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The Swedish Neonatal Quality Register - contents, completeness and validity
Karolinska Inst, Div Pediat, Dept Clin Sci Intervent & Technol, Stockholm, Sweden;Karolinska Univ Hosp, Dept Neonatal Med, Stockholm, Sweden;Vasterbotten Cty Council, Swedish Neonatal Qual Register SNQ, Umea, Sweden.ORCID iD: 0000-0003-4191-3781
Vasterbotten Cty Council, Swedish Neonatal Qual Register SNQ, Umea, Sweden;Lund Univ, Ctr Reprod Epidemiol, Lund, Sweden.
Natl Board Hlth & Welf, Stockholm, Sweden.
Vasterbotten Cty Council, Swedish Neonatal Qual Register SNQ, Umea, Sweden;Umea Univ, Dept Clin Sci, Div Pediat, Umea, Sweden.
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2019 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 108, no 8, p. 1411-1418Article in journal (Refereed) Published
Abstract [en]

Aim: To describe the Swedish Neonatal Quality Register (SNQ) and to determine its completeness and agreement with other registers.

Methods: SNQ collects data for infants admitted to neonatal units during the first four postnatal weeks. Completeness and registers' agreement were determined cross-linking SNQ data with Swedish population registers (the Inpatient, Medical Birth and Cause of Death Registers) for a study period of five years.

Results: In total, 84 712 infants were hospitalised. A total of 52 806 infants occurred in both SNQ and the population registers; 28 692 were only found in the population registers, and 3214 infants were only found in SNQ. Between gestational weeks 24-34, completeness of SNQ was 98-99%. Below and above these gestational ages, completeness was lower. Infants missing in SNQ were term or near-term in 99% of the cases, and their diagnoses indicated conditions managed in maternity units, or re-admissions for acute infections, managed in paediatric units. For most diagnoses, the agreement between SNQ and population registers was high, but some (bronchopulmonary dysplasia and grade of hypoxic-ischaemic encephalopathy) were often missing in the population registers.

Conclusion: SNQ completeness and agreement against other registers, especially for preterm infants, is excellent. SNQ is a valid tool for benchmarking, quality improvement and research.

Place, publisher, year, edition, pages
WILEY , 2019. Vol. 108, no 8, p. 1411-1418
Keywords [en]
Completeness, Newborn infant, Quality of neonatal care, Register, Validation
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:uu:diva-390497DOI: 10.1111/apa.14823ISI: 000474935600009PubMedID: 31006126OAI: oai:DiVA.org:uu-390497DiVA, id: diva2:1342672
Funder
Stockholm County CouncilAvailable from: 2019-08-14 Created: 2019-08-14 Last updated: 2019-08-14Bibliographically approved

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Thernström Blomqvist, YlvaHolmström, GerdWikström, Anna-Karin

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Norman, MikaelThernström Blomqvist, YlvaHolmström, GerdWikström, Anna-Karin
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Perinatal, Neonatal and Pediatric Cardiology ResearchSöderberg: Ophthalmic BiophysicsClinical Obstetrics
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