Clarifying responsibility for self-management in adolescents with diabetes using insulin pumps: a qualitative study
2011 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 67, no 7, 1547-1557 p.Article in journal (Refereed) Published
Aim: To gain insight into and generate theoretical knowledge about the processes involved when insulin pump-treated adolescents take or miss taking their bolus doses.
Background: Insulin pump treatment is considered the most physiological way to imitate the healthy body’s insulin profile in adolescents with diabetes. Despite insulin pump-treatment, it is hard to maintain near-normal glucose control in adolescents; one reason for this is missed bolus doses to meals.
Method: In this qualitative interview study, the grounded theory method was chosen as a model for the collection and analysis of data. Twelve adolescents (5 males and 7 females, mean age 14.4 years, range 12-19 years) from different Swedish paediatric diabetes clinics, four parents and one paediatric diabetes nurse were interviewed during 2008 and 2009.
Findings: Responsibility in the context of taking or missing bolus doses emerged as the core category. It is elaborated and explained through three subcategories: distribution of responsibility, transfer of responsibility and clarifying of responsibility. The distribution of responsibility was clear among those who took most of their doses; they had high personal responsibility or shared it with their parents. The optimal transfer of responsibility is when it gradually moves from the parents to the adolescent. The findings revealed a need to clarify the responsibility for diabetes self-management in continuous negotiations between adolescents and parents to avoid missed bolus doses.
Conclusion: Negotiations to clarify the responsibility for diabetes self-management must be a continuous process between adolescents and parents. Diabetes care teams may facilitate and encourage these negotiations.
Place, publisher, year, edition, pages
2011. Vol. 67, no 7, 1547-1557 p.
adolescent parenting, adolescents, diabetes mellitus type 1, grounded theory, insulin pump, interviews, nursing
Medical and Health Sciences
Research subject Caring Sciences
IdentifiersURN: urn:nbn:se:uu:diva-122727DOI: 10.1111/j.1365-2648.2010.05588.xISI: 000292779400013OAI: oai:DiVA.org:uu-122727DiVA: diva2:310901