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Understanding the meaning of rehabilitation to an aphasic patient through phenomenological analysis - a case study 
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. (Health Services Research)
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. (Health Services Research)
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2007 (English)In: International Journal of Qualitative Studies on Health and Well-Being, ISSN 1748-2623, Vol. 2, no 2, 93-100 p.Article in journal (Refereed) Published
Abstract [en]

Stroke patients with aphasia commonly suffer from distress related to their language deficit. They are often unable to express what they experience during their rehabilitation. Hence, the aim of this study was to reveal the meaning of rehabilitation to an aphasic person. With an approach based on the philosophy of Husserl and Merleau-Ponty, two open-ended interviews were analysed through the Empirical Phenomenological Psychological (EPP) method. The essential structure of the meaning of rehabilitation to the informant was that he lived as being responsible in a dichotomised situation. The informant had to adapt his behaviour, thereby destroying his chances of normal interactions; he was supposed to train in a goal-oriented way and believe in recuperation, but at the same time, he had to prepare himself and his next of kin for a failure. The defined impairment of aphasia misled both the informant and health care professionals to focus only language therapy, hence leaving the informant unsupported in other important aspects of the rehabilitation.

Place, publisher, year, edition, pages
2007. Vol. 2, no 2, 93-100 p.
Keyword [en]
Stroke, aphasia, case study, phenomenology, rehabilitation
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-97532DOI: 10.1080/17482620701296358OAI: oai:DiVA.org:uu-97532DiVA: diva2:172517
Available from: 2008-09-18 Created: 2008-09-18 Last updated: 2010-06-02Bibliographically approved
In thesis
1. Understanding Life After Stroke
Open this publication in new window or tab >>Understanding Life After Stroke
2008 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Stroke is an acute, neurological dysfunction of vascular origin with sudden occurrence and it influences physical, cognitive and psychological functions. Initial treatment aims at eliminating or reducing the brain damage. Soon, however, the influence of the stroke on the entire life of stroke survivors has to be considered.

This thesis explores the meaning of life after stroke to 19 elderly stroke survivors during the first year post stroke. Survivors were interviewed twice and the interviews were analysed through qualitative methods.

Study I was about four survivors who delayed hospital arrival far beyond time limits for trombolytic treatment. The survivors had a strong need for control of body, autonomy and integrity and they demanded to be encountered in consultations as a person by a person. To make them search for emergency evaluation in time might demand an emergency care treating them according to these needs.

In Study II the voice of an aphasic survivor was heard. Because of the damaged language his rehabilitation unilaterally focussed on language training and his need for comprehensive support and planning for the future was not observed. Implementation of a qualitative research method for text analysis adapted to practical use in dialogues with aphasic persons might ensure these survivors an adequate rehabilitation.

Study III showed how time models in narratives helped stroke survivors to overcome uncertainty and recreate narrative coherence in their lives. Professionals can support survivors through revealing and reinforcing the meaning of these models.

Study IV found that the meaning of rehabilitation to stroke survivors was social reintegration. Many probably did not socially reintegrate because their own strategies and subjectively experienced disabilities were unacknowledged in their rehabilitation. Through integrating illness-as-lived perspectives with biomedical perspectives, subjective dysfunctions and rehabilitation strategies of survivors could be acknowledged in stroke rehabilitation.

Place, publisher, year, edition, pages
Uppsala: Universitetsbiblioteket, 2008. 80 p.
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 376
National Category
Clinical Science
Identifiers
urn:nbn:se:uu:diva-9278 (URN)978-91-554-7280-1 (ISBN)
Public defence
2008-10-10, Rudbecksalen, Rudbecklaboratoriet, Dag Hammarskölds väg 20, Uppsala, 09:15
Opponent
Supervisors
Available from: 2008-09-18 Created: 2008-09-18Bibliographically approved

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Hjelmblink, FinnBernsten, Cecilia BHolmström, Inger

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