Development of a tool to measure the life situation of parents of children with cancer
1997 (English)In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 6, no 3, 248-256 p.Article in journal (Refereed) Published
The aim of this study was to test the validity and reliability of the recently developed Life Situation Scale for Parents (LSS-P) among parents of children with cancer. One hundred and ten parents of seventy-four children and adolescents who visited three paediatric wards in Sweden filled out three instruments: The LSS-P, the Quality of Life Scale and the Family Support Scale. The reliability coefficient, Cronbach's alpha, was found to be 0.82 for the LSS-P. A factor analysis with orthogonal varimax rotation of 37 items of the LSS-P gave twelve factors. A higher order factor analysis reduced the factors to four (Care, Well-being, Social life and Preparedness), explaining the underlying dimensions to 57.9%. The total LSS-P correlated significantly with the Quality of Life Scale, and the higher order factor Care with the Family Support Scale. The LSS-P discriminated, in some aspects, between two-parent visiting the ward for treatment or check-up. The conclusion is that this first version of the LSS-P was valid and reliable (internal consistency) to a certain extent, but that the instrument should be tested on larger samples and during different phases of the disease.
Place, publisher, year, edition, pages
1997. Vol. 6, no 3, 248-256 p.
Child, family health, life experiences, neoplasms, psychometrics
IdentifiersURN: urn:nbn:se:uu:diva-138865DOI: 10.1023/A:1026462705734PubMedID: 9226982OAI: oai:DiVA.org:uu-138865DiVA: diva2:380118