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Ethical dilemmas and legal aspects in contraceptive counselling for women with intellectual disability: Focus group interviews among midwives in Sweden
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Obstetrics and Reproductive Health Research.ORCID iD: 0000-0002-7299-9146
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Obstetrics and Reproductive Health Research.ORCID iD: 0000-0001-8050-621x
2019 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 32, no 6, p. 1558-1566Article in journal (Refereed) Published
Abstract [en]

Background

Few studies have explored ethical and legal issues in contraceptive counselling among women with intellectual disability (ID). This study aimed to gain a deeper understanding of these issues during midwifery contraceptive counselling.

Method

The present authors interviewed 19 midwives in five focus groups in Sweden 2016 – 2017 and analysed data with content analysis.

Results

The participants expressed that women with intellectual disability have equal right to relationships and sexual expressions, but feared exposure to sexual exploitation/abuse. They experienced ethical dilemmas related to principles of fairness and autonomy, but strived to provide assistance in spite of the women's cognitive impairment, presence of supporting persons and uncertainty of optimal counselling. Organizational support was insufficient.

Conclusions

The midwives experienced ambivalence, uncertainty and ethical dilemmas in their counselling. They were, however, aware of legal aspects and strived for the women's best interest, right to self‐determination and autonomous choices. The participants wanted better professional teamwork and support.

Place, publisher, year, edition, pages
2019. Vol. 32, no 6, p. 1558-1566
Keywords [en]
contraceptive counselling, ethical dilemma, intellectual disability, legal aspects, midwife, woman
National Category
Obstetrics, Gynecology and Reproductive Medicine
Identifiers
URN: urn:nbn:se:uu:diva-398816DOI: 10.1111/jar.12651ISI: 000481245200001PubMedID: 31397044OAI: oai:DiVA.org:uu-398816DiVA, id: diva2:1377828
Available from: 2019-12-12 Created: 2019-12-12 Last updated: 2019-12-12Bibliographically approved

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Höglund, BeritLarsson, Margareta

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