Informational support for patients with gynaecological cancer and their families
1997 (English)Doctoral thesis, comprehensive summary (Other academic)
The main purpose of the present thesis was to gain a deeper knowledge and understanding of the informational need by women with gynaecological cancer and their families. The studies evaluate the experience of different kind of information giving; a telephone-help line; a 3 years educational group support programme; and information givings in ordinary care.
There was a significant correlation to interest in an educational supportive group in the prestudy depending on age, legal status, educational level. Younger individuals, couples and people with a higher formal education were generally more interesting in participating (p<0.05). Patients who actively chose to participate m a an educational support group differed from the unselected control group even prior the intervention, they with a higher formal education were generally more interesting in participating, they felt more confused and angry than the control group. After intervention, the patients in the interventional group reported a significant improved level of knowledge about cancer.
Both patients and next-of-kin request information about medical- and psychological aspects of the disease and its treatment. The evaluation of the questions in the educational supportive group show that patients and their relatives asked questions of a general nature, related to basic knowledge of cancer and treatment principles, and not directly related to their own illness. There was no general difference in knowledge level between cancer patients and the controls of healthy women. The length of formal education was the most important determinator of correct answers (p<0.01).
Two main themes were revealed at the interviews about the patients informations preferences. These were to actively address questions and the right to receive honest information;
It is concluded that differential information giving techniques are required to satisfy the patients' different preferences. The patients express an active role in the information giving process. They preferred information with numerous opportunities to address questions, that the staff have time for questions and that the questions are honestly answered.
Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis , 1997. , 54 p.
Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 0282-7476 ; 734
Oncology, Gynaecological cancer, patient, family, information, education, support
Cancer and Oncology
Research subject Oncology
IdentifiersURN: urn:nbn:se:uu:diva-131ISBN: 91-554-4117-3OAI: oai:DiVA.org:uu-131DiVA: diva2:160854
1998-01-17, Skoogsalen, ingång 78, Akademiska sjukhuset, Uppsala, Uppsala, 09:15