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Patients’ access to health records
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.ORCID iD: 0000-0002-6839-3651
Harvard Medical School and Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA.
Division of Biomedical Statistics and Informatics, Mayo Clinic, Rochester, Minnesota, USA.
Informatics, Örebro University School of Business, Örebro, Sweden.
2019 (English)In: BMJ. British Medical Journal, E-ISSN 1756-1833, Vol. 367, article id l5725Article in journal, Editorial material (Other academic) Published
Abstract [en]

Patients and clinicians are equally frustrated by the slow pace of changeThe international movement pushing to increase transparency by giving patients easy access to their health information parallels a broader shift in healthcare towards increased patient empowerment and participation. In the United States, the philanthropic OpenNotes initiative works to increase transparency by encouraging healthcare organisations to provide patients with access to notes in their electronic health record. It began in 2010 as a pilot that included 105 volunteer primary care providers and their 19 000 patients and has since spread throughout the US, with more than 200 organisations offering roughly 41 million patients access to their clinical notes. In Sweden, the first region-wide implementation of patient access to electronic health records was in 2012, more than 10 years after the first pilot study. All 21 Swedish regions have now offered this e-service through a national patient portal that integrates with all electronic health record systems currently used in Sweden. More than 3 million people (>30% of the population) had accessed their records online by August 2019, and more than 2 million logins occur each month.

Similar patient accessible electronic record systems are implemented in other countries, though different strategies and approaches have influenced uptake and impact. Progress has been slow because of legal constraints, technical challenges, and concerns or resistance among healthcare professionals. Low rates of adoption among patients have also been a problem in some areas. Nonetheless, research evidence reports positive outcomes among patients accessing their records, and the concerns expressed by healthcare professionals have not been realised. Patients who read their notes report understanding their care plans better, feeling more in control of their care, doing a better job taking their medications, improved communication with and trust in their clinicians, and improved patient safety.

Place, publisher, year, edition, pages
2019. Vol. 367, article id l5725
National Category
Other Medical Sciences not elsewhere specified Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Medical Informatics
Identifiers
URN: urn:nbn:se:uu:diva-394094DOI: 10.1136/bmj.l5725ISI: 000489774400010PubMedID: 31578180OAI: oai:DiVA.org:uu-394094DiVA, id: diva2:1357003
Projects
PACESS (2016-00623)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-00623Available from: 2019-10-02 Created: 2019-10-02 Last updated: 2019-11-08Bibliographically approved

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Publisher's full textPubMedhttp://www.bmj.com/content/367/bmj.l5725.abstract

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Hägglund, Maria

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