Medical follow-up visits in adults 5-25 years after treatment for childhood acute leukaemia, lymphoma or Wilms' tumour
2006 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 95, no 8, 922-928 p.Article in journal (Refereed) Published
Aim: One aspect of organizing medical follow-up for adult survivors of childhood cancer is to determine to what extent the former patient experiences a need for health services. In the present paper, we studied how the healthcare needs, both subjectively and objectively, were fulfilled for our former patients. Methods: 335 survivors over 18 y of age, with a follow-up time of more than 5 y after completion of therapy, were sent a questionnaire probing their present use of health services. Results: The response rate was 73%. A majority ( 60%) of the survivors had no regular follow-up visits, and 42% of these reported that they missed not having one. More than one third were thus far dissatisfied with the follow-up programme. Only 3% of those who had regular follow-ups found them "unnecessary''. Complaints subjectively related to their diseases or treatments were reported by 47%. Out of all responders, 34% did not miss having regular follow-up visits. Neither perceived disease-related complaints nor radiation therapy was a predictor for having a scheduled follow-up visit.
Place, publisher, year, edition, pages
2006. Vol. 95, no 8, 922-928 p.
adults, childhood cancer, long-term survivors, utilization of healthcare
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:uu:diva-24561DOI: 10.1080/08035250600752441ISI: 000239953000006PubMedID: 16882563OAI: oai:DiVA.org:uu-24561DiVA: diva2:52335