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Do nurses and cancer patients agree on cancer patients' coping resources, emotional distress and quality of life?
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Caring Sciences)
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Caring Sciences)
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Caring Sciences)
2008 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 17, no 4, 350-360 p.Article in journal (Refereed) Published
Abstract [en]

The present study examines differences, associations and agreement in cancer patients' and their nurses' ratings of cancer patients' coping resources, emotional distress and quality of life. The study sample includes 90 individual patient-nurse pairs. The patient and nurse in each pair independently completed the Cancer Behaviour Inventory, the Hospital Anxiety and Depression Scale and the Functional Assessment of Chronic Illness Therapy-Spiritual Well-being. The results indicate a distinct pattern in which nurses overestimate patients' emotional distress and underestimate patients' coping resources and quality of life. A nurse who overestimated a patient's emotional distress and underestimated his/her resources for handling the situation was also likely to underestimate the patient's quality of life. Patient-nurse pairs who demonstrated consistent agreement differed from remaining pairs in that they had a larger percentage of nurses with advanced education and previous responsibility for their patients' care and in that they had higher frequencies of patients who had previously received care at the ward > , 5 days. Nurses caring for patients with cancer should be aware of the risk of making systematic misjudgements of patients' status. Increased attention to patients' internal resources may improve nurses' ability to make correct assessments and plan for individualized care.

Place, publisher, year, edition, pages
2008. Vol. 17, no 4, 350-360 p.
Keyword [en]
cancer, patient-nurse, agreement, coping resources (CBI), emotional distress (HADS), quality of life (FACIT-Sp)
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-17713DOI: 10.1111/j.1365-2354.2007.00866.xISI: 000257652900004PubMedID: 18652002OAI: oai:DiVA.org:uu-17713DiVA: diva2:45484
Available from: 2008-08-18 Created: 2008-08-18 Last updated: 2017-12-08Bibliographically approved
In thesis
1. The Insider and Outsider Perspective: Clinical importance of agreement between patients and nurses in cancer care concerning patients’ emotional distress, coping resources and quality of life
Open this publication in new window or tab >>The Insider and Outsider Perspective: Clinical importance of agreement between patients and nurses in cancer care concerning patients’ emotional distress, coping resources and quality of life
2009 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: It is a well-known phenomenon that nurses and other oncology staff have a tendency to ascribe patients with cancer more problems and suffering than the patients themselves report. Aim: The overall aim of the present thesis was therefore to gain increased knowledge and understanding of dis/agreement between patients with cancer and nurses regarding their perception of patients’ situation and of the importance of patient-nurse dis/agreement in clinical practice. Methods: A prospective comparative design was used. Data were collected from a sample of 90 consecutively recruited patient-nurse pairs. Each pair consisted of a patient with cancer, newly admitted to a ward, and a nurse responsible for that patient’s care. Data were collected from the pairs with corresponding self-administrated questionnaires on two occasions: directly after the admission interview and on the patient’s third day on the ward. Results: At the group level, a distinct pattern was shown in which nurses ascribed the patients more emotional distress, less coping resources and a lower quality of life than the patients themselves reported. In short, the results revealed the following clinical importance of patient-nurse dis/agreement. With respect to how nurses act in relation to their perceptions of patients’ emotional distress, patient-nurse dis/agreement did not seem to be important; with few exceptions, nurses’ implemented care did not differ when it was directed at more as compared to less distressed patients. Further, nurses’ general tendency to overestimate cancer patients’ problems and suffering had no influence on patients’ satisfaction with received care and nurses’ satisfaction with provided care. However, patients cared for by nurses who underestimated their level of depression were less satisfied with those nurses’ care. In addition, the more frequently the nurse had implemented care characterized by a trusting relationship, the higher patients’ and nurses’ satisfaction with received/provided care. Conclusions: Initial patient-nurse dis/agreement concerning patients’ situation appears to be of little significance to nurses’ caring behaviour and to patients’ and nurses’ subsequent evaluation of received and provided care.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2009. 69 p.
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 459
Keyword
cancer care, patient-nurse agreement, emotional distress, coping resources, quality of life, implemented care, trusting relationship, satisfaction with care, work satisfaction
National Category
Nursing
Research subject
Caring Sciences in Medical Sciences
Identifiers
urn:nbn:se:uu:diva-101337 (URN)978-91-554-7533-8 (ISBN)
Public defence
2009-06-11, Universitetshuset, sal IX, Övre slottsgatan 2, Uppsala, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2009-05-19 Created: 2009-04-23 Last updated: 2010-12-15Bibliographically approved

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Mårtensson, GunillaCarlsson, MariaLampic, Claudia

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