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Experiences of an educational programme for individuals with blindness caused by diabetes
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
2006 (English)In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 3, no 2, 86-91 p.Article in journal (Refereed) Published
Abstract [en]

Background:Individuals with blindness caused by diabetes face problems in their daily life that are related to both conditions. Hopefully some of these problems can be solved and simplified through a suitable educational programme.

Aims: The aim of this study was to evaluate whether the educational programme 'I'm the boss' is suitable for blind individuals with diabetes, and to discover whether and how the programme inspired the participants in developing self-management skills.

Methods: An ophthalmologic centre and two medical centres in a well-defined geographic area were screened for blind individuals with diabetes, resulting in the participation of nine individuals in the educational programme. The programme consisted of six three-hour-long weekly sessions based on empowerment and problem-based learning. Empowerment was measured using the Swedish version of the diabetes empowerment scale (Swe-DES-23). After completion of the programme, the participants were interviewed (focus group and individual interviews). The interviews were analysed using qualitative content analysis.

Findings: The evaluation of the educational programme showed that almost half the participants improved their diabetes empowerment in the subscales ‘self-awareness’ and ‘ability to manage stress’. The qualitative data corresponded well with the quantitative data in terms of increasing participants' self-efficacy and knowledge. The learning process was experienced as flexible and the content as stimulating and creative.

Conclusion: It is concluded that the programme seems suitable for blind individuals with diabetes, and in collaboration with others allows space for innovation and self-realisation

Place, publisher, year, edition, pages
2006. Vol. 3, no 2, 86-91 p.
Keyword [en]
Empowerment, education programme, problem-based learning, blindness and diabetes, self-efficacy, qualitative content analysis
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-93913DOI: 10.1002/edn.49OAI: oai:DiVA.org:uu-93913DiVA: diva2:167552
Available from: 2005-12-29 Created: 2005-12-29 Last updated: 2017-12-14Bibliographically approved
In thesis
1. Diabetes-Related Blindness: Studies of Self-Management, Power, Empowerment and Health
Open this publication in new window or tab >>Diabetes-Related Blindness: Studies of Self-Management, Power, Empowerment and Health
2006 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Individuals with diabetes and blindness meet problems in daily life that are related to both conditions. The aim was to study diabetes self-management, burden of diabetes, power, sense of coherence (SOC) and health among individuals with diabetes-related blindness. The aim was further to determine psychometric properties of a diabetes empowerment scale (DES) and to use it in the evaluation of an empowerment programme. The participants were 39 blind diabetic and non-diabetic individuals and 21 diabetic individuals with threat of blindness. A convenience sample of 195 diabetic patients completed DES and 9 blind diabetic individuals participated in the empowerment programme. Two reference groups from the Swed-qual population studies were also included. Data were collected by questionnaires, interviews and by scrutinizing medical records. Quantitative data were analyzed with parametric and non-parametric methods and qualitative data with content analysis. Blind diabetic individuals expressed more problems with self-management than did those with threat of blindness. In some health domains, blind diabetic individuals perceived significantly poorer health than did non-diabetic blind individuals. There were though individual differences in how blind individuals perceived their health as well as how burdensome they experienced their self-management. Individuals with power and strong SOC felt less burden and perceived better health when compared to those with weak SOC or non-power. The diabetes empowerment scale showed acceptable validity and reliability and was used, along with qualitative interviews, to evaluate the effect of the empowerment programme. Evaluation of the programme showed that the participants had improved knowledge and awareness of self-management. The programme seems suitable for blind individuals and creates an inspiring learning climate enhancing empowerment. It is concluded that blind individuals have problems in their diabetes self-management and perceive poor health but the experience of power is a factor of importance for health and an empowerment education programme may enhance power.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2006. 57 p.
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 97
Keyword
Diabetes nursing, Diabetes mellitus, Blindness, Power, Empowerment, Health, Diabetesvård
National Category
Endocrinology and Diabetes
Identifiers
urn:nbn:se:uu:diva-6262 (URN)91-554-6434-3 (ISBN)
Public defence
2006-01-20, Aulan, Sjuksköterskeutbildningen, Döbelnsgatan 2, Uppsala, 13:15
Opponent
Supervisors
Available from: 2005-12-29 Created: 2005-12-29Bibliographically approved

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Leksell, JanethWikblad, Karin

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