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Siblings' Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation: A Phenomenological Hermeneutical Study
Univ Boras, Fac Caring Sci Work Life & Social Welf, Caring Sci, Boras, Sweden.ORCID iD: 0000-0003-2972-6908
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences, Lung- allergy- and sleep research.
Univ Gothenburg, Inst Neurosci & Physiol, Speech Language Pathol Unit, Gothenburg, Sweden.
Univ Boras, Fac Caring Sci Work Life & Social Welf, Nursing Educ & Postgrad Program, Boras, Sweden.
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2019 (English)In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 25, no 3, p. 469-492Article in journal (Refereed) Published
Abstract [en]

Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider's perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS INC , 2019. Vol. 25, no 3, p. 469-492
Keywords [en]
child, family, home mechanical ventilation, sibling relationships, family nursing
National Category
Nursing
Identifiers
URN: urn:nbn:se:uu:diva-396124DOI: 10.1177/1074840719863916ISI: 000479436000001PubMedID: 31354023OAI: oai:DiVA.org:uu-396124DiVA, id: diva2:1366779
Available from: 2019-10-30 Created: 2019-10-30 Last updated: 2019-10-30Bibliographically approved

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Markström, Agneta

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