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You can use my name; you don't have to steal my story: A critique of anonymity in indigenous studies
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.ORCID iD: 0000-0001-7486-4678
2010 (English)In: Developing World Bioethics, ISSN 1471-8731, E-ISSN 1471-8847, Vol. 10, no 2, 104-110 p.Article in journal (Refereed) Published
Abstract [en]

Our claim in this paper is that not being identified as the data source might cause harm to a person or group. Therefore, in some cases the default of anonymisation should be replaced by a careful deliberation, together with research subjects, of how to handle the issues of identification and confidentiality. Our prime example in this article is community participatory research and similar endeavours on indigenous groups. The theme, content and aim of the research, and the question of how to handle property rights and ownership of research results, as well as who should be in charge of the research process, including the process of creating anonymity, should all be answered, before anonymity is accepted.

Place, publisher, year, edition, pages
2010. Vol. 10, no 2, 104-110 p.
Keyword [en]
benefit sharing, research ethics, traditional knowledge, bioethics, anonymity, indigenous studies
National Category
Ethics
Identifiers
URN: urn:nbn:se:uu:diva-120236DOI: 10.1111/j.1471-8847.2010.00276.xISI: 000279725600006OAI: oai:DiVA.org:uu-120236DiVA: diva2:302918
Available from: 2010-03-10 Created: 2010-03-10 Last updated: 2017-03-30

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Svalastog, Anna LydiaEriksson, Stefan

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