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Nocebo effects from clinical notes: reason for action, not opposition for clinicians of patients with medically unexplained symptoms
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Healthcare Sciences and e-Health. Faculty of Health, University of Plymouth, Plymouth, UK . (Participatory e-health and health data)ORCID iD: 0000-0003-0908-6173
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Healthcare Sciences and e-Health. (Participatory e-health and health data)ORCID iD: 0000-0002-6839-3651
2023 (English)In: Journal of Medical Ethics, ISSN 0306-6800, E-ISSN 1473-4257, Vol. 49, no 1, p. 24-25Article in journal, Editorial material (Other academic) Published
Abstract [en]

In her paper, ‘Sharing online clinical notes with patients: implications for nocebo effects and health equity’, Blease bridges findings from two research fields to describe possible unintended consequences of providing patients access to clinical notes.1 She explains how nocebo effects, genuine psychological and physiological reactions following negative expectations, may arise after patients read such notes. Blease emphasises that the likelihood of nocebo may be greater for those patient groups who experience stigmatisation in healthcare. We argue that this is the case for patients with so-called medically unexplained symptoms (MUSs) and that clinicians who work with them should consider nocebo but not for the reasons they may think.MUS is a term used to refer to persistent physical symptoms which cannot be fully or reliably attributed to a structural pathology. They include common symptoms such as chronic or recurrent pain in joints and muscles, fatigue, paresthesia or digestive issues. MUS may persist indefinitely and vary in severity, often accompanied by chronic psychological distress such as anxiety and depression. It is estimated that as many as half of the patients in general practice have at least one MUS.2 Sometimes, MUSs are appraised jointly and receive a formal diagnosis. Depending on …

Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2023. Vol. 49, no 1, p. 24-25
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Medical Informatics
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URN: urn:nbn:se:uu:diva-490710DOI: 10.1136/jme-2022-108795ISI: 000898537500001OAI: oai:DiVA.org:uu-490710DiVA, id: diva2:1718841
Available from: 2022-12-13 Created: 2022-12-13 Last updated: 2023-01-31Bibliographically approved

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Kharko, AnnaHägglund, Maria

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