Comparison of reports by relatives and staff on living conditions of adults with intellectual disabilities
2006 (English)In: Mental retardation (Washington, D.C. Print), ISSN 0047-6765, Vol. 44, no 2, 120-127 p.Article in journal (Refereed) Published
Proxies typically serve as information providers in studies of persons with intellectual disabilities. However, little is known about the concordance between different proxy categories and how proxy characteristics influence the information provided. We compared 89 pairs of relative and staff reports on the living conditions of persons with intellectual disabilities, using percentage agreement and Cohen's kappa statistics. Results demonstrate differences between relative and staff reports for most of the domains investigated, with moderate agreement for objective items and fair agreement for subjective items. Relative and staff proxies contributed different information related to diverse viewpoints and varying types of information. Thus, we suggest that information provided by proxies should not be treated as being interchangeable but, rather, as complementary.
Place, publisher, year, edition, pages
2006. Vol. 44, no 2, 120-127 p.
Activities of Daily Living/*classification, Adult, Aged, Disability Evaluation, Female, Group Homes/*legislation & jurisprudence, Humans, Male, Mentally Disabled Persons/*legislation & jurisprudence/psychology, Middle Aged, Observer Variation, Proxy/*legislation & jurisprudence, Reproducibility of Results, Residence Characteristics, Social Environment, Socioeconomic Factors, Sweden
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:uu:diva-23236DOI: 10.1352/0047-6765(2006)44[120:CORBRA]2.0.CO;2PubMedID: 16689612OAI: oai:DiVA.org:uu-23236DiVA: diva2:51010