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High risk-What's next?: A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy
Copenhagen Univ Hosp Hvidovre, Dept Obstet & Gynecol, Fetal Med Unit, Kettegaard Alle 30, DK-2650 Hvidovre, Denmark.
Rigshosp, Copenhagen Univ Hosp, Ctr Fetal Med, Dept Obstet, Copenhagen, Denmark.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Lifestyle and rehabilitation in long term illness. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health. Karolinska Inst, Dept Clin Sci Intervent & Technol, Solna, Sweden;Karolinska Univ Hosp, Ctr Fetal Med, Solna, Sweden.
Rigshosp, Copenhagen Univ Hosp, Ctr Fetal Med, Dept Obstet, Copenhagen, Denmark.
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2019 (English)In: Prenatal Diagnosis, ISSN 0197-3851, E-ISSN 1097-0223, Vol. 39, no 8, p. 635-642Article in journal (Refereed) Published
Abstract [en]

Objectives: To investigate decision making among pregnant women when choosing between noninvasive prenatal testing, invasive testing, or no further testing.

Methods: Women with a high-risk result from the first trimester screening were invited to fill in two online questionnaires at gestational age 12 to 14 (Q1) and 24 weeks (Q2). The scales used were Decisional Conflict and Regret Scales, Satisfaction with genetic Counselling Scale, and Health-Relevant Personality Inventory.

Results: Three hundred thirty-nine women agreed to participate, and the response rates were 76% on Q1 and 88% on Q2. A percentage of 75.4% chose an invasive test, 23.8% chose noninvasive prenatal testing (NIPT), 0.4% chose no further testing, and 0.4% had both NIPT and invasive testing. Among all participants, 13.3% had a high level of decisional conflict. We found that choosing NIPT was associated with a high decisional conflict (p = 0.013), receiving genetic counselling the same day was associated with a high decisional conflict (p = 0.039), and a high satisfaction with the genetic counselling was associated with low decisional conflict (p < 0.001). Furthermore, the personality subtrait alexithymia was associated with low decisional conflict (p = 0.043). There was a significant association between high decisional conflict and later decisional regret (p = 0.008).

Conclusion: We present evidence that satisfaction with and timing of counselling are important factors to limit decisional conflict. Interestingly, women choosing NIPT had more decisional conflict than women choosing invasive testing.

Place, publisher, year, edition, pages
WILEY , 2019. Vol. 39, no 8, p. 635-642
National Category
Obstetrics, Gynecology and Reproductive Medicine
Identifiers
URN: urn:nbn:se:uu:diva-392588DOI: 10.1002/pd.5476ISI: 000478575800007PubMedID: 31083781OAI: oai:DiVA.org:uu-392588DiVA, id: diva2:1349183
Available from: 2019-09-06 Created: 2019-09-06 Last updated: 2019-09-06Bibliographically approved

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Ingvoldstad Malmgren, Charlotta

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Lifestyle and rehabilitation in long term illnessDepartment of Women's and Children's Health
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