the patients who stated different nutritional problems 64% also stated having contact with a dietitian at least once during the study and the corresponding number for patients with different nutritional interventions was 75%.

Conclusion: Data from the present study confirmed that dysphagia was only one out of several nutritional problems among the investigated patients with ALS and that very few of the dysphagic patients used thickened liquids. The number of patients in our study who needed dietary counselling exceeded the number who actually got to meet a dietitian. The study highlights a need to implement European Society for Clinical Nutrition and Metabolism (ESPEN) guidelines for clinical nutrition in neurology from 2018 to improve the nutritional care of this group of patients.

Place, publisher, year, edition, pages
2018.
National Category
Social Sciences
Identifiers
URN: urn:nbn:se:uu:diva-377854OAI: oai:DiVA.org:uu-377854DiVA, id: diva2:1292048
Available from: 2019-03-26 Created: 2019-02-27 Last updated: 2019-03-26Bibliographically approved

Open Access in DiVA

No full text in DiVA

By organisation
Department of Food, Nutrition and Dietetics
Social Sciences

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 56 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf