Perceptions of support among Swedish parents of children on cancer treatment: a prospective, longitudinal study
2009 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 18, no 4, 350-357 p.Article in journal (Refereed) Published
Given the important role of parents in ensuring the well-being of their children, their perceived support is crucial for their own, as well as their child's well-being. Perceptions of support were investigated among 214 Swedish parents of 115 children on cancer treatment. Parents answered questions about their satisfaction with their child's care (The Comprehensive Satisfaction with Care, Short Form, Version 4.0 (CASC SF 4.0)) and about their need, opportunity and benefit to talk to health professionals, significant others and other people. Data were collected over telephone at 1 week (T1), 2 (T2) and 4 (T3) months after the child's diagnosis. Parents reported at least moderate satisfaction with all aspects of their child's care, and highest satisfaction with the technical care. Less than half of the parents who reported a need to talk with a psychologist at T1-T3 reported having had the opportunity to do so. The care organization, doctors' interpersonal skills, information provision and availability, nurses' information provision and the availability of psychologists are areas within Swedish paediatric oncology care for which improvement most obviously is needed.
Place, publisher, year, edition, pages
2009. Vol. 18, no 4, 350-357 p.
parents, oncology, satisfaction with care, support, childhood cancer
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:uu:diva-100568DOI: 10.1111/j.1365-2354.2008.00935.xISI: 000267538700005PubMedID: 19040459OAI: oai:DiVA.org:uu-100568DiVA: diva2:211033
Published Online: 27 Nov 20082009-04-072009-04-022010-12-29Bibliographically approved