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The prerequisites for QoL of people with intellectual disabilities
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. (Disability and habilitation)
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
2011 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 13, no 4, 241-253 p.Article in journal (Refereed) Published
Abstract [en]

Quality of life (QoL) is seldom described in terms of the essence of what it is.Also, an essential task for the research community is to create space for the voicesof people with intellectual disabilities. The aim of the present study was tounderstand the lived meaning and the essence of QoL in adults with thisdisability. Using a phenomenological approach, 21 informants living in a Swedishcounty were interviewed. The interviews were audio taped and analyzed with theempirical phenomenological psychological method. The results indicate that thegeneral essence of QoL consists of well-being and five themes: social adult status,control of life, personal safety, social belonging and self-chosen solitude. Theresults challenge the stereotype of the informants as passive receivers of supportfrom others. The interrelatedness between the five themes of QoL should befurther studied.

Place, publisher, year, edition, pages
Routledge Taylor & Francis Group , 2011. Vol. 13, no 4, 241-253 p.
Keyword [en]
quality of life, intellectual disabilities, adult, phenomenology
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:uu:diva-142491DOI: 10.1080/15017419.2010.490729OAI: oai:DiVA.org:uu-142491DiVA: diva2:387495
Note

First published on: 17 November 2010 (iFirst)

Available from: 2011-01-14 Created: 2011-01-14 Last updated: 2017-12-11

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Umb-Carlsson, ÕieLindstedt, Helena

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