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Advocating for parents with intellectual disabilities by mobilization of professionals
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Center for Clinical Research Dalarna.ORCID iD: 0000-0002-4948-5331
Region Uppsala.
2019 (English)In: A Future for All, 2019Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

Parents with cognitive limitations including intellectual disabilities are vulnerable and in need of adapted support. A lot is known about the consequences of cognitive limitations, and what can be done to facilitate the daily functioning for the parents and via them, for the children. Yet, social workers lack knowledge of how to adapt service and support to cognitive difficulties.

Aims: The purpose was to identify ways to increase the awareness of the needs of parents with cognitive limitations at organizational and political levels in a society.

 

Methods: Researchers from two organizations; SUF Resource center and Gillberg center in Sweden led the process. A goal directed work via meetings with different stakeholders including a research network, the National Board of Health and Welfare and at the National parliament was done. The stakeholders suggested mobilization of professionals. A big amassing conference was arranged. The program of the day was clear in the aim to advocate for the need to increase the knowledge of the needs of parents with cognitive limitations and their rights to be offered support tailored to their cognitive limitations.

 

Results: The process of mobilizing professionals and the results will be presented at the congress

Place, publisher, year, edition, pages
2019.
Keywords [en]
parents, intellectual disabilities, social workers
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-407039OAI: oai:DiVA.org:uu-407039DiVA, id: diva2:1415440
Conference
IASSIDD 16th World Congress in Glasgow, UK August 6 -9th, 2019
Available from: 2020-03-18 Created: 2020-03-18 Last updated: 2020-03-18

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Janeslätt, Gunnel

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