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Implementing and Adhering to the Specific Carbohydrate Diet: A Qualitative Study of the Experience of Children with Juvenile Idiopathic Arthritis
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Food, Nutrition and Dietetics.
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Food, Nutrition and Dietetics.
2018 (English)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

BACKGROUND: An increasing number of studies are pointing to the importance of nutrition in inflammatory joint disease. One current study in Sweden is investigating the clinical effects of the specific carbohydrate diet (SCD) in patients with juvenile idiopathic arthritis (JIA). Due to the restrictive nature of the diet, it might be challenging to follow. It is currently unclear how the SCD affects the daily lives of children with JIA.

AIM: To describe how children with JIA experience implementing and adhering to the SCD.

METHOD: Six children, aged 10-17 years, half females, with diagnosed JIA participated in semistructured interviews. By qualitative thematic analysis, themes were identified to describe their experience of daily life with the SCD.

RESULT: Despite the daily challenges, the overall response to the SCD was positive. Three broad themes were identified: challenges, coping strategies and conditions for success. The challenges ranged from a lack of knowledge to social dilemmas when eating outside home, some of which decreased over time. However, compliance outside the home for adolescents remained problematic. Nevertheless, coping strategies, such as testing the limits and positive thinking, as well as high motivation and strong family support made the daily life manageable.

CONCLUSION: The children experienced various challenges in their daily lives balancing them with different coping strategies and conditions for success. Despite the challenges, the participants felt positive about the SCD. To develop a more complete picture of the experience, additional studies will be needed, including the entire family's perspective.

Place, publisher, year, edition, pages
2018.
National Category
Social Sciences
Identifiers
URN: urn:nbn:se:uu:diva-377856OAI: oai:DiVA.org:uu-377856DiVA, id: diva2:1292059
Educational program
Programme for Clinical Dietetitians
Available from: 2019-03-26 Created: 2019-02-27 Last updated: 2019-03-26Bibliographically approved

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