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Positive and negative consequences of childhood cancer influencing the lives of young adults
Karolinska Institutet, NVS.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Caring Sciences)
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health. (Barnonkologisk forskning/Pfeifer)
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2009 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 13, no 3, 164-170 p.Article in journal (Refereed) Published
Abstract [en]

The aim of the study was to describe how young adults who have survived   childhood cancer consider their present life to be influenced by the   cancer experience. A cohort of 246 long-term survivors were approached  a median of 16 years after diagnosis. Semi-structured telephone   interviews were conducted based on the Swedish version of the Schedule   for the Evaluation of Individual Quality of Life-Direct Weighting   (SEIQoL-DW). Interviews were analysed using content analyses. When   asked if cancer negatively or positively currently affected their   lives, 68% reported at least one negative consequence and 53% at least   one positive consequence. The most frequently reported negative   consequences include a variety of physical impairments and limitations   in participating in activities; positive consequences describe a more   positive view of life and of self. Women more often than men reported   negative psychological impact, a changed body appearance and positive   interaction with others. CNS tumours and combined treatment were   somewhat associated to a higher extent of negative consequences.   Overall, the results indicate that long-term survivors of childhood   cancer are getting along quite well despite shortcomings.

Place, publisher, year, edition, pages
2009. Vol. 13, no 3, 164-170 p.
Keyword [en]
Adolescent, Content analysis, Interview, Long-term, SEIQoL-DW, Survivors, Paediatric malignancies, Quality of life
National Category
Medical and Health Sciences
URN: urn:nbn:se:uu:diva-102338DOI: 10.1016/j.ejon.2008.05.009ISI: 000269426000005PubMedID: 18842454OAI: oai:DiVA.org:uu-102338DiVA: diva2:214689
Available from: 2009-05-06 Created: 2009-05-06 Last updated: 2012-03-14Bibliographically approved

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Arvidson, Johan
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Department of Public Health and Caring SciencesDepartment of Women's and Children's Health
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