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Comparison of the living conditions of adults with intellectual disabilities in a Swedish County and in the general population
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, Ulleråker, University Hospital.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, Ulleråker, University Hospital.
2005 (English)In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 2, no 3-4, 240-248 p.Article in journal (Refereed) Published
Abstract [en]

This study describes the living conditions of adults with intellectual disabilities (ID) as compared to the general population. People with ID born in Uppsala County between 1959 and 1974 constituted the study population (n = 213). Proxy questionnaire reports and national welfare statistics were used to collect data. The results demonstrated differences in living conditions between the two groups, particularly regarding employment and social life. Whereas people in general had paid employment, most people with ID were provided supported daily activities and their main income source was a disability benefit from the social insurance system. Typically, people with ID lived in a more restricted social environment and had more limited social life than the general population. The social network of people with ID was mainly bulit on family ties (parents and siblings); caregiver-care receiver relations and included few chosen friends (with or without disability). The authors suggest that the way in which help and support is provided by professionals using the special and generic help systems may actually prevent or restrain individuals with ID from influencing their own life course.

Place, publisher, year, edition, pages
Wiley Periodicals , 2005. Vol. 2, no 3-4, 240-248 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-93773DOI: 10.1111/j.1741-1130.2005.00036.xOAI: oai:DiVA.org:uu-93773DiVA: diva2:167356
Available from: 2005-11-25 Created: 2005-11-25 Last updated: 2017-12-14Bibliographically approved
In thesis
1. Living Conditions of People with Intellectual Disabilities: A Study of Health, Housing, Work, Leisure and Social Relations in a Swedish County Population
Open this publication in new window or tab >>Living Conditions of People with Intellectual Disabilities: A Study of Health, Housing, Work, Leisure and Social Relations in a Swedish County Population
2005 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The general aim of this thesis is to describe mortality, health and living conditions in an administratively defined county population of people with intellectual disabilities born between 1959 and 1974 (N=213). The living conditions of persons with intellectual disabilities were compared with those of the general population. Moreover, the reports of relatives and staff were compared on the living conditions of people with intellectual disabilities. Information on the living conditions of persons with intellectual disabilities was provided by proxy (relative and staff) questionnaire reports and national welfare statistics conducted by Statistics Sweden (SCB). Medical examination and medical case records were used to obtain data on health and medical services.

People with intellectual disabilities lived in the community and took part in numerous common recreational and cultural activities. However, the comparison with the general population indicated clear differences in living conditions, particularly regarding employment and social life. In contrast, surprisingly little variation in living conditions was found in people with intellectual disabilities, despite varying ages and a wide range of level of disabilities. In addition, gender related differences of persons with intellectual disabilities were few when compared with those found in the general population. A wide range of physical and mental health problems were identified in the group with intellectual disabilities.

Although a majority of persons with intellectual disabilities had access to a family doctor and attended regular health checks, a number of needs of specialist examinations were identified indicating shortcomings in the quality of health care.

Analyses indicated differences in the reports of relatives and staff on living conditions of most domains included in the questionnaire. In general, disagreement was higher on subjective than on objective items. Relative and staff responders contribute dissimilar information that is related to varying viewpoints and different types of information.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2005. 58 p.
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 89
Keyword
Disability studies, intellectual disabilities, living conditions, health conditions, mortality, associated disabilities, gender, comparative study, proxy responding, Handikappforskning
National Category
Social Work
Identifiers
urn:nbn:se:uu:diva-6143 (URN)91-554-6405-X (ISBN)
Public defence
2005-12-16, Föreläsningssalen, Museum Gustavianum, Akademigatan 3, Uppsala, 13:15 (English)
Opponent
Supervisors
Available from: 2005-11-25 Created: 2005-11-25 Last updated: 2011-02-08Bibliographically approved

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Umb-Carlsson, ÕieSonnander, Karin

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